philosophy of care

[wanderlost]

I am wondering how everyone opts to go about their Cf care. What I mean is, I am sure we all have a differetn philosophy by which we deal with and treat Cf. For example: do you trust your doctor inherently and do everything s/he suggests; are you aggressive or do you tend to wait things out; do you prefer to try natural remedies before going to meds; are you eager to try new things or do you stick with the tried and true, etc.?

I am sort of wrestling about with changing how I
have treated myself in the past but resistent to opting for other avenues, so I am interested to hear what you all have ot say

 

[wanderlost]

I am wondering how everyone opts to go about their Cf care. What I mean is, I am sure we all have a differetn philosophy by which we deal with and treat Cf. For example: do you trust your doctor inherently and do everything s/he suggests; are you aggressive or do you tend to wait things out; do you prefer to try natural remedies before going to meds; are you eager to try new things or do you stick with the tried and true, etc.?

I am sort of wrestling about with changing how I
have treated myself in the past but resistent to opting for other avenues, so I am interested to hear what you all have ot say

 

[wanderlost]

I am wondering how everyone opts to go about their Cf care. What I mean is, I am sure we all have a differetn philosophy by which we deal with and treat Cf. For example: do you trust your doctor inherently and do everything s/he suggests; are you aggressive or do you tend to wait things out; do you prefer to try natural remedies before going to meds; are you eager to try new things or do you stick with the tried and true, etc.?

I am sort of wrestling about with changing how I
have treated myself in the past but resistent to opting for other avenues, so I am interested to hear what you all have ot say

 

[wanderlost]

I am wondering how everyone opts to go about their Cf care. What I mean is, I am sure we all have a differetn philosophy by which we deal with and treat Cf. For example: do you trust your doctor inherently and do everything s/he suggests; are you aggressive or do you tend to wait things out; do you prefer to try natural remedies before going to meds; are you eager to try new things or do you stick with the tried and true, etc.?

I am sort of wrestling about with changing how I
have treated myself in the past but resistent to opting for other avenues, so I am interested to hear what you all have ot say

 

[wanderlost]

I am wondering how everyone opts to go about their Cf care. What I mean is, I am sure we all have a differetn philosophy by which we deal with and treat Cf. For example: do you trust your doctor inherently and do everything s/he suggests; are you aggressive or do you tend to wait things out; do you prefer to try natural remedies before going to meds; are you eager to try new things or do you stick with the tried and true, etc.?
<br />
<br />I am sort of wrestling about with changing how I
<br />have treated myself in the past but resistent to opting for other avenues, so I am interested to hear what you all have ot say

 

[Emily65Roses]

I don't trust everything my doctor says without question, never have. I always ask why he's doing a new med, or a new therapy, or a new test, or whatever. And my doc never really <i>tells</i> me what to do. He discusses the options, asks my opinion. Love that man. Anyways, so we always decide together what to do next.

I don't go too aggressive, but I don't want things out either. Basically, whenever my lungs become a real pain in the ass, I'll email my doc and be like "here's the deal, what to do" and he throws suggestions at me and we try something.

I do not do natural remedies, ever. That stuff just annoys me, personally.

I don't love trying new stuff, but I'm not against it either. If the doc thinks is the best path, I'll usually give something new a try, at least. Though I don't really enjoy the idea of clinical trials. I prefer to go on stuff that's already been through trial. I'm not totally against trials, I just have yet to find one that seemed worth it for me to try it. Mostly, it's easier to do stuff that's already been tested. And I'm lazy. Ha.

I hope that's what you were looking for? If I missed anything, let me know.

 

[Emily65Roses]

I don't trust everything my doctor says without question, never have. I always ask why he's doing a new med, or a new therapy, or a new test, or whatever. And my doc never really <i>tells</i> me what to do. He discusses the options, asks my opinion. Love that man. Anyways, so we always decide together what to do next.

I don't go too aggressive, but I don't want things out either. Basically, whenever my lungs become a real pain in the ass, I'll email my doc and be like "here's the deal, what to do" and he throws suggestions at me and we try something.

I do not do natural remedies, ever. That stuff just annoys me, personally.

I don't love trying new stuff, but I'm not against it either. If the doc thinks is the best path, I'll usually give something new a try, at least. Though I don't really enjoy the idea of clinical trials. I prefer to go on stuff that's already been through trial. I'm not totally against trials, I just have yet to find one that seemed worth it for me to try it. Mostly, it's easier to do stuff that's already been tested. And I'm lazy. Ha.

