One year Anniversary...

[rose4cale]

We are coming up on the one year anniversary of our son being diagnosed. And though it has definitely changed our life-mostly in our attitudes towards life- I was hoping that those with CF could give me their input on this...

What was the best thing your parents did in raising you? The worst?

Those of you with CF on this board impress me everyday with your strength and attitude. I can't help but to think that your parents had a lot to do with that. My 2 year old seems to stand out above other 2 year olds that I know. So maybe you all are born with that too? He's amazing.

Thanks!

Shelly

 

[anonymous]

Hello Shelley, (my name is Sheli, too). My son is almost five and was diagnosed at 18months. We had a party for my son on the one year anniversary of his diagnosis. I knew that day was going to rough on me and my family and so I wanted to celebrate the fact that he was healthy and had no major problems that year. We had about 25 friends and family, and we all had a great time!! It can very hard emotionally to recognize the anniversary of the worst day of your of your life, but try to make it a positive experience. Try to get your daughter involved in planning a celebration, she has been undoubtedly affected by her brother's CF diagnoses. It will be very theraputic for her to have some control, what kid wouldn't want to help plan a party?!

 

[thefrogprincess]

Hey, I'm 23 with CF, and I have to say that the best thing my parents did was to let me be me. I know its hard for parents not to be over protective, especially when your child's health isn't normal. But your kid is someday going to grow up and if you shelter him/her too much then all of life's little suprises will turn into major disasters. You have tot each your kids to take care of themselves, and not just their health, but financially, and socially. My parents let me make mistakes, and deal with the consiquences so I would be prepared for adult-hood.

 

[Emily65Roses]

I second what Froggie said. My parents let me be me, let me make mistakes, let me be a teenager and screw around. I can only imagine how difficult that would be with a CFer for a daughter.

As for the worst, I'm honestly not trying to be a kiss-ass or a suck-up, but I can't think of anything off the top of my head that my parents did that really sucked. I mean I hated being punished at the times, of course, but there's reason for that. And looking back on it, I know that.

 

[rose4cale]

Sheli-I never considered celebrating the anniversary. Like you said...The worst day of my life. But since his diagnosis, we have come so far. He's gained 15 pounds this year and had no major illnesses. So why not have a party? I know his Birthday will always be a BIG party!

I try very, very hard to not shelter him. That was the FIRST thing I learned about raising a CF child from this board! Thanks guys. Did your parents push or encourage you to play sports? Did they buy you a trampoline? Anything else?

By the way Emily-the ROCK CF site has really cool graphics. Did you do those?

Shelly

 

[NoDayButToday]

Shelli-- actually, that Emily is NOT the Emily of Detroit who organized that concert for CF... there are just multiple Emilys LOL

 

[rose4cale]

Either way the graphics are really neat. Especially the home page! Wish I could do that. Thanks for clearing that up though!

 

[letsrockcfem]

I'm Emily from Detroit...thanks for the positive comments about the www.letsrockcf.com site....my friend from Indy designed the site and the front page is my tattoo but he added pictures into it....
check out my bands site www.hellenofdetroit.com
emily
23 pwcf