Okay, here goes. I need help from somoeone who has been there.
Cullen is almost a year and a half old. He is on a nebulizer for "asthma", recieving up to 4 treatments of albuterol and Pulmacort a day. On the doctors orders. At 6 months old, he was diagnosed with double pneumonia and bronchitis, this was after his lungs started to collapse. Up until that point, the doctors had been telling me that all he had was croup, which I knew was wrong. But anyway, after he gets his treatments, all he does is hack up mucus for about an hour. Now, I am not a medical professional, but I do know that asthma typically doesn't do that. Now, the doctors are not concerned about this.
Bear with me, it gets better.
He has had diarrhea EVERY DAY OF HIS LIFE. I don't know whether the doctors think I am exaggerating or if they just don't care, but I am being literal. He never spit up a lot when he was a baby, but as he has gotten older, he has periods, usually lasting a few days at a time, where he spits up. It doesn't matter what he eats, he throws up mucus, nothing else.
And to me, one of the most disturbing factors, extreme belly distention. I get comments about what a cute "chubby little guy" he is. He is about 8 pounds underweight. He appears chubby because his stomach is always swollen, has been since birth. Whether he has eaten recently or not. When he was 3 weeks old, his doctor ordered xrays to see if there was a mass in his stomach, it was that noticeable even then. There is nothing solid in his belly that is causing this.
I think that he might have CF, yet I cannot get a single doctor to just order the test. I can't pay out of pocket, I have to get a doctor to make the referral.
Now, you know about him. On to me. When I was 27 weeks pregnant with Cullen (he is my third child) I switched doctors. I didn't like the care I was recieving. The new doctor ordered new blood tests and they showed that I was a carrier of CF. Why this was not found until my third child is anyone's guess. They decided not to test my husband, based on the logic that we would not have the test results before the baby was born. I would not consent to an amnio, so the doctor assured me that the baby would be tested at birth, so not to worry.
He wasn't. This has dragged on so long, I am so tired and so worried. I just want my son tested, I know that something is wrong. I'm not sure what, but my best guess really is CF.
So how do I get the doctors to listen to me? And does this sound like I am right? Please somoeone help me.
Edit: A couple of facts that I forgot to mention. Cullen was underweight at birth. He was two weeks overdue and only weighed 6 lbs. 6 oz. My other two kids were 9 lbs. 1oz and 7 lbs. 12 oz. And he has been diagnosed with poor circulation to his hands and feet, but they are not sure why that is.
And I'm sorry if this post is in the wrong place, I am brand new here.
Cullen is almost a year and a half old. He is on a nebulizer for "asthma", recieving up to 4 treatments of albuterol and Pulmacort a day. On the doctors orders. At 6 months old, he was diagnosed with double pneumonia and bronchitis, this was after his lungs started to collapse. Up until that point, the doctors had been telling me that all he had was croup, which I knew was wrong. But anyway, after he gets his treatments, all he does is hack up mucus for about an hour. Now, I am not a medical professional, but I do know that asthma typically doesn't do that. Now, the doctors are not concerned about this.
Bear with me, it gets better.
He has had diarrhea EVERY DAY OF HIS LIFE. I don't know whether the doctors think I am exaggerating or if they just don't care, but I am being literal. He never spit up a lot when he was a baby, but as he has gotten older, he has periods, usually lasting a few days at a time, where he spits up. It doesn't matter what he eats, he throws up mucus, nothing else.
And to me, one of the most disturbing factors, extreme belly distention. I get comments about what a cute "chubby little guy" he is. He is about 8 pounds underweight. He appears chubby because his stomach is always swollen, has been since birth. Whether he has eaten recently or not. When he was 3 weeks old, his doctor ordered xrays to see if there was a mass in his stomach, it was that noticeable even then. There is nothing solid in his belly that is causing this.
I think that he might have CF, yet I cannot get a single doctor to just order the test. I can't pay out of pocket, I have to get a doctor to make the referral.
Now, you know about him. On to me. When I was 27 weeks pregnant with Cullen (he is my third child) I switched doctors. I didn't like the care I was recieving. The new doctor ordered new blood tests and they showed that I was a carrier of CF. Why this was not found until my third child is anyone's guess. They decided not to test my husband, based on the logic that we would not have the test results before the baby was born. I would not consent to an amnio, so the doctor assured me that the baby would be tested at birth, so not to worry.
He wasn't. This has dragged on so long, I am so tired and so worried. I just want my son tested, I know that something is wrong. I'm not sure what, but my best guess really is CF.
So how do I get the doctors to listen to me? And does this sound like I am right? Please somoeone help me.
Edit: A couple of facts that I forgot to mention. Cullen was underweight at birth. He was two weeks overdue and only weighed 6 lbs. 6 oz. My other two kids were 9 lbs. 1oz and 7 lbs. 12 oz. And he has been diagnosed with poor circulation to his hands and feet, but they are not sure why that is.
And I'm sorry if this post is in the wrong place, I am brand new here.