I hope that's what you were looking for? If I missed anything, let me know.

 

[Emily65Roses]

I don't trust everything my doctor says without question, never have. I always ask why he's doing a new med, or a new therapy, or a new test, or whatever. And my doc never really <i>tells</i> me what to do. He discusses the options, asks my opinion. Love that man. Anyways, so we always decide together what to do next.

I don't go too aggressive, but I don't want things out either. Basically, whenever my lungs become a real pain in the ass, I'll email my doc and be like "here's the deal, what to do" and he throws suggestions at me and we try something.

I do not do natural remedies, ever. That stuff just annoys me, personally.

I don't love trying new stuff, but I'm not against it either. If the doc thinks is the best path, I'll usually give something new a try, at least. Though I don't really enjoy the idea of clinical trials. I prefer to go on stuff that's already been through trial. I'm not totally against trials, I just have yet to find one that seemed worth it for me to try it. Mostly, it's easier to do stuff that's already been tested. And I'm lazy. Ha.

I hope that's what you were looking for? If I missed anything, let me know.

 

[Emily65Roses]

I don't trust everything my doctor says without question, never have. I always ask why he's doing a new med, or a new therapy, or a new test, or whatever. And my doc never really <i>tells</i> me what to do. He discusses the options, asks my opinion. Love that man. Anyways, so we always decide together what to do next.

I don't go too aggressive, but I don't want things out either. Basically, whenever my lungs become a real pain in the ass, I'll email my doc and be like "here's the deal, what to do" and he throws suggestions at me and we try something.

I do not do natural remedies, ever. That stuff just annoys me, personally.

I don't love trying new stuff, but I'm not against it either. If the doc thinks is the best path, I'll usually give something new a try, at least. Though I don't really enjoy the idea of clinical trials. I prefer to go on stuff that's already been through trial. I'm not totally against trials, I just have yet to find one that seemed worth it for me to try it. Mostly, it's easier to do stuff that's already been tested. And I'm lazy. Ha.

I hope that's what you were looking for? If I missed anything, let me know.

 

[Emily65Roses]

I don't trust everything my doctor says without question, never have. I always ask why he's doing a new med, or a new therapy, or a new test, or whatever. And my doc never really <i>tells</i> me what to do. He discusses the options, asks my opinion. Love that man. Anyways, so we always decide together what to do next.
<br />
<br />I don't go too aggressive, but I don't want things out either. Basically, whenever my lungs become a real pain in the ass, I'll email my doc and be like "here's the deal, what to do" and he throws suggestions at me and we try something.
<br />
<br />I do not do natural remedies, ever. That stuff just annoys me, personally.
<br />
<br />I don't love trying new stuff, but I'm not against it either. If the doc thinks is the best path, I'll usually give something new a try, at least. Though I don't really enjoy the idea of clinical trials. I prefer to go on stuff that's already been through trial. I'm not totally against trials, I just have yet to find one that seemed worth it for me to try it. Mostly, it's easier to do stuff that's already been tested. And I'm lazy. Ha.
<br />
<br />I hope that's what you were looking for? If I missed anything, let me know.

 

[ktsmom]

I trust our doc inherently, and with good reason. He is very experienced and also has a philosophy that I agree with, which is treat proactively and agressively and don't wait around.

I would love to try more natural therapies but since I also like to do thorough research on both "medical" and homeopathic stuff, I simply run out of time and energy to properly research. The only non-prescribed thing we do is Culturelle, which our doc gave the okay on "if it makes me (the mom) feel better". <img src="i/expressions/face-icon-small-wink.gif" border="0">

We are eager to try new things and will know on Tuesday if we get to participate in the latest Phase III Denufosol trial.

I know we've only been at this a few years now and your probably hoping for some more experienced replies but that's my two cents.

 

[ktsmom]

I trust our doc inherently, and with good reason. He is very experienced and also has a philosophy that I agree with, which is treat proactively and agressively and don't wait around.

I would love to try more natural therapies but since I also like to do thorough research on both "medical" and homeopathic stuff, I simply run out of time and energy to properly research. The only non-prescribed thing we do is Culturelle, which our doc gave the okay on "if it makes me (the mom) feel better". <img src="i/expressions/face-icon-small-wink.gif" border="0">

We are eager to try new things and will know on Tuesday if we get to participate in the latest Phase III Denufosol trial.

