My daughter will be 5 months on the 8th of November and we took her to the dr yesterday for a cough she has had for almost 8 weeks. She does weeze and it seems as though she may have asthma or allergies?? However, I was dumbfounded when the dr told me she thought it may be time for the "sweat test" to check for CF. My family is loaded with people who have allergies and my daughters father has terrible asthma and allergies. The dr is a little sensitive to CF because her brother died at 28 of the disease. No one on either side of our famlies has this so I don't understand how it could be possible?? Can someone please help with some info??? Is my dr just over sensitive? I am so scared it's making me sick.
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Please Help, Need Info
- Thread starter MsCali24
- Start date
My daughter will be 5 months on the 8th of November and we took her to the dr yesterday for a cough she has had for almost 8 weeks. She does weeze and it seems as though she may have asthma or allergies?? However, I was dumbfounded when the dr told me she thought it may be time for the "sweat test" to check for CF. My family is loaded with people who have allergies and my daughters father has terrible asthma and allergies. The dr is a little sensitive to CF because her brother died at 28 of the disease. No one on either side of our famlies has this so I don't understand how it could be possible?? Can someone please help with some info??? Is my dr just over sensitive? I am so scared it's making me sick.
Emily65Roses
New member
I was the first and only in my large extended family to have CF. It's possible. To have CF, you don't necessarily need a family history. You just need the mother and father to carry the gene. Mutations happen all the time, so if there really aren't other cases of CF in the family, it's still quite possible.
Emily65Roses
New member
I was the first and only in my large extended family to have CF. It's possible. To have CF, you don't necessarily need a family history. You just need the mother and father to carry the gene. Mutations happen all the time, so if there really aren't other cases of CF in the family, it's still quite possible.
NoDayButToday
New member
Let me just second what Emily said, that it is very possible for your daughter to have CF, even with no family history. CF was only identified as a disease in 1938, so it's not as if there is a ton of history to look at anyway. You're right, your doctor may be erring on the side of caution because of her brother having CF, but it's nothing to be worrying too much about. Better highly cautious and wrong than an undiagnosed case. No matter what the result, it is better to do the sweat test than wait for more health problems to arise, and if it isn't CF to get closer to the culprit. Good luck
NoDayButToday
New member
Let me just second what Emily said, that it is very possible for your daughter to have CF, even with no family history. CF was only identified as a disease in 1938, so it's not as if there is a ton of history to look at anyway. You're right, your doctor may be erring on the side of caution because of her brother having CF, but it's nothing to be worrying too much about. Better highly cautious and wrong than an undiagnosed case. No matter what the result, it is better to do the sweat test than wait for more health problems to arise, and if it isn't CF to get closer to the culprit. Good luck
My daughter is 8 and has cf she is the only one in both families to have this disease so yes it is possible. I know how scared you must be but things are so much different now than they were when your drs brother was diagnosed and better to find out now when the baby is so young than to wait until older. Getting a jump start i think helps.
This may not even be the case and I hope for your sake it is not. But if it is just try to be strong and know that there are a lot of people on this site and everywhere who will be there for you.
Good Luck and God Bless
Teri
This may not even be the case and I hope for your sake it is not. But if it is just try to be strong and know that there are a lot of people on this site and everywhere who will be there for you.
Good Luck and God Bless
Teri
My daughter is 8 and has cf she is the only one in both families to have this disease so yes it is possible. I know how scared you must be but things are so much different now than they were when your drs brother was diagnosed and better to find out now when the baby is so young than to wait until older. Getting a jump start i think helps.
This may not even be the case and I hope for your sake it is not. But if it is just try to be strong and know that there are a lot of people on this site and everywhere who will be there for you.
Good Luck and God Bless
Teri
This may not even be the case and I hope for your sake it is not. But if it is just try to be strong and know that there are a lot of people on this site and everywhere who will be there for you.
Good Luck and God Bless
Teri
My family had no history of CF, but when I was 12 months or younger, I started to have dirreah and stomach problems and crying a lot. At first the family doctor thought it was colic, so I spent a lot of time on muscle relaxers. Once I started to loose weight, and my mom watched a talk show about alergies, she thought I could be allergic to something. She brought me to a specialists, he put me on so many diets by the time i was 15 months old I weighed a mere 12lbs and I had a collapsed lung. They decided to test me for CF, the did the test 5 times before he said "you should bring her to Toronto(which was four hours away), I think she has a hint of CF". I spent a couple of weeks recovering in the hospital. Diagnosis is much better now, and I would suggest going through with it just so she doesn't end up the way I did. Since then I've only been hospitalized one other time when I was 16.
