Percussors

Jane

Digital opinion leader
We have a physical therapist who comes to our house 5x a week for chest PT. When the boys were young we did it ourselves, but it just added to the many tasks we already had in our busy day. Then we got the vest, but Josh found it uncomfortable and Jesse outright hated it. After their first cleanout, the doctors asked if there was anything we needed for home care and I asked for a therapist. We've had her 5 years now. She's great- like one of the family! She comes at 5:30 every day so it gives me a break to make dinner or check the forum. A lifesaver for sure!

Last time the boys were in the hospital, I aksed if we could also get an update for our vest. (we had the huge heavy one). It would be helpful when the boys are sick or if the PT can't come. They're still working it out with our insurance company, but it looks good!

We've never tried the flutter or any other device.
 

JazzysMom

New member
Years ago not too long after my dx we were given a used percusser since it was difficult for my Mom to do my treatments. I dont remember what make, but I didnt like it. I dont know if its because we did it wrong or it was to "stone age", but if it wasnt held just right it hurt like hell. Now that I am older & could do it myself much easier it probably would be ok, but now I have my vest. You never know tho it might be an alternative in years to come.......thats all I have to say about that!
 

welshgirl

New member
charlotte, my son has a new breathing technique he does, well new to us anyway. it is a mask he puts over his face its soft and padded then he does deep breaths and exhales for as long as poss. there is a little pressure dial that he has to keep between 10 and 20 when he exhales. it is to exercise the lower lobes of his lungs and to make him more independent. this is instead of "tapping". this is for older children obviously but you may do it with your daughter one day!! he does this and trampolining. i hope your daughter is naturally active because i think it helps immensely on the downside 'cos he is sooo active he has a lot of trouble with his weight. take care <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

charl72

New member
Thanks for that Janet.<img src="i/expressions/face-icon-small-happy.gif" border="0">  My daughter is really active!<img src="i/expressions/face-icon-small-cool.gif" border="0">
Tires us out! <img src="i/expressions/face-icon-small-wink.gif" border="0">She is a little monkey.<img src="i/expressions/face-icon-small-tongue.gif" border="0">  When you say your
son has a lot of trouble with his weight, do you mean cos he is so
active, he's burning it off? <img src="i/expressions/face-icon-small-confused.gif" border="0"><br>
<br>
 

welshgirl

New member
that is exactly the problem. as he grows taller the more skinny he looks . luckily he is not self concious yet!!!!<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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