I posted last week regarding my 16 month old daughter and her problems since she was seven weeks old . I dont know what is wrong with my daughter but i know something isnt right. We are now in week 3 of the loose foul smelling stools. I wanted to talk to other parents in the uk on how there child was diagnosed . I feel like no one is listening . I took her to the ER this morning and they said oh she looks fine . They agreed that something is not right but that i need to go back to my G.P and be referred to a pedeatrician in my area . Which if your from the U.k you know you have to wait forever. They did test her blood sugar as she is always wanting juice , i dont know if she wants juice because she is thirsty or if she is always asking for juice because she is hungry. Even my babysitter is finding it hard looking after her as she is always having the bm's and soaking through her clothes as she drinks so much. I hope and pray she does not have cf but she sure has a lot of the symptoms,wheezing,bronchiolitis,and the stools. Does anyone have any ideas suggestions, are there other conditions that cause loose foul smelling stools? What tests can be done on stool samples? If anyone knows any of the answers to my questions please respond. In the meantime i will have to wait for an appointment . Well at least we have ruled out gastroenteritis ,toddlers diarhhea, lactose food allergies. Sorry to ramble on . Any answers to my questions is appreciated.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
PARENTS IN THE UK
- Thread starter anonymous
- Start date
I dont know if this will help but try to see if your daughter tastes salty, it was a test that they used to do (in the old days) my daughter is very salty especially her forehead. Also dont give up, you know something is wrong, and the sooner someone listens to you the more help you can get for your daughter if she has CF ( which I hope and pray she doesnt). Most normal doctors dont know the signs of CF if they where stirring them in the face. Hope everything turns out ok.
rgds Paula mom of ashleigh 11 cf
rgds Paula mom of ashleigh 11 cf
midwestmama
New member
WHATEVER you do, don't give up! Your daughter needs you to be her advocate. If you know something isn't right, than it isn't right. Be persistant until you find a Dr that will take your concerns serious. Whether you're in the UK or the states, one thing seems to be common and that is that regular Doctors don't seem to be up to speed on CF. You NEED to find someone that knows what to look for and what these sypmtoms add up to. It's so frustrating and believe me, you are NOT alone.
One thing they told me, limit the amount of juice, especially apple, because that seems to cause more BM's. I don't know if anyone else heard that. Please keep us updated. Best wishes.
One thing they told me, limit the amount of juice, especially apple, because that seems to cause more BM's. I don't know if anyone else heard that. Please keep us updated. Best wishes.
Celiac Sprue is a digestive disease that would cause a lot of bowels. (it is the intolerance of gluten which is found in so many foods containing wheat) They tested my child for that, but it is an invasive test. They put him under and took a biopsy of his intestines. It can be controlled with eliminating gluten from the diet, but it is life changing. If it isn't cared for, it can cause damage to the intestines.
Definitely check into CF though.
Definitely check into CF though.
Hi There,
I would suggest looking at the CF Trust website which is UK based.
They have good contacts there also, so if you feel like you are not making any progress you can get in contact.
The site address is www.cftrust.co.uk and it has a lot of useful information there.
I wish you the best of luck.
Rebekah
Mother to Matt 19mths w/cf and baby on the way no/cf
I would suggest looking at the CF Trust website which is UK based.
They have good contacts there also, so if you feel like you are not making any progress you can get in contact.
The site address is www.cftrust.co.uk and it has a lot of useful information there.
I wish you the best of luck.
Rebekah
Mother to Matt 19mths w/cf and baby on the way no/cf