We are finally off the antibiotics and will be screened on Thursday-Oct 13 for this study. We wil go to Birmingham and he will have an EKG, chest xray, blood work, pulmonary functions,sweat test etc. Please keep us in thoughts and prayers- I will post after the visit. Also remember him tomorrow- he will take a civil service test to be hired as a 911 dispatcher. He is 20 and wanted to be in the military or a police officer but as this is not feasible he is looking into this and is very excited. Thanks again.
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PTC124 study
- Thread starter anonymous
- Start date
You?re the first I've heard involved in this study.
Unfortunately my son is only 10 and can't get involved in this clinical trial, but I'm waiting for this trial to be over and obviously successful. I am a specialty Pharma Rep and I know a lot about this drug and clinical trials. I have a great feeling about this. Unfortunately this won't help everyone, but for 10% and my child this could lead to a beautiful healthy future.
For chat off line please contact me at kellywiere@adelphia.net.
Thank you and your son for help this drug come to market!
Kelly
<img src="i/expressions/heart.gif" border="0">
Unfortunately my son is only 10 and can't get involved in this clinical trial, but I'm waiting for this trial to be over and obviously successful. I am a specialty Pharma Rep and I know a lot about this drug and clinical trials. I have a great feeling about this. Unfortunately this won't help everyone, but for 10% and my child this could lead to a beautiful healthy future.
For chat off line please contact me at kellywiere@adelphia.net.
Thank you and your son for help this drug come to market!
Kelly
<img src="i/expressions/heart.gif" border="0">
You have to be 18 and have this specific mutation. Everything went well except for some minor equipment malfunctions. He had bloodwork, chest xray, pulmonary functions,ekg, nasal pd, physical exam. Dr. Clancy in Birmingham is heading up the whole study so we are very fortunate to be where he is. They know that Will is the first to be enrolled in the US and they think the world- Israel is doing a study also but they dont think they have enrolled anyone yet. It will be neat to see his initials in the literature lol. In approximately 3 wks he will go back to Birmingham and be admitted to the research center at UAB for one night and actually start taking the medicine. Keep us in your thoughts and prayers- it seems very exciting.