Ashley 20w/cf
Ashley 20w/cf
My family had no history of CF, but when I was 12 months or younger, I started to have dirreah and stomach problems and crying a lot. At first the family doctor thought it was colic, so I spent a lot of time on muscle relaxers. Once I started to loose weight, and my mom watched a talk show about alergies, she thought I could be allergic to something. She brought me to a specialists, he put me on so many diets by the time i was 15 months old I weighed a mere 12lbs and I had a collapsed lung. They decided to test me for CF, the did the test 5 times before he said "you should bring her to Toronto(which was four hours away), I think she has a hint of CF". I spent a couple of weeks recovering in the hospital. Diagnosis is much better now, and I would suggest going through with it just so she doesn't end up the way I did. Since then I've only been hospitalized one other time when I was 16.
Ashley 20w/cf
Ashley 20w/cf
Always better safe than sorry. Have her tested and at least have an answer to the CF question. Emily is right. She is from a very large extended family and the only with CF. As her cousins are coming of age and getting married, they are being tested to see if they are carriers so as they have children, they are at least aware of their situations beforehand. My biggest piece of advise is to have your daughter tested at a CF facility as they know how to read the tests correectly. If you hav her tested by someone who doesn't know what they are doing, you can get false negative tests. Very distubring if they turn out to be wrong later. Let us know what happens!
Always better safe than sorry. Have her tested and at least have an answer to the CF question. Emily is right. She is from a very large extended family and the only with CF. As her cousins are coming of age and getting married, they are being tested to see if they are carriers so as they have children, they are at least aware of their situations beforehand. My biggest piece of advise is to have your daughter tested at a CF facility as they know how to read the tests correectly. If you hav her tested by someone who doesn't know what they are doing, you can get false negative tests. Very distubring if they turn out to be wrong later. Let us know what happens!
I have two kids with CF, my son is three and my daughter is 18 months old. Neither my husband nor I have ANY health problems or does anyone in our family history have CF. Just a blessing to me to have the two kids I got. God chose me as their mom because they are special people. He never gives us anymore than we can handle and with a positve attitude about it things usually always work out. The sweat test is not painful. With my son we knew he was positive seven days after he was tested. When my daughter was born we did DNA tests on her and it was four weeks before I knew and you talk about a wait to make you sick. That was. I knew deep down inside that my daughter was positive but I had prayed so hard she wasn't. The pulmonary clinic I take my kids to in OKC, OK tests every new patient they see, whether cf is suspected or not. The good thing there is that you know right away instead of waiting because that makes for long days.
I have two kids with CF, my son is three and my daughter is 18 months old. Neither my husband nor I have ANY health problems or does anyone in our family history have CF. Just a blessing to me to have the two kids I got. God chose me as their mom because they are special people. He never gives us anymore than we can handle and with a positve attitude about it things usually always work out. The sweat test is not painful. With my son we knew he was positive seven days after he was tested. When my daughter was born we did DNA tests on her and it was four weeks before I knew and you talk about a wait to make you sick. That was. I knew deep down inside that my daughter was positive but I had prayed so hard she wasn't. The pulmonary clinic I take my kids to in OKC, OK tests every new patient they see, whether cf is suspected or not. The good thing there is that you know right away instead of waiting because that makes for long days.
I back what everyone has said on the board. We had no family history either (or so we though - - we later discovered a history way way down our line...). Barbara is right - better safe than sorry! In our case, we had just the opposite problem. We literally visited FIVE pediatricians before one took us seriously (and my husband even has a medical degree). Finally, it was a physician's assistant who listened to us and wrote my son an Rx for a sweat test. These are fast, painless, and fairly inexpensive. I think it's great that your pediatrician is alert and informed enough to be cautious about cf. Most are not! I think most people would agree with me. Good luck and let us know what you find out! Carey
I back what everyone has said on the board. We had no family history either (or so we though - - we later discovered a history way way down our line...). Barbara is right - better safe than sorry! In our case, we had just the opposite problem. We literally visited FIVE pediatricians before one took us seriously (and my husband even has a medical degree). Finally, it was a physician's assistant who listened to us and wrote my son an Rx for a sweat test. These are fast, painless, and fairly inexpensive. I think it's great that your pediatrician is alert and informed enough to be cautious about cf. Most are not! I think most people would agree with me. Good luck and let us know what you find out! Carey