M
Mommy2Zeke
Guest
My son is almost a month old and tested positive for DDf508 on his newborn screenings after having surgery for meconium ileus when he was 4 days old.
We live in Tulsa, OK and have been recommended to see Dr. T.C.- whom we've heard mixed opinions about. Our son was treated by Dr. T. C. in the hospital for the 3 weeks he was in NICU and while we like his use of the Danish method, we question the way he handled a situation with the pediatric surgeon who performed my child's surgery. The surgeon happens to be a very close friend of my parents whom I've known for years and is nationally recognized.
It could be run-of-the-mill clashing of egos but it made me uncomfortable that the two of them were fighting over my son's care and I felt like my son was the pawn. The surgeon was focused on getting my son recovered from surgery and Dr. C was focused on treating the CF- for which the only symptoms my son had exhibited were the meconium ileus. My son has cultured negative for any bacteria in his lungs thus far.
*name edited per request from moderator. Please PM to discuss this Dr.
My husband and I are willing to take our son to any center in a 300 mile radius... Texas, Kansas, Missouri, Arkansas, we just want some opinions from people treated at centers in our area and any advice you can give on this subject.
Thanks!
We live in Tulsa, OK and have been recommended to see Dr. T.C.- whom we've heard mixed opinions about. Our son was treated by Dr. T. C. in the hospital for the 3 weeks he was in NICU and while we like his use of the Danish method, we question the way he handled a situation with the pediatric surgeon who performed my child's surgery. The surgeon happens to be a very close friend of my parents whom I've known for years and is nationally recognized.
It could be run-of-the-mill clashing of egos but it made me uncomfortable that the two of them were fighting over my son's care and I felt like my son was the pawn. The surgeon was focused on getting my son recovered from surgery and Dr. C was focused on treating the CF- for which the only symptoms my son had exhibited were the meconium ileus. My son has cultured negative for any bacteria in his lungs thus far.
*name edited per request from moderator. Please PM to discuss this Dr.
My husband and I are willing to take our son to any center in a 300 mile radius... Texas, Kansas, Missouri, Arkansas, we just want some opinions from people treated at centers in our area and any advice you can give on this subject.
Thanks!