Is it possible to have been tested positive for the presense of the pseudomonas bug also (serratia? ) and not have CF? My granddaughter has tested positive twice for it, once four years ago when she was hospitalized with pneumonia and again this past November when she was hospitalized for 8 days, with respiratory problems. In between these two hospitalzations she has been healthy except for a very bad sinius infection last year. Probably should add she is 20, is serverly developmently delayed, is much like a 3 month old, having been born with an undiagnoised metalbolic disorder with seizures. Has as long as I can remember had a strong cough producing at times tons of secections. And as of right now from time to time coughing up secrections with yellow in it, although seems to be feeling okay as far as we can tell. Any help in this matter would be greatly appreciated.
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Pseudomonas and Not CF?
- Thread starter CHAMELE0N
- Start date
Is it possible to have been tested positive for the presense of the pseudomonas bug also (serratia? ) and not have CF? My granddaughter has tested positive twice for it, once four years ago when she was hospitalized with pneumonia and again this past November when she was hospitalized for 8 days, with respiratory problems. In between these two hospitalzations she has been healthy except for a very bad sinius infection last year. Probably should add she is 20, is serverly developmently delayed, is much like a 3 month old, having been born with an undiagnoised metalbolic disorder with seizures. Has as long as I can remember had a strong cough producing at times tons of secections. And as of right now from time to time coughing up secrections with yellow in it, although seems to be feeling okay as far as we can tell. Any help in this matter would be greatly appreciated.
Is it possible to have been tested positive for the presense of the pseudomonas bug also (serratia? ) and not have CF? My granddaughter has tested positive twice for it, once four years ago when she was hospitalized with pneumonia and again this past November when she was hospitalized for 8 days, with respiratory problems. In between these two hospitalzations she has been healthy except for a very bad sinius infection last year. Probably should add she is 20, is serverly developmently delayed, is much like a 3 month old, having been born with an undiagnoised metalbolic disorder with seizures. Has as long as I can remember had a strong cough producing at times tons of secections. And as of right now from time to time coughing up secrections with yellow in it, although seems to be feeling okay as far as we can tell. Any help in this matter would be greatly appreciated.
Is it possible to have been tested positive for the presense of the pseudomonas bug also (serratia? ) and not have CF? My granddaughter has tested positive twice for it, once four years ago when she was hospitalized with pneumonia and again this past November when she was hospitalized for 8 days, with respiratory problems. In between these two hospitalzations she has been healthy except for a very bad sinius infection last year. Probably should add she is 20, is serverly developmently delayed, is much like a 3 month old, having been born with an undiagnoised metalbolic disorder with seizures. Has as long as I can remember had a strong cough producing at times tons of secections. And as of right now from time to time coughing up secrections with yellow in it, although seems to be feeling okay as far as we can tell. Any help in this matter would be greatly appreciated.
Is it possible to have been tested positive for the presense of the pseudomonas bug also (serratia? ) and not have CF? My granddaughter has tested positive twice for it, once four years ago when she was hospitalized with pneumonia and again this past November when she was hospitalized for 8 days, with respiratory problems. In between these two hospitalzations she has been healthy except for a very bad sinius infection last year. Probably should add she is 20, is serverly developmently delayed, is much like a 3 month old, having been born with an undiagnoised metalbolic disorder with seizures. Has as long as I can remember had a strong cough producing at times tons of secections. And as of right now from time to time coughing up secrections with yellow in it, although seems to be feeling okay as far as we can tell. Any help in this matter would be greatly appreciated.
95% chance she has CF. Occasionally immuno-suppressed get PA in their lungs, but it's pretty darn rare.
I would suggest getting an Ambry Amplified genetic test to see if she has CF. This test covers all known CF mutations (whereas other tests only cover some mutations which can lead to inaccurate results) which will give you as close to an accurate answer as science can offer.
Sweat tests, which I bet your doctor will be inclined to do, will be a waste of time. They give false negatives all the time and the test was only really useful when the genetic test didn't exist.
Best of luck!
I would suggest getting an Ambry Amplified genetic test to see if she has CF. This test covers all known CF mutations (whereas other tests only cover some mutations which can lead to inaccurate results) which will give you as close to an accurate answer as science can offer.
Sweat tests, which I bet your doctor will be inclined to do, will be a waste of time. They give false negatives all the time and the test was only really useful when the genetic test didn't exist.
Best of luck!
95% chance she has CF. Occasionally immuno-suppressed get PA in their lungs, but it's pretty darn rare.
I would suggest getting an Ambry Amplified genetic test to see if she has CF. This test covers all known CF mutations (whereas other tests only cover some mutations which can lead to inaccurate results) which will give you as close to an accurate answer as science can offer.
