Post Traumatic Stress Disorder

charl72

New member
I have been seeing a Psychologist on and off for the last 6 months and she reckons I've got PTSD. <img src="i/expressions/face-icon-small-happy.gif" border="0"> I dunno though! Basically I suffer a lot from anxiety,<img src="i/expressions/face-icon-small-confused.gif" border="0"> always have even before I had my two daughters, it has got slightly worse since my youngest was diagnosed with CF at 6 weeks old. At my last appointment, the Psych told me that she reckons I've got PTSD. I told her that I get stressed out when I take my daughter to the CF Clinic every 2 months. I am worried about cross-infection. She seems to think that I should trust the staff more and that they are doing all they can to prevent cross-infection. I feel anxious when we wait in the waiting room and my daughter plays with the toys. They tell me that they are cleaned, but I can't see them having the time to clean them every time a person touches them - it's impossible. I also get stressed out when we go into the treatment room, etc, etc, need I say more<img src="i/expressions/face-icon-small-disgusted.gif" border="0">. Anyways, to cut a long story very short, she has asked if I want her to come along to the next CF Clinic appointment for her to see what goes on and to try and help. What do you guys reckon?! I get flashbacks every time I go the the CF appointments cos that is where we were told our daughter had CF. The Psych reckons that she can help me deal with my anxiety more. I reckon I am doing pretty well, to be able to keep going back to the Clinic. It just doesn't make sense at the moment. Grateful for any comments cos it's doing my head in! (excuse the pun) Aghhhhh!<img src="i/expressions/face-icon-small-confused.gif" border="0">Part of me thinks she's taking the p*ss.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 

charl72

New member
I have been seeing a Psychologist on and off for the last 6 months and she reckons I've got PTSD. <img src="i/expressions/face-icon-small-happy.gif" border="0"> I dunno though! Basically I suffer a lot from anxiety,<img src="i/expressions/face-icon-small-confused.gif" border="0"> always have even before I had my two daughters, it has got slightly worse since my youngest was diagnosed with CF at 6 weeks old. At my last appointment, the Psych told me that she reckons I've got PTSD. I told her that I get stressed out when I take my daughter to the CF Clinic every 2 months. I am worried about cross-infection. She seems to think that I should trust the staff more and that they are doing all they can to prevent cross-infection. I feel anxious when we wait in the waiting room and my daughter plays with the toys. They tell me that they are cleaned, but I can't see them having the time to clean them every time a person touches them - it's impossible. I also get stressed out when we go into the treatment room, etc, etc, need I say more<img src="i/expressions/face-icon-small-disgusted.gif" border="0">. Anyways, to cut a long story very short, she has asked if I want her to come along to the next CF Clinic appointment for her to see what goes on and to try and help. What do you guys reckon?! I get flashbacks every time I go the the CF appointments cos that is where we were told our daughter had CF. The Psych reckons that she can help me deal with my anxiety more. I reckon I am doing pretty well, to be able to keep going back to the Clinic. It just doesn't make sense at the moment. Grateful for any comments cos it's doing my head in! (excuse the pun) Aghhhhh!<img src="i/expressions/face-icon-small-confused.gif" border="0">Part of me thinks she's taking the p*ss.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 

charl72

New member
I have been seeing a Psychologist on and off for the last 6 months and she reckons I've got PTSD. <img src="i/expressions/face-icon-small-happy.gif" border="0"> I dunno though! Basically I suffer a lot from anxiety,<img src="i/expressions/face-icon-small-confused.gif" border="0"> always have even before I had my two daughters, it has got slightly worse since my youngest was diagnosed with CF at 6 weeks old. At my last appointment, the Psych told me that she reckons I've got PTSD. I told her that I get stressed out when I take my daughter to the CF Clinic every 2 months. I am worried about cross-infection. She seems to think that I should trust the staff more and that they are doing all they can to prevent cross-infection. I feel anxious when we wait in the waiting room and my daughter plays with the toys. They tell me that they are cleaned, but I can't see them having the time to clean them every time a person touches them - it's impossible. I also get stressed out when we go into the treatment room, etc, etc, need I say more<img src="i/expressions/face-icon-small-disgusted.gif" border="0">. Anyways, to cut a long story very short, she has asked if I want her to come along to the next CF Clinic appointment for her to see what goes on and to try and help. What do you guys reckon?! I get flashbacks every time I go the the CF appointments cos that is where we were told our daughter had CF. The Psych reckons that she can help me deal with my anxiety more. I reckon I am doing pretty well, to be able to keep going back to the Clinic. It just doesn't make sense at the moment. Grateful for any comments cos it's doing my head in! (excuse the pun) Aghhhhh!<img src="i/expressions/face-icon-small-confused.gif" border="0">Part of me thinks she's taking the p*ss.<img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Ratatosk

