pregnant with 2nd child about testing during pregnancy

J

joanne1983

Guest
hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf

from devon in uk
 
J

joanne1983

Guest
hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf

from devon in uk
 
J

joanne1983

Guest
hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf

from devon in uk
 
J

joanne1983

Guest
hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf

from devon in uk
 
J

joanne1983

Guest
hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf

from devon in uk
 
J

joanne1983

Guest
hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf

from devon in uk
 

Mommy2Alysa

New member
I just went through this 4 months ago with my 2nd pregnancy. My daughter, Alysa, is 25 months (diagnosed at 18months).

The test they did for me, and I believe its pretty standard, is through amnio. I was scared at first of the thought of them putting a needle in my belly. I heard horror stories about them being huge but honestly it wasnt bad.

For me they hooked me up the ultrasound machine so they could see where baby was and then the doctor came in and put the needle in my belly (it felt like it was going through my belly button but it was about where your elastic to your underwear would sit). They took a few viles of amniotic fluid and then I was done. They then test the amnio fluid against the same mutated genes that your first child would have.

They told me there is a slight risk of miscarriage (about 1 in 200) but you could have that risk walking down the stairs. We decided to go through with the amnio because we wanted to prepare for the baby and also to find out from a 100% accurate source what we were having (another girl).

I should warn you though that it could come back negative and your baby actually be CF if, and only if, it has different mutated genes then your first child. This would ONLY happen if you, or your husband, actually had CF and didnt know it. The doctor gave us a 95% accuracy rate and we thought that was pretty good in our books.

Turns out the one we are expecting DOES have CF so we are going to have two now. At first, I will be honest, my heart broke but then I looked at with a silver lining in the fact that now my girls can support each other in a way that my husband and I cant. They can do their treatments together and actually have someone to talk to who knows what they are going through.

Best of luck to you and please let us know what you decide to do.
 

Mommy2Alysa

New member
I just went through this 4 months ago with my 2nd pregnancy. My daughter, Alysa, is 25 months (diagnosed at 18months).

The test they did for me, and I believe its pretty standard, is through amnio. I was scared at first of the thought of them putting a needle in my belly. I heard horror stories about them being huge but honestly it wasnt bad.

For me they hooked me up the ultrasound machine so they could see where baby was and then the doctor came in and put the needle in my belly (it felt like it was going through my belly button but it was about where your elastic to your underwear would sit). They took a few viles of amniotic fluid and then I was done. They then test the amnio fluid against the same mutated genes that your first child would have.

They told me there is a slight risk of miscarriage (about 1 in 200) but you could have that risk walking down the stairs. We decided to go through with the amnio because we wanted to prepare for the baby and also to find out from a 100% accurate source what we were having (another girl).

I should warn you though that it could come back negative and your baby actually be CF if, and only if, it has different mutated genes then your first child. This would ONLY happen if you, or your husband, actually had CF and didnt know it. The doctor gave us a 95% accuracy rate and we thought that was pretty good in our books.

Turns out the one we are expecting DOES have CF so we are going to have two now. At first, I will be honest, my heart broke but then I looked at with a silver lining in the fact that now my girls can support each other in a way that my husband and I cant. They can do their treatments together and actually have someone to talk to who knows what they are going through.

Best of luck to you and please let us know what you decide to do.
 

Mommy2Alysa

New member
I just went through this 4 months ago with my 2nd pregnancy. My daughter, Alysa, is 25 months (diagnosed at 18months).

The test they did for me, and I believe its pretty standard, is through amnio. I was scared at first of the thought of them putting a needle in my belly. I heard horror stories about them being huge but honestly it wasnt bad.

For me they hooked me up the ultrasound machine so they could see where baby was and then the doctor came in and put the needle in my belly (it felt like it was going through my belly button but it was about where your elastic to your underwear would sit). They took a few viles of amniotic fluid and then I was done. They then test the amnio fluid against the same mutated genes that your first child would have.

They told me there is a slight risk of miscarriage (about 1 in 200) but you could have that risk walking down the stairs. We decided to go through with the amnio because we wanted to prepare for the baby and also to find out from a 100% accurate source what we were having (another girl).

