question for women with CF that have had babies

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beccab

New member
what type of doctor did you go with and what was your experience (ie midwife, ob, high risk doc....etc...) would you have changed anything?

I am asking because i have an Ob (she only has 2yrs experience...but she did my cyst surgery in dec, and i like her) but i had to have a consult with a high risk OB and she scared us basically telling me i could die, and most cfers get IVs and end up hospitalized within a month of delivery... I am wondering others experiences and tyring to figure out if i should go with my OB with not a lot of experience or a agressive high risk OB that specializes in CF pregnancies...
 
B

beccab

New member
what type of doctor did you go with and what was your experience (ie midwife, ob, high risk doc....etc...) would you have changed anything?

I am asking because i have an Ob (she only has 2yrs experience...but she did my cyst surgery in dec, and i like her) but i had to have a consult with a high risk OB and she scared us basically telling me i could die, and most cfers get IVs and end up hospitalized within a month of delivery... I am wondering others experiences and tyring to figure out if i should go with my OB with not a lot of experience or a agressive high risk OB that specializes in CF pregnancies...
 
B

beccab

New member
what type of doctor did you go with and what was your experience (ie midwife, ob, high risk doc....etc...) would you have changed anything?
<br />
<br />I am asking because i have an Ob (she only has 2yrs experience...but she did my cyst surgery in dec, and i like her) but i had to have a consult with a high risk OB and she scared us basically telling me i could die, and most cfers get IVs and end up hospitalized within a month of delivery... I am wondering others experiences and tyring to figure out if i should go with my OB with not a lot of experience or a agressive high risk OB that specializes in CF pregnancies...
 
J

jbrandonAW

New member
I saw a HIGH RISk doctor that has treated CFers before. Ask your CF doctor for some options they have worked with. I was also followed by a regular OB and a perinatologist. I was induced at 35 weeks to prevent me from developing lung issues. B/c we knew when 35 weeks was, I went it at 33 weeks for a tune up prior to having olivia, and I stayed on for one more week after she was born. I didn't have my first tune up until she was 7 months old.

I would go with a high risk.
 
J

jbrandonAW

New member
I saw a HIGH RISk doctor that has treated CFers before. Ask your CF doctor for some options they have worked with. I was also followed by a regular OB and a perinatologist. I was induced at 35 weeks to prevent me from developing lung issues. B/c we knew when 35 weeks was, I went it at 33 weeks for a tune up prior to having olivia, and I stayed on for one more week after she was born. I didn't have my first tune up until she was 7 months old.

I would go with a high risk.
 
J

jbrandonAW

New member
I saw a HIGH RISk doctor that has treated CFers before. Ask your CF doctor for some options they have worked with. I was also followed by a regular OB and a perinatologist. I was induced at 35 weeks to prevent me from developing lung issues. B/c we knew when 35 weeks was, I went it at 33 weeks for a tune up prior to having olivia, and I stayed on for one more week after she was born. I didn't have my first tune up until she was 7 months old.
<br />
<br />I would go with a high risk.
 
C

crystalina0814

New member
I too saw a high risk OB with both of my children. My water broke naturally with my son at 36 weeks and my daughter did not arrive until almost 38 weeks (also on her own).

My lung functions was excellant through both of my pregnancies and I was not hospitalized with niether (except the norm. delivery). I did not have the need for a tune-up until my second child was 16 months old. I think I did pretty well going almost 4 years without one!

My only struggle during both pregnancies was gaining enough weight. I only gained 9 lbs with my first and 13 with my second (and those numbers were a struggle).

Good luck! If you are healthy when conceiving you will do just fine. I had heard that most CFers have higher numbers while pregnant because they watch their health closer- of course this is a case by case basis.

I would see a high risk....if for nothing else, you get LOTS of ultrasounds <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
C

crystalina0814

New member
I too saw a high risk OB with both of my children. My water broke naturally with my son at 36 weeks and my daughter did not arrive until almost 38 weeks (also on her own).

My lung functions was excellant through both of my pregnancies and I was not hospitalized with niether (except the norm. delivery). I did not have the need for a tune-up until my second child was 16 months old. I think I did pretty well going almost 4 years without one!

My only struggle during both pregnancies was gaining enough weight. I only gained 9 lbs with my first and 13 with my second (and those numbers were a struggle).

Good luck! If you are healthy when conceiving you will do just fine. I had heard that most CFers have higher numbers while pregnant because they watch their health closer- of course this is a case by case basis.

I would see a high risk....if for nothing else, you get LOTS of ultrasounds <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
C

crystalina0814

New member
I too saw a high risk OB with both of my children. My water broke naturally with my son at 36 weeks and my daughter did not arrive until almost 38 weeks (also on her own).
<br />
<br />My lung functions was excellant through both of my pregnancies and I was not hospitalized with niether (except the norm. delivery). I did not have the need for a tune-up until my second child was 16 months old. I think I did pretty well going almost 4 years without one!
<br />
<br />My only struggle during both pregnancies was gaining enough weight. I only gained 9 lbs with my first and 13 with my second (and those numbers were a struggle).
<br />
<br />Good luck! If you are healthy when conceiving you will do just fine. I had heard that most CFers have higher numbers while pregnant because they watch their health closer- of course this is a case by case basis.
<br />
<br />I would see a high risk....if for nothing else, you get LOTS of ultrasounds <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
D

Dea

New member
My regular OB wouldnt even see me after they found out I was pregnant. They sent me right to a perinatologist (High Risk). I was followed by him throughout my whole pregnancy and I did quite well. I think you should see a high risk Dr...but, if you are not comfortable with the one that you have seen...maybe find another one. Even after delivery, I did well. I wasnt hospitalized until about 6 mos after my daughter was born...and it was because I developed diabetes...wasnt my lungs at all. Feel free to ask me anything!
Dea
 
