Hi Zoe,
The drug is still in the pipeline...it has been given the name Ataluren....
Here is a link to the PTC Therapeutics website where you can read a little more about it and it's status....
<a target=_blank class=ftalternatingbarlinklarge href="http://www.ptcbio.com/3.1.1_genetic_disorders.aspx">Link</a>