Pulmonary Rehab

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beleache

New member
So I finally started pulmo rehab yesterday (the date kept getting pushed up for one reason or another) I had done pulmonary rehab once before in a hospital setting... This seems a little different. It is a pulmonary rehab facility..
I have 2 private sessions w/ the RT. I was very surprised at how informative he was. We took over an hour to ask questions,(of course my first question was about the equipment & other CFers), do a low energy 6 min walk, check vitals, show me 3 posters of the lungs, & some breathing techniques & why they are important. He also touched on the importance of hydration, especially for CF'ers.
I am looking forward to learning more & hoping for good results.. What prompted me to go to PR again is that my FEV1 has gone down & I am hoping to increase my lung function.
I am also hoping to continue w/ walking exercise (I started about 2 wks ago & am hoping to continue that as well <img src="i/expressions/face-icon-small-smile.gif" border="0"> Happy exercising everyone !
<img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 
B

beleache

New member
So I finally started pulmo rehab yesterday (the date kept getting pushed up for one reason or another) I had done pulmonary rehab once before in a hospital setting... This seems a little different. It is a pulmonary rehab facility..
I have 2 private sessions w/ the RT. I was very surprised at how informative he was. We took over an hour to ask questions,(of course my first question was about the equipment & other CFers), do a low energy 6 min walk, check vitals, show me 3 posters of the lungs, & some breathing techniques & why they are important. He also touched on the importance of hydration, especially for CF'ers.
I am looking forward to learning more & hoping for good results.. What prompted me to go to PR again is that my FEV1 has gone down & I am hoping to increase my lung function.
I am also hoping to continue w/ walking exercise (I started about 2 wks ago & am hoping to continue that as well <img src="i/expressions/face-icon-small-smile.gif" border="0"> Happy exercising everyone !
<img src="i/expressions/face-icon-small-smile.gif" border="0"> joni
 
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pencf

Guest
We just started Pulmo Rehab last week. My daughter, 16 with CF, had a rough fall. We caught a virus that took us down fast. The result was, 12 days in hospital, 21 days on IV's, less choices of antibiotics to fight our bugs, and drastically reduced lung function. Discharged on o2 to sleep. FEV1 was under 30, so the CF docs recommended we meet with a transplant specialist U of Pittsburgh. One of the changes is Pulm Rehab, and I have to say, it appears to be helping, of course the true test will be clinic in April and Spiro/PFT, but the fact that she is going, and isn't complaining, I am very grateful! Your lungs are muscles, and if you can make them stronger, then they can work better for you. As the TX specialist said, our goal is to keep the lungs God gave you, Right Where They Are, for as long as possible, and that means we need to do everything possible to achieve that goal. Now of course, Joni you probably fit in the patient age population, but what I think is good, is everyone there has variations of the same issue, and everyone is there to try to get better or improve! Even for my 16 yr old, amongst 60 yr olds +, that is a good thing. Good Luck Joni, and God Bless anyone with CF who is 60!!!! You deserve a metal!
 
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pencf

Guest
We just started Pulmo Rehab last week. My daughter, 16 with CF, had a rough fall. We caught a virus that took us down fast. The result was, 12 days in hospital, 21 days on IV's, less choices of antibiotics to fight our bugs, and drastically reduced lung function. Discharged on o2 to sleep. FEV1 was under 30, so the CF docs recommended we meet with a transplant specialist U of Pittsburgh. One of the changes is Pulm Rehab, and I have to say, it appears to be helping, of course the true test will be clinic in April and Spiro/PFT, but the fact that she is going, and isn't complaining, I am very grateful! Your lungs are muscles, and if you can make them stronger, then they can work better for you. As the TX specialist said, our goal is to keep the lungs God gave you, Right Where They Are, for as long as possible, and that means we need to do everything possible to achieve that goal. Now of course, Joni you probably fit in the patient age population, but what I think is good, is everyone there has variations of the same issue, and everyone is there to try to get better or improve! Even for my 16 yr old, amongst 60 yr olds +, that is a good thing. Good Luck Joni, and God Bless anyone with CF who is 60!!!! You deserve a metal!
 
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beleache

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pencf</b></i> We just started Pulmo Rehab last week. My daughter, 16 with CF, had a rough fall. We caught a virus that took us down fast. The result was, 12 days in hospital, 21 days on IV's, less choices of antibiotics to fight our bugs, and drastically reduced lung function. Discharged on o2 to sleep. FEV1 was under 30, so the CF docs recommended we meet with a transplant specialist U of Pittsburgh. One of the changes is Pulm Rehab, and I have to say, it appears to be helping, of course the true test will be clinic in April and Spiro/PFT, but the fact that she is going, and isn't complaining, I am very grateful! Your lungs are muscles, and if you can make them stronger, then they can work better for you. As the TX specialist said, our goal is to keep the lungs God gave you, Right Where They Are, for as long as possible, and that means we need to do everything possible to achieve that goal. Now of course, Joni you probably fit in the patient age population, but what I think is good, is everyone there has variations of the same issue, and everyone is there to try to get better or improve! Even for my 16 yr old, amongst 60 yr olds +, that is a good thing. Good Luck Joni, and God Bless anyone with CF who is 60!!!! You deserve a medal!</end quote>
Ty , My second day was just as good as the first. The RT is great & I am so grateful that there are ppl like him. I dont feel I deserve a medal. I am just trying to live as long as possible for my family.. I do however feel the parents of CFers deserve medals !! You are all amazing !
God Bless you all <3 joni
 
B

beleache

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>pencf</b></i> We just started Pulmo Rehab last week. My daughter, 16 with CF, had a rough fall. We caught a virus that took us down fast. The result was, 12 days in hospital, 21 days on IV's, less choices of antibiotics to fight our bugs, and drastically reduced lung function. Discharged on o2 to sleep. FEV1 was under 30, so the CF docs recommended we meet with a transplant specialist U of Pittsburgh. One of the changes is Pulm Rehab, and I have to say, it appears to be helping, of course the true test will be clinic in April and Spiro/PFT, but the fact that she is going, and isn't complaining, I am very grateful! Your lungs are muscles, and if you can make them stronger, then they can work better for you. As the TX specialist said, our goal is to keep the lungs God gave you, Right Where They Are, for as long as possible, and that means we need to do everything possible to achieve that goal. Now of course, Joni you probably fit in the patient age population, but what I think is good, is everyone there has variations of the same issue, and everyone is there to try to get better or improve! Even for my 16 yr old, amongst 60 yr olds +, that is a good thing. Good Luck Joni, and God Bless anyone with CF who is 60!!!! You deserve a medal!</end quote>
Ty , My second day was just as good as the first. The RT is great & I am so grateful that there are ppl like him. I dont feel I deserve a medal. I am just trying to live as long as possible for my family.. I do however feel the parents of CFers deserve medals !! You are all amazing !
God Bless you all <3 joni
 
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