Post Transplant Life and Having Children.

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summer732

New member
Just wondering if anyone who is post transplant and has decided to have children can share their experiences with it. How do you juggle work, doctors appointments, staying healthy/in shape, cooking, cleaning, and a child? I know I want children at some point, but sometimes I feel like my health is my child. What do you do if you do get sick or a cold? Or the child gets a cold? Or if you need a bronchoscopy or procedure?

If you could share your experiences of how you feel about it all that would be great. If given the chance to do it again, would you have children?

I know that for women, carrying children is probably not an option. So adoption or surrogacy would be the way I would eventually go, but I'm just looking for some thoughts on the whole subject.
 
S

summer732

New member
Just wondering if anyone who is post transplant and has decided to have children can share their experiences with it. How do you juggle work, doctors appointments, staying healthy/in shape, cooking, cleaning, and a child? I know I want children at some point, but sometimes I feel like my health is my child. What do you do if you do get sick or a cold? Or the child gets a cold? Or if you need a bronchoscopy or procedure?

If you could share your experiences of how you feel about it all that would be great. If given the chance to do it again, would you have children?

I know that for women, carrying children is probably not an option. So adoption or surrogacy would be the way I would eventually go, but I'm just looking for some thoughts on the whole subject.
 
S

summer732

New member
Just wondering if anyone who is post transplant and has decided to have children can share their experiences with it. How do you juggle work, doctors appointments, staying healthy/in shape, cooking, cleaning, and a child? I know I want children at some point, but sometimes I feel like my health is my child. What do you do if you do get sick or a cold? Or the child gets a cold? Or if you need a bronchoscopy or procedure?

If you could share your experiences of how you feel about it all that would be great. If given the chance to do it again, would you have children?

I know that for women, carrying children is probably not an option. So adoption or surrogacy would be the way I would eventually go, but I'm just looking for some thoughts on the whole subject.
 
S

summer732

New member
Just wondering if anyone who is post transplant and has decided to have children can share their experiences with it. How do you juggle work, doctors appointments, staying healthy/in shape, cooking, cleaning, and a child? I know I want children at some point, but sometimes I feel like my health is my child. What do you do if you do get sick or a cold? Or the child gets a cold? Or if you need a bronchoscopy or procedure?

If you could share your experiences of how you feel about it all that would be great. If given the chance to do it again, would you have children?

I know that for women, carrying children is probably not an option. So adoption or surrogacy would be the way I would eventually go, but I'm just looking for some thoughts on the whole subject.
 
S

summer732

New member
Just wondering if anyone who is post transplant and has decided to have children can share their experiences with it. How do you juggle work, doctors appointments, staying healthy/in shape, cooking, cleaning, and a child? I know I want children at some point, but sometimes I feel like my health is my child. What do you do if you do get sick or a cold? Or the child gets a cold? Or if you need a bronchoscopy or procedure?
<br />
<br />If you could share your experiences of how you feel about it all that would be great. If given the chance to do it again, would you have children?
<br />
<br />I know that for women, carrying children is probably not an option. So adoption or surrogacy would be the way I would eventually go, but I'm just looking for some thoughts on the whole subject.
 
L

Lex

New member
I have a 19 month old....and it's tough but doable. Of course there's a big difference between a man with cf and a woman. However, being post TX right now and not working, my wife is working and I stay at home and take care of the baby. It works. We make sure he stays healthy because if he gets sick, life gets challenging. We want 3 more kids <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Lex

New member
I have a 19 month old....and it's tough but doable. Of course there's a big difference between a man with cf and a woman. However, being post TX right now and not working, my wife is working and I stay at home and take care of the baby. It works. We make sure he stays healthy because if he gets sick, life gets challenging. We want 3 more kids <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Lex

New member
I have a 19 month old....and it's tough but doable. Of course there's a big difference between a man with cf and a woman. However, being post TX right now and not working, my wife is working and I stay at home and take care of the baby. It works. We make sure he stays healthy because if he gets sick, life gets challenging. We want 3 more kids <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Lex

New member
I have a 19 month old....and it's tough but doable. Of course there's a big difference between a man with cf and a woman. However, being post TX right now and not working, my wife is working and I stay at home and take care of the baby. It works. We make sure he stays healthy because if he gets sick, life gets challenging. We want 3 more kids <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