I know we've only been at this a few years now and your probably hoping for some more experienced replies but that's my two cents.

 

[ktsmom]

I trust our doc inherently, and with good reason. He is very experienced and also has a philosophy that I agree with, which is treat proactively and agressively and don't wait around.

I would love to try more natural therapies but since I also like to do thorough research on both "medical" and homeopathic stuff, I simply run out of time and energy to properly research. The only non-prescribed thing we do is Culturelle, which our doc gave the okay on "if it makes me (the mom) feel better". <img src="i/expressions/face-icon-small-wink.gif" border="0">

We are eager to try new things and will know on Tuesday if we get to participate in the latest Phase III Denufosol trial.

I know we've only been at this a few years now and your probably hoping for some more experienced replies but that's my two cents.

 

[ktsmom]

I trust our doc inherently, and with good reason. He is very experienced and also has a philosophy that I agree with, which is treat proactively and agressively and don't wait around.

I would love to try more natural therapies but since I also like to do thorough research on both "medical" and homeopathic stuff, I simply run out of time and energy to properly research. The only non-prescribed thing we do is Culturelle, which our doc gave the okay on "if it makes me (the mom) feel better". <img src="i/expressions/face-icon-small-wink.gif" border="0">

We are eager to try new things and will know on Tuesday if we get to participate in the latest Phase III Denufosol trial.

I know we've only been at this a few years now and your probably hoping for some more experienced replies but that's my two cents.

 

[ktsmom]

I trust our doc inherently, and with good reason. He is very experienced and also has a philosophy that I agree with, which is treat proactively and agressively and don't wait around.
<br />
<br />I would love to try more natural therapies but since I also like to do thorough research on both "medical" and homeopathic stuff, I simply run out of time and energy to properly research. The only non-prescribed thing we do is Culturelle, which our doc gave the okay on "if it makes me (the mom) feel better". <img src="i/expressions/face-icon-small-wink.gif" border="0">
<br />
<br />We are eager to try new things and will know on Tuesday if we get to participate in the latest Phase III Denufosol trial.
<br />
<br />I know we've only been at this a few years now and your probably hoping for some more experienced replies but that's my two cents.

 

[MargaritaChic]

We are new at this... so we do what the doctor says he thinks is best. But then I go home and research it myself and if I find other alternatives, etc. I call back and question his choice.

So I guess my point is that we don't follow the doctor blindly. If we don't agree we question him. We discuss everything before it is implemented.

I believe that I am my daughter's advocate. As she gets older I want her to feel that she is her own advocate. I will teach her by example that she makes the final decision on her care.

 

[MargaritaChic]

We are new at this... so we do what the doctor says he thinks is best. But then I go home and research it myself and if I find other alternatives, etc. I call back and question his choice.

So I guess my point is that we don't follow the doctor blindly. If we don't agree we question him. We discuss everything before it is implemented.

I believe that I am my daughter's advocate. As she gets older I want her to feel that she is her own advocate. I will teach her by example that she makes the final decision on her care.

 

[MargaritaChic]

We are new at this... so we do what the doctor says he thinks is best. But then I go home and research it myself and if I find other alternatives, etc. I call back and question his choice.

So I guess my point is that we don't follow the doctor blindly. If we don't agree we question him. We discuss everything before it is implemented.

I believe that I am my daughter's advocate. As she gets older I want her to feel that she is her own advocate. I will teach her by example that she makes the final decision on her care.

 

[MargaritaChic]

We are new at this... so we do what the doctor says he thinks is best. But then I go home and research it myself and if I find other alternatives, etc. I call back and question his choice.

So I guess my point is that we don't follow the doctor blindly. If we don't agree we question him. We discuss everything before it is implemented.

I believe that I am my daughter's advocate. As she gets older I want her to feel that she is her own advocate. I will teach her by example that she makes the final decision on her care.

 

[MargaritaChic]

We are new at this... so we do what the doctor says he thinks is best. But then I go home and research it myself and if I find other alternatives, etc. I call back and question his choice.
<br />
<br />So I guess my point is that we don't follow the doctor blindly. If we don't agree we question him. We discuss everything before it is implemented.
<br />
<br />I believe that I am my daughter's advocate. As she gets older I want her to feel that she is her own advocate. I will teach her by example that she makes the final decision on her care.