Sweat tests, which I bet your doctor will be inclined to do, will be a waste of time. They give false negatives all the time and the test was only really useful when the genetic test didn't exist.
Best of luck!
I would suggest getting an Ambry Amplified genetic test to see if she has CF. This test covers all known CF mutations (whereas other tests only cover some mutations which can lead to inaccurate results) which will give you as close to an accurate answer as science can offer.
Sweat tests, which I bet your doctor will be inclined to do, will be a waste of time. They give false negatives all the time and the test was only really useful when the genetic test didn't exist.
Best of luck!
95% chance she has CF. Occasionally immuno-suppressed get PA in their lungs, but it's pretty darn rare.
I would suggest getting an Ambry Amplified genetic test to see if she has CF. This test covers all known CF mutations (whereas other tests only cover some mutations which can lead to inaccurate results) which will give you as close to an accurate answer as science can offer.
Sweat tests, which I bet your doctor will be inclined to do, will be a waste of time. They give false negatives all the time and the test was only really useful when the genetic test didn't exist.
Best of luck!
I would suggest getting an Ambry Amplified genetic test to see if she has CF. This test covers all known CF mutations (whereas other tests only cover some mutations which can lead to inaccurate results) which will give you as close to an accurate answer as science can offer.
Sweat tests, which I bet your doctor will be inclined to do, will be a waste of time. They give false negatives all the time and the test was only really useful when the genetic test didn't exist.
Best of luck!
95% chance she has CF. Occasionally immuno-suppressed get PA in their lungs, but it's pretty darn rare.
I would suggest getting an Ambry Amplified genetic test to see if she has CF. This test covers all known CF mutations (whereas other tests only cover some mutations which can lead to inaccurate results) which will give you as close to an accurate answer as science can offer.
Sweat tests, which I bet your doctor will be inclined to do, will be a waste of time. They give false negatives all the time and the test was only really useful when the genetic test didn't exist.
Best of luck!
I would suggest getting an Ambry Amplified genetic test to see if she has CF. This test covers all known CF mutations (whereas other tests only cover some mutations which can lead to inaccurate results) which will give you as close to an accurate answer as science can offer.
Sweat tests, which I bet your doctor will be inclined to do, will be a waste of time. They give false negatives all the time and the test was only really useful when the genetic test didn't exist.
Best of luck!
95% chance she has CF. Occasionally immuno-suppressed get PA in their lungs, but it's pretty darn rare.
I would suggest getting an Ambry Amplified genetic test to see if she has CF. This test covers all known CF mutations (whereas other tests only cover some mutations which can lead to inaccurate results) which will give you as close to an accurate answer as science can offer.
Sweat tests, which I bet your doctor will be inclined to do, will be a waste of time. They give false negatives all the time and the test was only really useful when the genetic test didn't exist.
Best of luck!
I would suggest getting an Ambry Amplified genetic test to see if she has CF. This test covers all known CF mutations (whereas other tests only cover some mutations which can lead to inaccurate results) which will give you as close to an accurate answer as science can offer.
Sweat tests, which I bet your doctor will be inclined to do, will be a waste of time. They give false negatives all the time and the test was only really useful when the genetic test didn't exist.
Best of luck!
It really depends on which strain of pseudomonas she grew and if it was really serratia or not. Serratia is considered a normal flora as it is found just about everywhere, including on skin, but rarely shows up in ones lungs unless they do have CF or another immonosuppression of some sort.
I think that I would disagree with NoExcuses with this one, in that it is possible she does not have CF and that it could be the set of circumstances that are unusual. However, I do agree that there is only one way to be absolutely positive about it and that is the genetic test.
I am also curious about her age, do you mean she is 20 years old? That too could maybe change my opinion about whether or not it would be worth pursuing a genetic test or not. If she is 20 years old and given her problems with severe developmental delays, I'm not so sure I would jump right to CF unless there is a history of CF in the family.
With the little information provided, it is possible that she would have serratia but not CF.
I think that I would disagree with NoExcuses with this one, in that it is possible she does not have CF and that it could be the set of circumstances that are unusual. However, I do agree that there is only one way to be absolutely positive about it and that is the genetic test.
I am also curious about her age, do you mean she is 20 years old? That too could maybe change my opinion about whether or not it would be worth pursuing a genetic test or not. If she is 20 years old and given her problems with severe developmental delays, I'm not so sure I would jump right to CF unless there is a history of CF in the family.
With the little information provided, it is possible that she would have serratia but not CF.
It really depends on which strain of pseudomonas she grew and if it was really serratia or not. Serratia is considered a normal flora as it is found just about everywhere, including on skin, but rarely shows up in ones lungs unless they do have CF or another immonosuppression of some sort.