Lex

New member
I have a 19 month old....and it's tough but doable. Of course there's a big difference between a man with cf and a woman. However, being post TX right now and not working, my wife is working and I stay at home and take care of the baby. It works. We make sure he stays healthy because if he gets sick, life gets challenging. We want 3 more kids <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
T

Transplantmommy

New member
Having a child while you have CF can be a really difficult choice. My pregnancy came at the wrong time but also at the right time. I had already been referred and started my transplant evaluations (for lungs and liver) when I found out that I was 9 weeks pregnant. My doctors told me to terminate the pregnancy because of the transplant evaluations but also because I only had 40% FEV1 when I found out I was pregnant. I knew that there was a very small possibility that I would have the chance to be a mother again if I terminated the pregnancy, so I decided to go through with the pregnancy, knowing that things could take a turn for the worse and that I would have the child premature. The doctors had told me that I couldn't go past 36 weeks.

Brady was born at 33 weeks and was very healthy. I started the evaluations again in March 2006 and had a huge decline in my health. I was listed for the transplants in August 2006 and then had the transplant in January 2007...right after Brady had turned a year old. I had a lot of people who were helping to take care of Brady while I was recovering from the transplant. I also had people help me with the chores around the house when I went home in March.

I have stayed home with Brady for the last 4 years because my doctors and I didn't think it would be a good idea for me to go back to work and be exposed to germs there and then send Brady to Daycare and have him bring germs home to me. My husband works and carries the insurance. It can be hard at times, but we make do with what we can since this is the life we chose. I really enjoy my life and taking care of my son! He actually starts headstart/school tomorrow and then I will start worrying about the germs.

As for more children, if we have anymore, we will either do surrogacy or adopt...but not right now. I had my tubes tied when I had the c-section for Brady.

There are times that it's very trying to have a child when you have CF, but for me, knowing that I have gone through everything that I have, and also have a child, it's very rewarding and Brady's what keeps me going every day.

If you have any specific quesitons, I would love to try to help.
 
T

Transplantmommy

New member
Having a child while you have CF can be a really difficult choice. My pregnancy came at the wrong time but also at the right time. I had already been referred and started my transplant evaluations (for lungs and liver) when I found out that I was 9 weeks pregnant. My doctors told me to terminate the pregnancy because of the transplant evaluations but also because I only had 40% FEV1 when I found out I was pregnant. I knew that there was a very small possibility that I would have the chance to be a mother again if I terminated the pregnancy, so I decided to go through with the pregnancy, knowing that things could take a turn for the worse and that I would have the child premature. The doctors had told me that I couldn't go past 36 weeks.

Brady was born at 33 weeks and was very healthy. I started the evaluations again in March 2006 and had a huge decline in my health. I was listed for the transplants in August 2006 and then had the transplant in January 2007...right after Brady had turned a year old. I had a lot of people who were helping to take care of Brady while I was recovering from the transplant. I also had people help me with the chores around the house when I went home in March.

I have stayed home with Brady for the last 4 years because my doctors and I didn't think it would be a good idea for me to go back to work and be exposed to germs there and then send Brady to Daycare and have him bring germs home to me. My husband works and carries the insurance. It can be hard at times, but we make do with what we can since this is the life we chose. I really enjoy my life and taking care of my son! He actually starts headstart/school tomorrow and then I will start worrying about the germs.

As for more children, if we have anymore, we will either do surrogacy or adopt...but not right now. I had my tubes tied when I had the c-section for Brady.

There are times that it's very trying to have a child when you have CF, but for me, knowing that I have gone through everything that I have, and also have a child, it's very rewarding and Brady's what keeps me going every day.

If you have any specific quesitons, I would love to try to help.
 
T

Transplantmommy

New member
Having a child while you have CF can be a really difficult choice. My pregnancy came at the wrong time but also at the right time. I had already been referred and started my transplant evaluations (for lungs and liver) when I found out that I was 9 weeks pregnant. My doctors told me to terminate the pregnancy because of the transplant evaluations but also because I only had 40% FEV1 when I found out I was pregnant. I knew that there was a very small possibility that I would have the chance to be a mother again if I terminated the pregnancy, so I decided to go through with the pregnancy, knowing that things could take a turn for the worse and that I would have the child premature. The doctors had told me that I couldn't go past 36 weeks.

Brady was born at 33 weeks and was very healthy. I started the evaluations again in March 2006 and had a huge decline in my health. I was listed for the transplants in August 2006 and then had the transplant in January 2007...right after Brady had turned a year old. I had a lot of people who were helping to take care of Brady while I was recovering from the transplant. I also had people help me with the chores around the house when I went home in March.