Administrator
Staff member
Your psychologist probably doesn't understand the cross contamination issue. That certain germs can live on surfaces for DAYS.

We have stopped going to the local (Non-accreditted) cf clinic. I'd be a basketcase before, during and after. There was a community waiting room, with toys and a little table for the kids to play at and I didn't want DS touching anything. Clinic visits were over 4 hours and I'd catch doctors & nurses not washing their hands before touching DS or wiping down the pulseox. Last visit the kiddy table had some sorta sticky stuff spilled all over it and our exam room smelled like body odor.

I get a horrible feeling in my stomach just thinking about it. Last visit I got into an argument with a nurse who wanted us to trade exam rooms with another cfer and I refused. We just about walked out. Then we sat for 1 1/2 hours without seeing nary a soul. Grrr!

I looked back on my journal and noticed that DS would always come down with a cold or upper respiratory infection about a week or so after being at the CF clinic.

At the regular peds clinic, I just make sure DS uses antibacterial foam or washes his hands. And try to make darned sure his fingers don't go up his nose and/or into his mouth until I get wash them off.

BTW, I seriously considered asking my doctor for some valium just for clinic visits, I'd get so stressed out.
 

Ratatosk

Administrator
Staff member
Your psychologist probably doesn't understand the cross contamination issue. That certain germs can live on surfaces for DAYS.

We have stopped going to the local (Non-accreditted) cf clinic. I'd be a basketcase before, during and after. There was a community waiting room, with toys and a little table for the kids to play at and I didn't want DS touching anything. Clinic visits were over 4 hours and I'd catch doctors & nurses not washing their hands before touching DS or wiping down the pulseox. Last visit the kiddy table had some sorta sticky stuff spilled all over it and our exam room smelled like body odor.

I get a horrible feeling in my stomach just thinking about it. Last visit I got into an argument with a nurse who wanted us to trade exam rooms with another cfer and I refused. We just about walked out. Then we sat for 1 1/2 hours without seeing nary a soul. Grrr!

I looked back on my journal and noticed that DS would always come down with a cold or upper respiratory infection about a week or so after being at the CF clinic.

At the regular peds clinic, I just make sure DS uses antibacterial foam or washes his hands. And try to make darned sure his fingers don't go up his nose and/or into his mouth until I get wash them off.

BTW, I seriously considered asking my doctor for some valium just for clinic visits, I'd get so stressed out.
 

Ratatosk

Administrator
Staff member
Your psychologist probably doesn't understand the cross contamination issue. That certain germs can live on surfaces for DAYS.

We have stopped going to the local (Non-accreditted) cf clinic. I'd be a basketcase before, during and after. There was a community waiting room, with toys and a little table for the kids to play at and I didn't want DS touching anything. Clinic visits were over 4 hours and I'd catch doctors & nurses not washing their hands before touching DS or wiping down the pulseox. Last visit the kiddy table had some sorta sticky stuff spilled all over it and our exam room smelled like body odor.

I get a horrible feeling in my stomach just thinking about it. Last visit I got into an argument with a nurse who wanted us to trade exam rooms with another cfer and I refused. We just about walked out. Then we sat for 1 1/2 hours without seeing nary a soul. Grrr!

I looked back on my journal and noticed that DS would always come down with a cold or upper respiratory infection about a week or so after being at the CF clinic.