I should warn you though that it could come back negative and your baby actually be CF if, and only if, it has different mutated genes then your first child. This would ONLY happen if you, or your husband, actually had CF and didnt know it. The doctor gave us a 95% accuracy rate and we thought that was pretty good in our books.

Turns out the one we are expecting DOES have CF so we are going to have two now. At first, I will be honest, my heart broke but then I looked at with a silver lining in the fact that now my girls can support each other in a way that my husband and I cant. They can do their treatments together and actually have someone to talk to who knows what they are going through.

Best of luck to you and please let us know what you decide to do.
 

Mommy2Alysa

New member
I just went through this 4 months ago with my 2nd pregnancy. My daughter, Alysa, is 25 months (diagnosed at 18months).

The test they did for me, and I believe its pretty standard, is through amnio. I was scared at first of the thought of them putting a needle in my belly. I heard horror stories about them being huge but honestly it wasnt bad.

For me they hooked me up the ultrasound machine so they could see where baby was and then the doctor came in and put the needle in my belly (it felt like it was going through my belly button but it was about where your elastic to your underwear would sit). They took a few viles of amniotic fluid and then I was done. They then test the amnio fluid against the same mutated genes that your first child would have.

They told me there is a slight risk of miscarriage (about 1 in 200) but you could have that risk walking down the stairs. We decided to go through with the amnio because we wanted to prepare for the baby and also to find out from a 100% accurate source what we were having (another girl).

I should warn you though that it could come back negative and your baby actually be CF if, and only if, it has different mutated genes then your first child. This would ONLY happen if you, or your husband, actually had CF and didnt know it. The doctor gave us a 95% accuracy rate and we thought that was pretty good in our books.

Turns out the one we are expecting DOES have CF so we are going to have two now. At first, I will be honest, my heart broke but then I looked at with a silver lining in the fact that now my girls can support each other in a way that my husband and I cant. They can do their treatments together and actually have someone to talk to who knows what they are going through.

Best of luck to you and please let us know what you decide to do.
 

Mommy2Alysa

New member
I just went through this 4 months ago with my 2nd pregnancy. My daughter, Alysa, is 25 months (diagnosed at 18months).

The test they did for me, and I believe its pretty standard, is through amnio. I was scared at first of the thought of them putting a needle in my belly. I heard horror stories about them being huge but honestly it wasnt bad.

For me they hooked me up the ultrasound machine so they could see where baby was and then the doctor came in and put the needle in my belly (it felt like it was going through my belly button but it was about where your elastic to your underwear would sit). They took a few viles of amniotic fluid and then I was done. They then test the amnio fluid against the same mutated genes that your first child would have.

They told me there is a slight risk of miscarriage (about 1 in 200) but you could have that risk walking down the stairs. We decided to go through with the amnio because we wanted to prepare for the baby and also to find out from a 100% accurate source what we were having (another girl).

I should warn you though that it could come back negative and your baby actually be CF if, and only if, it has different mutated genes then your first child. This would ONLY happen if you, or your husband, actually had CF and didnt know it. The doctor gave us a 95% accuracy rate and we thought that was pretty good in our books.

Turns out the one we are expecting DOES have CF so we are going to have two now. At first, I will be honest, my heart broke but then I looked at with a silver lining in the fact that now my girls can support each other in a way that my husband and I cant. They can do their treatments together and actually have someone to talk to who knows what they are going through.

Best of luck to you and please let us know what you decide to do.
 

Mommy2Alysa

New member
I just went through this 4 months ago with my 2nd pregnancy. My daughter, Alysa, is 25 months (diagnosed at 18months).

The test they did for me, and I believe its pretty standard, is through amnio. I was scared at first of the thought of them putting a needle in my belly. I heard horror stories about them being huge but honestly it wasnt bad.

For me they hooked me up the ultrasound machine so they could see where baby was and then the doctor came in and put the needle in my belly (it felt like it was going through my belly button but it was about where your elastic to your underwear would sit). They took a few viles of amniotic fluid and then I was done. They then test the amnio fluid against the same mutated genes that your first child would have.

They told me there is a slight risk of miscarriage (about 1 in 200) but you could have that risk walking down the stairs. We decided to go through with the amnio because we wanted to prepare for the baby and also to find out from a 100% accurate source what we were having (another girl).