I have stayed home with Brady for the last 4 years because my doctors and I didn't think it would be a good idea for me to go back to work and be exposed to germs there and then send Brady to Daycare and have him bring germs home to me. My husband works and carries the insurance. It can be hard at times, but we make do with what we can since this is the life we chose. I really enjoy my life and taking care of my son! He actually starts headstart/school tomorrow and then I will start worrying about the germs.

As for more children, if we have anymore, we will either do surrogacy or adopt...but not right now. I had my tubes tied when I had the c-section for Brady.

There are times that it's very trying to have a child when you have CF, but for me, knowing that I have gone through everything that I have, and also have a child, it's very rewarding and Brady's what keeps me going every day.

If you have any specific quesitons, I would love to try to help.
 
T

Transplantmommy

New member
Having a child while you have CF can be a really difficult choice. My pregnancy came at the wrong time but also at the right time. I had already been referred and started my transplant evaluations (for lungs and liver) when I found out that I was 9 weeks pregnant. My doctors told me to terminate the pregnancy because of the transplant evaluations but also because I only had 40% FEV1 when I found out I was pregnant. I knew that there was a very small possibility that I would have the chance to be a mother again if I terminated the pregnancy, so I decided to go through with the pregnancy, knowing that things could take a turn for the worse and that I would have the child premature. The doctors had told me that I couldn't go past 36 weeks.

Brady was born at 33 weeks and was very healthy. I started the evaluations again in March 2006 and had a huge decline in my health. I was listed for the transplants in August 2006 and then had the transplant in January 2007...right after Brady had turned a year old. I had a lot of people who were helping to take care of Brady while I was recovering from the transplant. I also had people help me with the chores around the house when I went home in March.

I have stayed home with Brady for the last 4 years because my doctors and I didn't think it would be a good idea for me to go back to work and be exposed to germs there and then send Brady to Daycare and have him bring germs home to me. My husband works and carries the insurance. It can be hard at times, but we make do with what we can since this is the life we chose. I really enjoy my life and taking care of my son! He actually starts headstart/school tomorrow and then I will start worrying about the germs.

As for more children, if we have anymore, we will either do surrogacy or adopt...but not right now. I had my tubes tied when I had the c-section for Brady.

There are times that it's very trying to have a child when you have CF, but for me, knowing that I have gone through everything that I have, and also have a child, it's very rewarding and Brady's what keeps me going every day.

If you have any specific quesitons, I would love to try to help.
 
T

Transplantmommy

New member
Having a child while you have CF can be a really difficult choice. My pregnancy came at the wrong time but also at the right time. I had already been referred and started my transplant evaluations (for lungs and liver) when I found out that I was 9 weeks pregnant. My doctors told me to terminate the pregnancy because of the transplant evaluations but also because I only had 40% FEV1 when I found out I was pregnant. I knew that there was a very small possibility that I would have the chance to be a mother again if I terminated the pregnancy, so I decided to go through with the pregnancy, knowing that things could take a turn for the worse and that I would have the child premature. The doctors had told me that I couldn't go past 36 weeks.
<br />
<br />Brady was born at 33 weeks and was very healthy. I started the evaluations again in March 2006 and had a huge decline in my health. I was listed for the transplants in August 2006 and then had the transplant in January 2007...right after Brady had turned a year old. I had a lot of people who were helping to take care of Brady while I was recovering from the transplant. I also had people help me with the chores around the house when I went home in March.
<br />
<br />I have stayed home with Brady for the last 4 years because my doctors and I didn't think it would be a good idea for me to go back to work and be exposed to germs there and then send Brady to Daycare and have him bring germs home to me. My husband works and carries the insurance. It can be hard at times, but we make do with what we can since this is the life we chose. I really enjoy my life and taking care of my son! He actually starts headstart/school tomorrow and then I will start worrying about the germs.
<br />
<br />As for more children, if we have anymore, we will either do surrogacy or adopt...but not right now. I had my tubes tied when I had the c-section for Brady.
<br />
<br />There are times that it's very trying to have a child when you have CF, but for me, knowing that I have gone through everything that I have, and also have a child, it's very rewarding and Brady's what keeps me going every day.
<br />
<br />If you have any specific quesitons, I would love to try to help.
 
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