grannylana
New member
Recently my 5 year old granddughter tested positive with 2 sweat tests - one a 68 and one a 69. Now since 2 rounds of genetic testing has come back and no mutations have been located they are questioning her prior diagnosis. Has anyone heard of this before? She was bleeding in her bowels, had lost weight and has a terrible cough which all seem to be improving with breathing treatments and enzymes. We have changed hospitals and even doctors once to get to the bottom of what is wrong with El. Has this happened to any of you? Her new clinic says it isnt positive until 80 but they are treating her for CF?