At the regular peds clinic, I just make sure DS uses antibacterial foam or washes his hands. And try to make darned sure his fingers don't go up his nose and/or into his mouth until I get wash them off.

BTW, I seriously considered asking my doctor for some valium just for clinic visits, I'd get so stressed out.
 
S

sdelorenzo

Guest
I bring another adult (my mom, etc) along with me to clinic. That way they all stay on another floor and not in the cf waiting area. I call them when we are paged. I also don't like holding the pager. I think some clinics have plastic bags they put them in. I am going to start bringing my own. I am very anxious also when we go to the exam rooms. I try to keep masks on my kids face. They aren't very cooperative yet. I also try and make sure they don't touch anything in the room (as hard as that might be). I bring disinfect wipes for the chairs or anything else my kids might touch in the rooms. I don't let them touch toys or books there. I read an article once that said bacteria can live on books for quite a while. Yuck! I bring plenty of things for my kids to do in a backpack. The best thing I have found is a portable dvd player. I take them to Blockbuster right before clinic and they each pick out two movies. That has helped a bunch. My daughter just started doing pft's in the past few months. I know the machines can't be as germ free as they claim.
Sharon, mom of Sophia, 5 and Jack, 3 both wti
 
S

sdelorenzo

Guest
I bring another adult (my mom, etc) along with me to clinic. That way they all stay on another floor and not in the cf waiting area. I call them when we are paged. I also don't like holding the pager. I think some clinics have plastic bags they put them in. I am going to start bringing my own. I am very anxious also when we go to the exam rooms. I try to keep masks on my kids face. They aren't very cooperative yet. I also try and make sure they don't touch anything in the room (as hard as that might be). I bring disinfect wipes for the chairs or anything else my kids might touch in the rooms. I don't let them touch toys or books there. I read an article once that said bacteria can live on books for quite a while. Yuck! I bring plenty of things for my kids to do in a backpack. The best thing I have found is a portable dvd player. I take them to Blockbuster right before clinic and they each pick out two movies. That has helped a bunch. My daughter just started doing pft's in the past few months. I know the machines can't be as germ free as they claim.
Sharon, mom of Sophia, 5 and Jack, 3 both wti
 
S

sdelorenzo

Guest
I bring another adult (my mom, etc) along with me to clinic. That way they all stay on another floor and not in the cf waiting area. I call them when we are paged. I also don't like holding the pager. I think some clinics have plastic bags they put them in. I am going to start bringing my own. I am very anxious also when we go to the exam rooms. I try to keep masks on my kids face. They aren't very cooperative yet. I also try and make sure they don't touch anything in the room (as hard as that might be). I bring disinfect wipes for the chairs or anything else my kids might touch in the rooms. I don't let them touch toys or books there. I read an article once that said bacteria can live on books for quite a while. Yuck! I bring plenty of things for my kids to do in a backpack. The best thing I have found is a portable dvd player. I take them to Blockbuster right before clinic and they each pick out two movies. That has helped a bunch. My daughter just started doing pft's in the past few months. I know the machines can't be as germ free as they claim.
Sharon, mom of Sophia, 5 and Jack, 3 both wti
 

Scarlett81

New member
You have legitimate reasons to be stressed and have anxiety, and to be worried about germs. Any health diagnosis that is serious to you or a loved one can cause ptsd. I have diagnosed ptsd b/c of traumatic childhood events. I have managed to control it with therapy and haven't needed medication.-But I'm completely open to medication, my therapist felt I really didn't need it, and wanted me to focus on the things that happened to me and use therapy to deal witht them.
As far as germs, you sound like you really have anxiety over this. You have reason to, but there are germs everywhere and your child is going to have to live in a world with them. You can't be so anxious about it, I think your therapist is right. You also don't want your child to become overly anxious as they get older. I think you should keep facing these appointments, try your best to deal with them. Maybe you should privately tell your cf doctor about your anxitey and fears with the germs. Maybe he could help to calm your nerves more. And keep going to therapy-ptsd gets better over time, I promise! If you have a good therapist, they'll help to give you the coping skills you need to deal with life. If I could overcome it-<i>anybody</i> could.
 