I think that I would disagree with NoExcuses with this one, in that it is possible she does not have CF and that it could be the set of circumstances that are unusual. However, I do agree that there is only one way to be absolutely positive about it and that is the genetic test.
I am also curious about her age, do you mean she is 20 years old? That too could maybe change my opinion about whether or not it would be worth pursuing a genetic test or not. If she is 20 years old and given her problems with severe developmental delays, I'm not so sure I would jump right to CF unless there is a history of CF in the family.
With the little information provided, it is possible that she would have serratia but not CF.
I think that I would disagree with NoExcuses with this one, in that it is possible she does not have CF and that it could be the set of circumstances that are unusual. However, I do agree that there is only one way to be absolutely positive about it and that is the genetic test.
I am also curious about her age, do you mean she is 20 years old? That too could maybe change my opinion about whether or not it would be worth pursuing a genetic test or not. If she is 20 years old and given her problems with severe developmental delays, I'm not so sure I would jump right to CF unless there is a history of CF in the family.
With the little information provided, it is possible that she would have serratia but not CF.
It really depends on which strain of pseudomonas she grew and if it was really serratia or not. Serratia is considered a normal flora as it is found just about everywhere, including on skin, but rarely shows up in ones lungs unless they do have CF or another immonosuppression of some sort.
I think that I would disagree with NoExcuses with this one, in that it is possible she does not have CF and that it could be the set of circumstances that are unusual. However, I do agree that there is only one way to be absolutely positive about it and that is the genetic test.
I am also curious about her age, do you mean she is 20 years old? That too could maybe change my opinion about whether or not it would be worth pursuing a genetic test or not. If she is 20 years old and given her problems with severe developmental delays, I'm not so sure I would jump right to CF unless there is a history of CF in the family.
With the little information provided, it is possible that she would have serratia but not CF.
I think that I would disagree with NoExcuses with this one, in that it is possible she does not have CF and that it could be the set of circumstances that are unusual. However, I do agree that there is only one way to be absolutely positive about it and that is the genetic test.
I am also curious about her age, do you mean she is 20 years old? That too could maybe change my opinion about whether or not it would be worth pursuing a genetic test or not. If she is 20 years old and given her problems with severe developmental delays, I'm not so sure I would jump right to CF unless there is a history of CF in the family.
With the little information provided, it is possible that she would have serratia but not CF.
It really depends on which strain of pseudomonas she grew and if it was really serratia or not. Serratia is considered a normal flora as it is found just about everywhere, including on skin, but rarely shows up in ones lungs unless they do have CF or another immonosuppression of some sort.
I think that I would disagree with NoExcuses with this one, in that it is possible she does not have CF and that it could be the set of circumstances that are unusual. However, I do agree that there is only one way to be absolutely positive about it and that is the genetic test.
I am also curious about her age, do you mean she is 20 years old? That too could maybe change my opinion about whether or not it would be worth pursuing a genetic test or not. If she is 20 years old and given her problems with severe developmental delays, I'm not so sure I would jump right to CF unless there is a history of CF in the family.
With the little information provided, it is possible that she would have serratia but not CF.
I think that I would disagree with NoExcuses with this one, in that it is possible she does not have CF and that it could be the set of circumstances that are unusual. However, I do agree that there is only one way to be absolutely positive about it and that is the genetic test.
I am also curious about her age, do you mean she is 20 years old? That too could maybe change my opinion about whether or not it would be worth pursuing a genetic test or not. If she is 20 years old and given her problems with severe developmental delays, I'm not so sure I would jump right to CF unless there is a history of CF in the family.
With the little information provided, it is possible that she would have serratia but not CF.
It really depends on which strain of pseudomonas she grew and if it was really serratia or not. Serratia is considered a normal flora as it is found just about everywhere, including on skin, but rarely shows up in ones lungs unless they do have CF or another immonosuppression of some sort.
I think that I would disagree with NoExcuses with this one, in that it is possible she does not have CF and that it could be the set of circumstances that are unusual. However, I do agree that there is only one way to be absolutely positive about it and that is the genetic test.
I am also curious about her age, do you mean she is 20 years old? That too could maybe change my opinion about whether or not it would be worth pursuing a genetic test or not. If she is 20 years old and given her problems with severe developmental delays, I'm not so sure I would jump right to CF unless there is a history of CF in the family.
With the little information provided, it is possible that she would have serratia but not CF.
I think that I would disagree with NoExcuses with this one, in that it is possible she does not have CF and that it could be the set of circumstances that are unusual. However, I do agree that there is only one way to be absolutely positive about it and that is the genetic test.
