Pseudomonas Culture Questions

J

JennyCoulon

New member
My 5 year old cultured for Pseudo on a random culture even though he had no symptoms. He was on oral Cipro for 14 days and Tobi for 28 days. We just heard today that he still cultured it on the follow up last week. We are now being admitted on Thursday for 3-5 days to get him on IV antibotics. Once his level is where it should be he will be able to come home and return to school with his PICC line.

What comes next if he cultures it again after the 14 days of IV antibotics? We have a 11 year old also that has never cultured it, knock on wood. This is the first time either one of our kids will be admitted and we are a little nervous. Any advise would be greatly appreciated.
 
J

JennyCoulon

New member
My 5 year old cultured for Pseudo on a random culture even though he had no symptoms. He was on oral Cipro for 14 days and Tobi for 28 days. We just heard today that he still cultured it on the follow up last week. We are now being admitted on Thursday for 3-5 days to get him on IV antibotics. Once his level is where it should be he will be able to come home and return to school with his PICC line.

What comes next if he cultures it again after the 14 days of IV antibotics? We have a 11 year old also that has never cultured it, knock on wood. This is the first time either one of our kids will be admitted and we are a little nervous. Any advise would be greatly appreciated.
 
J

JennyCoulon

New member
My 5 year old cultured for Pseudo on a random culture even though he had no symptoms. He was on oral Cipro for 14 days and Tobi for 28 days. We just heard today that he still cultured it on the follow up last week. We are now being admitted on Thursday for 3-5 days to get him on IV antibotics. Once his level is where it should be he will be able to come home and return to school with his PICC line.
<br />
<br />What comes next if he cultures it again after the 14 days of IV antibotics? We have a 11 year old also that has never cultured it, knock on wood. This is the first time either one of our kids will be admitted and we are a little nervous. Any advise would be greatly appreciated.
 
M

Mommafirst

Guest
I'm so sorry to hear that you are bracing for you first admit. Alyssa has never cultured pseudo, but has done IVs three times already. I don't really know what they'll do if he continues to culture it after IVs, but do know that eventually most CF patients become chronically cultured with it and it becomes more of a question of controlling the numbers than getting rid of it. I hope, for you and Tucker, that you can erradicate it and not see it again for a very long long time.

As for going in for IVs, I can give you some advice on that front. It is really emotional and scary the first time. Unlike non-Cf families, a hospital stay is a weird anomaly and you are just eager to be done with it. but for us, it is a sign of the future and its hard.

They will probably set a schedule for his IV meds and treatments. Try to get them to be on a schedule to allow him (and you) a large part of the night to sleep. We usually have them on the 12's and 6's (dosing is every 6 hours) and have the vest treatments (4x per day) spaced out during the day so that she can get 6 hours of sleep from midnight to 6am. I talk with the night nurse to ask that we do all the necessary stuff at midnight so that there is no coming and going through the night. Some nurses will resist -- but so long as your son is stable and isn't in need of round the clock care, its reasonable to expect him to get some rest.

The doctors usually only round once a day, so its a good idea to find out around when they come so you don't miss them. It always seemed that when I stepped out to grab a cup of coffee was when they showed.

Bring lots of things to do and some food to keep in the room. I always make sure I have enzymes in my purse because the nurses on the floor don't understand that enzymes are so he can eat, not that you get to have food so you can take your enzymes. Every day I'd have a nurse show up with her enzymes and say, "its time for her pills, should I get her something to eat with them?" LOL -- but the orders just say "take with meals" so they don't know!!!!

Finally, I bring a sterilizer with me for nebs. They are supposed to give you a brand new neb cup for every treatment, but sometimes they don't. So I sterilize the old ones to make sure everything is clean.

Good luck -- I'm sure others will have advice as well!!!
 