Scarlett81

New member
You have legitimate reasons to be stressed and have anxiety, and to be worried about germs. Any health diagnosis that is serious to you or a loved one can cause ptsd. I have diagnosed ptsd b/c of traumatic childhood events. I have managed to control it with therapy and haven't needed medication.-But I'm completely open to medication, my therapist felt I really didn't need it, and wanted me to focus on the things that happened to me and use therapy to deal witht them.
As far as germs, you sound like you really have anxiety over this. You have reason to, but there are germs everywhere and your child is going to have to live in a world with them. You can't be so anxious about it, I think your therapist is right. You also don't want your child to become overly anxious as they get older. I think you should keep facing these appointments, try your best to deal with them. Maybe you should privately tell your cf doctor about your anxitey and fears with the germs. Maybe he could help to calm your nerves more. And keep going to therapy-ptsd gets better over time, I promise! If you have a good therapist, they'll help to give you the coping skills you need to deal with life. If I could overcome it-<i>anybody</i> could.
 

Scarlett81

New member
You have legitimate reasons to be stressed and have anxiety, and to be worried about germs. Any health diagnosis that is serious to you or a loved one can cause ptsd. I have diagnosed ptsd b/c of traumatic childhood events. I have managed to control it with therapy and haven't needed medication.-But I'm completely open to medication, my therapist felt I really didn't need it, and wanted me to focus on the things that happened to me and use therapy to deal witht them.
As far as germs, you sound like you really have anxiety over this. You have reason to, but there are germs everywhere and your child is going to have to live in a world with them. You can't be so anxious about it, I think your therapist is right. You also don't want your child to become overly anxious as they get older. I think you should keep facing these appointments, try your best to deal with them. Maybe you should privately tell your cf doctor about your anxitey and fears with the germs. Maybe he could help to calm your nerves more. And keep going to therapy-ptsd gets better over time, I promise! If you have a good therapist, they'll help to give you the coping skills you need to deal with life. If I could overcome it-<i>anybody</i> could.
 

Alyssa

New member
I'm no expert but it sounds quite resonable to me that you would have PTSD, especially if you are having flashbacks to the diagnosis day.

I agree, that she might not completely understand the cross contamination issues, but I think it is really great for her to offer to come with you to an appointment -- that might be very helpful for you.

I also agree with whoever mentioned not getting too worked up about germs and letting that influence your daughter later on -- but that doesn't mean you throw all caution to the wind either -- we all need to find the balance that makes us comfortable. How about taking your own toys for her to play with while there? We always are sure to wash our hands when we leave too.

It's been a long time since I read the clinical definition of PTSD, but it seems like it is pretty easy to fit the bill. I remember years ago when I went to a therapist and my health insurance company was going to be paying for it -- I was concerned that they might not want to pay for it if my reasons for going were not "medical" enough. She very casually said "I'm just going to write down Post Tramatic Stress Disorder, and that should take care of it"
 

Alyssa

New member
I'm no expert but it sounds quite resonable to me that you would have PTSD, especially if you are having flashbacks to the diagnosis day.

I agree, that she might not completely understand the cross contamination issues, but I think it is really great for her to offer to come with you to an appointment -- that might be very helpful for you.

I also agree with whoever mentioned not getting too worked up about germs and letting that influence your daughter later on -- but that doesn't mean you throw all caution to the wind either -- we all need to find the balance that makes us comfortable. How about taking your own toys for her to play with while there? We always are sure to wash our hands when we leave too.

It's been a long time since I read the clinical definition of PTSD, but it seems like it is pretty easy to fit the bill. I remember years ago when I went to a therapist and my health insurance company was going to be paying for it -- I was concerned that they might not want to pay for it if my reasons for going were not "medical" enough. She very casually said "I'm just going to write down Post Tramatic Stress Disorder, and that should take care of it"
 

Alyssa

New member
I'm no expert but it sounds quite resonable to me that you would have PTSD, especially if you are having flashbacks to the diagnosis day.

