Post TX Q

[anonymous]

Any post txer have obstruction problems? If so, did you have them pre tx? Any particular thing help post tx? Between Greg's massive adhesions (has history of bowel obstructions), cf issues, -and I'm guessing- tx meds, we have spent two one-week trips in the hospital the last three weeks fighting obstructions. Our tx team is fantastic - just checking it out with you guys ourselves to see what you know.

Thanks! Jan
wife of Greg 46 cf'er w/cepacia
tx'd 10-31-05
www.standinginthegap4greg.org

 

[anonymous]

Jan never prior to the TX yet post TX with any dehydration it can happen quickly (for my case). Twice in the hospital. Prior to the TX some partials with pain, post TX total blockage. Hope you two are still doing well and recovering.

CF 55 TX cepacia.

 

[anonymous]

Would it be beneficial to cut down on the number of enzymes taken? Just a thought.

 

[anonymous]

When I cut down on enzymes, I found my blood levels of prograf varied.

CF 55 TX cepacia