lovinmyCfkiddos
New member
I found this board and am hoping that someone out there has some insight/ experience to offer. My husband and I had a daughter in August of 2011. Her newborn screening test came back to say that she had a two gene mutation for CF. My husband and I were both unaware until that point that we were even carriers! She has had a sweat test every six months that have so far been negative. The doctors are monitoring her closely, but our concern is that we have recently found out that we are pregnant again. Knowing that we both carrier a mutated gene, we know that this baby also runs the risk of getting them. Is a amniocentesis recommended in this case? Is there something different that has to be done during my pregnancy knowing all of this information? We have made an appointment to see the doctor, just wondering if anyone has any advice or experience to share?