I should warn you though that it could come back negative and your baby actually be CF if, and only if, it has different mutated genes then your first child. This would ONLY happen if you, or your husband, actually had CF and didnt know it. The doctor gave us a 95% accuracy rate and we thought that was pretty good in our books.

Turns out the one we are expecting DOES have CF so we are going to have two now. At first, I will be honest, my heart broke but then I looked at with a silver lining in the fact that now my girls can support each other in a way that my husband and I cant. They can do their treatments together and actually have someone to talk to who knows what they are going through.

Best of luck to you and please let us know what you decide to do.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>joanne1983</b></i>

hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf</end quote></div>

If you are worried about the risk of miscarriage, maybe you need to ask what difference it would make to you if you had results from this test! Would you terminate, would you keep the baby, do you want to prepared financially, emotionally? IF your decisions wont change according to the results then maybe you might not want to chance it. IF you want to find out about the baby you can have testing done after birth. Just something to think about.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>joanne1983</b></i>

hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf</end quote></div>

If you are worried about the risk of miscarriage, maybe you need to ask what difference it would make to you if you had results from this test! Would you terminate, would you keep the baby, do you want to prepared financially, emotionally? IF your decisions wont change according to the results then maybe you might not want to chance it. IF you want to find out about the baby you can have testing done after birth. Just something to think about.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>joanne1983</b></i>

hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf</end quote></div>

If you are worried about the risk of miscarriage, maybe you need to ask what difference it would make to you if you had results from this test! Would you terminate, would you keep the baby, do you want to prepared financially, emotionally? IF your decisions wont change according to the results then maybe you might not want to chance it. IF you want to find out about the baby you can have testing done after birth. Just something to think about.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>joanne1983</b></i>

hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf</end quote></div>

If you are worried about the risk of miscarriage, maybe you need to ask what difference it would make to you if you had results from this test! Would you terminate, would you keep the baby, do you want to prepared financially, emotionally? IF your decisions wont change according to the results then maybe you might not want to chance it. IF you want to find out about the baby you can have testing done after birth. Just something to think about.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>joanne1983</b></i>

hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf</end quote>

If you are worried about the risk of miscarriage, maybe you need to ask what difference it would make to you if you had results from this test! Would you terminate, would you keep the baby, do you want to prepared financially, emotionally? IF your decisions wont change according to the results then maybe you might not want to chance it. IF you want to find out about the baby you can have testing done after birth. Just something to think about.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>joanne1983</b></i>

hello im 23 f wo/cf i have a daughter of 17months with cf and i am now pregnant with 2nd child i was jusst wondering about the cf test they can do when u are pregnant. Please can someone tell me what do they do? what is it like and i have heard there is an increase of miscarrage i dont know whether to have the test done or no please help me i am confused.


mum to nicole 17months w/cf</end quote>

If you are worried about the risk of miscarriage, maybe you need to ask what difference it would make to you if you had results from this test! Would you terminate, would you keep the baby, do you want to prepared financially, emotionally? IF your decisions wont change according to the results then maybe you might not want to chance it. IF you want to find out about the baby you can have testing done after birth. Just something to think about.
 

Mommy2Alysa

New member
Very good point also.

If you the outcome of test result isnt going to factor on if you carry on with this pregnancy then maybe holding off IS a good idea.

For my situation, personally, we did so I didnt have to go 9 months wondering if my baby was "sick" like my daugther. We wanted to prepare emotionally, mentally, and financially as best we could. Also, I wanted to have time to let it sink in if it was a positive result befor the baby was born. A newborn will pick up on the fact that you are upset and an emotional wreck and that can affect him/her and I didnt want that.

Hopefully you decide what is best for you but honestly, I am glad I found out when we did.
 

Mommy2Alysa

New member
Very good point also.

If you the outcome of test result isnt going to factor on if you carry on with this pregnancy then maybe holding off IS a good idea.

For my situation, personally, we did so I didnt have to go 9 months wondering if my baby was "sick" like my daugther. We wanted to prepare emotionally, mentally, and financially as best we could. Also, I wanted to have time to let it sink in if it was a positive result befor the baby was born. A newborn will pick up on the fact that you are upset and an emotional wreck and that can affect him/her and I didnt want that.

Hopefully you decide what is best for you but honestly, I am glad I found out when we did.
 
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