I am also curious about her age, do you mean she is 20 years old? That too could maybe change my opinion about whether or not it would be worth pursuing a genetic test or not. If she is 20 years old and given her problems with severe developmental delays, I'm not so sure I would jump right to CF unless there is a history of CF in the family.
With the little information provided, it is possible that she would have serratia but not CF.
It is possible to have tested positive for pseudomonas (PA) and not have CF. In a normally healthy person it does not affect their lungs but in people who are not normally healthy - ie your granddaughter with developmental delays, metabolic disorders, etc it is possible to have PA and not have CF.That being said I would push the doctors to test her for CF just to ease your mind. CF does cause sinus problems and increased mucus, so you do have a valid reason for wanting her tested.My son went undiagnosed for many years because the doctors attributed all his problems to his having Cerebral Palsy and to some lung damage caused from being a preemie. It wasn't until we saw an innovative GI doctor that could look past my son's obvious physical problems and see him as a person that he got tested for CF.They will probably start your granddaughter off with a sweat test. It is the first screening test for CF and you are not likely to get a genetic test ordered without having had the sweat test first. After the sweat test you can move on to the genetic testing.PM me if you need to talk more about children with disabilities with CF.
It is possible to have tested positive for pseudomonas (PA) and not have CF. In a normally healthy person it does not affect their lungs but in people who are not normally healthy - ie your granddaughter with developmental delays, metabolic disorders, etc it is possible to have PA and not have CF.That being said I would push the doctors to test her for CF just to ease your mind. CF does cause sinus problems and increased mucus, so you do have a valid reason for wanting her tested.My son went undiagnosed for many years because the doctors attributed all his problems to his having Cerebral Palsy and to some lung damage caused from being a preemie. It wasn't until we saw an innovative GI doctor that could look past my son's obvious physical problems and see him as a person that he got tested for CF.They will probably start your granddaughter off with a sweat test. It is the first screening test for CF and you are not likely to get a genetic test ordered without having had the sweat test first. After the sweat test you can move on to the genetic testing.PM me if you need to talk more about children with disabilities with CF.
It is possible to have tested positive for pseudomonas (PA) and not have CF. In a normally healthy person it does not affect their lungs but in people who are not normally healthy - ie your granddaughter with developmental delays, metabolic disorders, etc it is possible to have PA and not have CF.That being said I would push the doctors to test her for CF just to ease your mind. CF does cause sinus problems and increased mucus, so you do have a valid reason for wanting her tested.My son went undiagnosed for many years because the doctors attributed all his problems to his having Cerebral Palsy and to some lung damage caused from being a preemie. It wasn't until we saw an innovative GI doctor that could look past my son's obvious physical problems and see him as a person that he got tested for CF.They will probably start your granddaughter off with a sweat test. It is the first screening test for CF and you are not likely to get a genetic test ordered without having had the sweat test first. After the sweat test you can move on to the genetic testing.PM me if you need to talk more about children with disabilities with CF.
It is possible to have tested positive for pseudomonas (PA) and not have CF. In a normally healthy person it does not affect their lungs but in people who are not normally healthy - ie your granddaughter with developmental delays, metabolic disorders, etc it is possible to have PA and not have CF.That being said I would push the doctors to test her for CF just to ease your mind. CF does cause sinus problems and increased mucus, so you do have a valid reason for wanting her tested.My son went undiagnosed for many years because the doctors attributed all his problems to his having Cerebral Palsy and to some lung damage caused from being a preemie. It wasn't until we saw an innovative GI doctor that could look past my son's obvious physical problems and see him as a person that he got tested for CF.They will probably start your granddaughter off with a sweat test. It is the first screening test for CF and you are not likely to get a genetic test ordered without having had the sweat test first. After the sweat test you can move on to the genetic testing.PM me if you need to talk more about children with disabilities with CF.
It is possible to have tested positive for pseudomonas (PA) and not have CF. In a normally healthy person it does not affect their lungs but in people who are not normally healthy - ie your granddaughter with developmental delays, metabolic disorders, etc it is possible to have PA and not have CF.That being said I would push the doctors to test her for CF just to ease your mind. CF does cause sinus problems and increased mucus, so you do have a valid reason for wanting her tested.My son went undiagnosed for many years because the doctors attributed all his problems to his having Cerebral Palsy and to some lung damage caused from being a preemie. It wasn't until we saw an innovative GI doctor that could look past my son's obvious physical problems and see him as a person that he got tested for CF.They will probably start your granddaughter off with a sweat test. It is the first screening test for CF and you are not likely to get a genetic test ordered without having had the sweat test first. After the sweat test you can move on to the genetic testing.PM me if you need to talk more about children with disabilities with CF.