M

Mommafirst

Guest
I'm so sorry to hear that you are bracing for you first admit. Alyssa has never cultured pseudo, but has done IVs three times already. I don't really know what they'll do if he continues to culture it after IVs, but do know that eventually most CF patients become chronically cultured with it and it becomes more of a question of controlling the numbers than getting rid of it. I hope, for you and Tucker, that you can erradicate it and not see it again for a very long long time.

As for going in for IVs, I can give you some advice on that front. It is really emotional and scary the first time. Unlike non-Cf families, a hospital stay is a weird anomaly and you are just eager to be done with it. but for us, it is a sign of the future and its hard.

They will probably set a schedule for his IV meds and treatments. Try to get them to be on a schedule to allow him (and you) a large part of the night to sleep. We usually have them on the 12's and 6's (dosing is every 6 hours) and have the vest treatments (4x per day) spaced out during the day so that she can get 6 hours of sleep from midnight to 6am. I talk with the night nurse to ask that we do all the necessary stuff at midnight so that there is no coming and going through the night. Some nurses will resist -- but so long as your son is stable and isn't in need of round the clock care, its reasonable to expect him to get some rest.

The doctors usually only round once a day, so its a good idea to find out around when they come so you don't miss them. It always seemed that when I stepped out to grab a cup of coffee was when they showed.

Bring lots of things to do and some food to keep in the room. I always make sure I have enzymes in my purse because the nurses on the floor don't understand that enzymes are so he can eat, not that you get to have food so you can take your enzymes. Every day I'd have a nurse show up with her enzymes and say, "its time for her pills, should I get her something to eat with them?" LOL -- but the orders just say "take with meals" so they don't know!!!!

Finally, I bring a sterilizer with me for nebs. They are supposed to give you a brand new neb cup for every treatment, but sometimes they don't. So I sterilize the old ones to make sure everything is clean.

Good luck -- I'm sure others will have advice as well!!!
 
M

Mommafirst

Guest
I'm so sorry to hear that you are bracing for you first admit. Alyssa has never cultured pseudo, but has done IVs three times already. I don't really know what they'll do if he continues to culture it after IVs, but do know that eventually most CF patients become chronically cultured with it and it becomes more of a question of controlling the numbers than getting rid of it. I hope, for you and Tucker, that you can erradicate it and not see it again for a very long long time.
<br />
<br />As for going in for IVs, I can give you some advice on that front. It is really emotional and scary the first time. Unlike non-Cf families, a hospital stay is a weird anomaly and you are just eager to be done with it. but for us, it is a sign of the future and its hard.
<br />
<br />They will probably set a schedule for his IV meds and treatments. Try to get them to be on a schedule to allow him (and you) a large part of the night to sleep. We usually have them on the 12's and 6's (dosing is every 6 hours) and have the vest treatments (4x per day) spaced out during the day so that she can get 6 hours of sleep from midnight to 6am. I talk with the night nurse to ask that we do all the necessary stuff at midnight so that there is no coming and going through the night. Some nurses will resist -- but so long as your son is stable and isn't in need of round the clock care, its reasonable to expect him to get some rest.
<br />
<br />The doctors usually only round once a day, so its a good idea to find out around when they come so you don't miss them. It always seemed that when I stepped out to grab a cup of coffee was when they showed.
<br />
<br />Bring lots of things to do and some food to keep in the room. I always make sure I have enzymes in my purse because the nurses on the floor don't understand that enzymes are so he can eat, not that you get to have food so you can take your enzymes. Every day I'd have a nurse show up with her enzymes and say, "its time for her pills, should I get her something to eat with them?" LOL -- but the orders just say "take with meals" so they don't know!!!!
<br />
<br />Finally, I bring a sterilizer with me for nebs. They are supposed to give you a brand new neb cup for every treatment, but sometimes they don't. So I sterilize the old ones to make sure everything is clean.
<br />
<br />Good luck -- I'm sure others will have advice as well!!!
<br />
<br />
 
You must log in or register to reply here.
Top