I agree, that she might not completely understand the cross contamination issues, but I think it is really great for her to offer to come with you to an appointment -- that might be very helpful for you.

I also agree with whoever mentioned not getting too worked up about germs and letting that influence your daughter later on -- but that doesn't mean you throw all caution to the wind either -- we all need to find the balance that makes us comfortable. How about taking your own toys for her to play with while there? We always are sure to wash our hands when we leave too.

It's been a long time since I read the clinical definition of PTSD, but it seems like it is pretty easy to fit the bill. I remember years ago when I went to a therapist and my health insurance company was going to be paying for it -- I was concerned that they might not want to pay for it if my reasons for going were not "medical" enough. She very casually said "I'm just going to write down Post Tramatic Stress Disorder, and that should take care of it"
 

JRPandTJP

New member
Last Spring after we stopped breastfeeding I had a major emotional let down. I began having nightmares and even some waking nightmares. I suddenly couldn't keep things together and began having flashbacks to hospital events. I sought out help to work through the intense guilt and grief I had been feeling but never allowed myself to fully recognize because I was caring for everyone else and denying myself time to incorporate all we had endured. For me nursing him helped me through a very difficult year...once it was gone I felt very vulnerable.

Our clinic is actually where he was hospitalized while he lingered undiagnosed. I had to pass the same art pieces, cafeteria, and even take the same elevator as we did when he was in hospital for 2 weeks! It was torturous for a while. I always went alone and the first appointments were even worse because of the lack of support I received with regard to his feeding routine.

PTSD is a very real thing and it takes patience and committment to work through the many layers and release all the emotions we attached to the things that trigger the anxiety or fear. My counselor used Emotional Freedom Technique (<a target=_blank class=ftalternatingbarlinklarge href="http://www.emofree.com/newcomer.htm),">http://www.emofree.com/newcomer.htm),</a> a tapping technique used to help break the cycle of thoughts which were the source of much of my anxiety. Combined with talking, it helped me move past it and replace thoughts with new ones. It worked and thankfully I was able to avoid drugs. I only go now if I have something I feel is really challenging me and I just need to talk it out.

Just know you are not alone in all this and many moms feel similar to you. It is okay. Our brains are always doing their best to help us...sometimes, as in the case of PTSD, it just helps a little too much ;-0

I think your concern about cross-contam is totally legitimate. Our clinic has non-Pa and PA days for appointments and no toys are in the waiting room. I only come right on time and must Purelle him a thousand times while we are there (poor thing)! I don't bring my other child because it is so stressful to me. But the biggest change since therapy is that I don't feel totally overwhelmed anymore, which is good. You can and will get there!!

You're in my thoughts,
 

JRPandTJP

New member
Last Spring after we stopped breastfeeding I had a major emotional let down. I began having nightmares and even some waking nightmares. I suddenly couldn't keep things together and began having flashbacks to hospital events. I sought out help to work through the intense guilt and grief I had been feeling but never allowed myself to fully recognize because I was caring for everyone else and denying myself time to incorporate all we had endured. For me nursing him helped me through a very difficult year...once it was gone I felt very vulnerable.

Our clinic is actually where he was hospitalized while he lingered undiagnosed. I had to pass the same art pieces, cafeteria, and even take the same elevator as we did when he was in hospital for 2 weeks! It was torturous for a while. I always went alone and the first appointments were even worse because of the lack of support I received with regard to his feeding routine.

PTSD is a very real thing and it takes patience and committment to work through the many layers and release all the emotions we attached to the things that trigger the anxiety or fear. My counselor used Emotional Freedom Technique (<a target=_blank class=ftalternatingbarlinklarge href="http://www.emofree.com/newcomer.htm),">http://www.emofree.com/newcomer.htm),</a> a tapping technique used to help break the cycle of thoughts which were the source of much of my anxiety. Combined with talking, it helped me move past it and replace thoughts with new ones. It worked and thankfully I was able to avoid drugs. I only go now if I have something I feel is really challenging me and I just need to talk it out.

Just know you are not alone in all this and many moms feel similar to you. It is okay. Our brains are always doing their best to help us...sometimes, as in the case of PTSD, it just helps a little too much ;-0

I think your concern about cross-contam is totally legitimate. Our clinic has non-Pa and PA days for appointments and no toys are in the waiting room. I only come right on time and must Purelle him a thousand times while we are there (poor thing)! I don't bring my other child because it is so stressful to me. But the biggest change since therapy is that I don't feel totally overwhelmed anymore, which is good. You can and will get there!!

You're in my thoughts,
 

JRPandTJP

New member
Last Spring after we stopped breastfeeding I had a major emotional let down. I began having nightmares and even some waking nightmares. I suddenly couldn't keep things together and began having flashbacks to hospital events. I sought out help to work through the intense guilt and grief I had been feeling but never allowed myself to fully recognize because I was caring for everyone else and denying myself time to incorporate all we had endured. For me nursing him helped me through a very difficult year...once it was gone I felt very vulnerable.

Our clinic is actually where he was hospitalized while he lingered undiagnosed. I had to pass the same art pieces, cafeteria, and even take the same elevator as we did when he was in hospital for 2 weeks! It was torturous for a while. I always went alone and the first appointments were even worse because of the lack of support I received with regard to his feeding routine.

PTSD is a very real thing and it takes patience and committment to work through the many layers and release all the emotions we attached to the things that trigger the anxiety or fear. My counselor used Emotional Freedom Technique (<a target=_blank class=ftalternatingbarlinklarge href="http://www.emofree.com/newcomer.htm),">http://www.emofree.com/newcomer.htm),</a> a tapping technique used to help break the cycle of thoughts which were the source of much of my anxiety. Combined with talking, it helped me move past it and replace thoughts with new ones. It worked and thankfully I was able to avoid drugs. I only go now if I have something I feel is really challenging me and I just need to talk it out.

Just know you are not alone in all this and many moms feel similar to you. It is okay. Our brains are always doing their best to help us...sometimes, as in the case of PTSD, it just helps a little too much ;-0

I think your concern about cross-contam is totally legitimate. Our clinic has non-Pa and PA days for appointments and no toys are in the waiting room. I only come right on time and must Purelle him a thousand times while we are there (poor thing)! I don't bring my other child because it is so stressful to me. But the biggest change since therapy is that I don't feel totally overwhelmed anymore, which is good. You can and will get there!!

You're in my thoughts,
 

welshgirl

New member
i too worry about cross infection at hosp. visits . the staff have picked up on it and told me everything is disinfected carefully. i got my germ spreading ideas from this site but to be honest it didn't take much to push me over the edge!!!!!

i am like adrian monk and my kids call me monk<img src="i/expressions/face-icon-small-blush.gif" border="0"> my house is spotless but its not a new thing iv'e always been this way .

i too am anxious but in my case it's manifested itself as irritable bowel syndrome. until recently i was very nearly housebound ( always needing to rush to the loo!!!!)

my dr. wants me to try cognitive therapy to find the root cause of my anxiety. i know it's not all to do with cf . iv'e always lived on my nerves. good luck charlotte,whatever happens.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 

welshgirl

New member
i too worry about cross infection at hosp. visits . the staff have picked up on it and told me everything is disinfected carefully. i got my germ spreading ideas from this site but to be honest it didn't take much to push me over the edge!!!!!

i am like adrian monk and my kids call me monk<img src="i/expressions/face-icon-small-blush.gif" border="0"> my house is spotless but its not a new thing iv'e always been this way .

i too am anxious but in my case it's manifested itself as irritable bowel syndrome. until recently i was very nearly housebound ( always needing to rush to the loo!!!!)

my dr. wants me to try cognitive therapy to find the root cause of my anxiety. i know it's not all to do with cf . iv'e always lived on my nerves. good luck charlotte,whatever happens.<img src="i/expressions/face-icon-small-happy.gif" border="0">
 
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