D

Dea

New member
My regular OB wouldnt even see me after they found out I was pregnant. They sent me right to a perinatologist (High Risk). I was followed by him throughout my whole pregnancy and I did quite well. I think you should see a high risk Dr...but, if you are not comfortable with the one that you have seen...maybe find another one. Even after delivery, I did well. I wasnt hospitalized until about 6 mos after my daughter was born...and it was because I developed diabetes...wasnt my lungs at all. Feel free to ask me anything!
Dea
 
D

Dea

New member
My regular OB wouldnt even see me after they found out I was pregnant. They sent me right to a perinatologist (High Risk). I was followed by him throughout my whole pregnancy and I did quite well. I think you should see a high risk Dr...but, if you are not comfortable with the one that you have seen...maybe find another one. Even after delivery, I did well. I wasnt hospitalized until about 6 mos after my daughter was born...and it was because I developed diabetes...wasnt my lungs at all. Feel free to ask me anything!
<br />Dea
 
M

mamaScarlett

Active member
I won't mince words here...this particular OB sounds very uneducated about women with Cf delivering. (if this is really what she said to you)
I WILL not tell you what to do. What I would do based on experience...is run, not walk, to another OB with experience in CF or at a minimum an EXPERIENCED Ob. One that has been practicing for a number of years and knows how to deal with a higher risk pregnancy.
Thats what I would do.
This is your time. You want to have complete confidence in your doc and be on the same page to get the most out of your pregnancy and birth.

For the preg and birth of my daughter, I saw an OB in nyc reccomended by my Cf team. She specialized in moms with Cf and delivered dozens of cfers babies. She was a doc in her 50s and therefore very experienced. Of course a doc that specializes in our field is very hard to come by, but someone with some type of qualification out there is available.
Best wishes to you!
ps-Listen to your gut. You can't go wrong. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

mamaScarlett

Active member
I won't mince words here...this particular OB sounds very uneducated about women with Cf delivering. (if this is really what she said to you)
I WILL not tell you what to do. What I would do based on experience...is run, not walk, to another OB with experience in CF or at a minimum an EXPERIENCED Ob. One that has been practicing for a number of years and knows how to deal with a higher risk pregnancy.
Thats what I would do.
This is your time. You want to have complete confidence in your doc and be on the same page to get the most out of your pregnancy and birth.

For the preg and birth of my daughter, I saw an OB in nyc reccomended by my Cf team. She specialized in moms with Cf and delivered dozens of cfers babies. She was a doc in her 50s and therefore very experienced. Of course a doc that specializes in our field is very hard to come by, but someone with some type of qualification out there is available.
Best wishes to you!
ps-Listen to your gut. You can't go wrong. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

mamaScarlett

Active member
I won't mince words here...this particular OB sounds very uneducated about women with Cf delivering. (if this is really what she said to you)
<br />I WILL not tell you what to do. What I would do based on experience...is run, not walk, to another OB with experience in CF or at a minimum an EXPERIENCED Ob. One that has been practicing for a number of years and knows how to deal with a higher risk pregnancy.
<br />Thats what I would do.
<br />This is your time. You want to have complete confidence in your doc and be on the same page to get the most out of your pregnancy and birth.
<br />
<br />For the preg and birth of my daughter, I saw an OB in nyc reccomended by my Cf team. She specialized in moms with Cf and delivered dozens of cfers babies. She was a doc in her 50s and therefore very experienced. Of course a doc that specializes in our field is very hard to come by, but someone with some type of qualification out there is available.
<br />Best wishes to you!
<br />ps-Listen to your gut. You can't go wrong. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
M

marcijo

Guest
I went with a high risk OB that specialized in CF pregnancies. She was also right down the hall from my CF clinic. I at first debated between her and a doctor in my town (regular OB) but was SO glad I went with the high risk OB with experience in CF pregnancies. She was excellent.

The only issue I had with my first pregnancy was gaining weight (and normally I can gain weight just fine!) so I was put on a PICC line and given TPN at 7 months, for the rest of my pregnancy. I also had IV antibiotics during that pregnancy once-it was my first time with IV antibiotics.

I would definitely go with a high risk OB-preferrably one that has experience with CF. Its a great idea to ask your CF clinic.
 
M

marcijo

Guest
I went with a high risk OB that specialized in CF pregnancies. She was also right down the hall from my CF clinic. I at first debated between her and a doctor in my town (regular OB) but was SO glad I went with the high risk OB with experience in CF pregnancies. She was excellent.

The only issue I had with my first pregnancy was gaining weight (and normally I can gain weight just fine!) so I was put on a PICC line and given TPN at 7 months, for the rest of my pregnancy. I also had IV antibiotics during that pregnancy once-it was my first time with IV antibiotics.

I would definitely go with a high risk OB-preferrably one that has experience with CF. Its a great idea to ask your CF clinic.
 
M

marcijo

Guest
I went with a high risk OB that specialized in CF pregnancies. She was also right down the hall from my CF clinic. I at first debated between her and a doctor in my town (regular OB) but was SO glad I went with the high risk OB with experience in CF pregnancies. She was excellent.
<br />
<br />The only issue I had with my first pregnancy was gaining weight (and normally I can gain weight just fine!) so I was put on a PICC line and given TPN at 7 months, for the rest of my pregnancy. I also had IV antibiotics during that pregnancy once-it was my first time with IV antibiotics.
<br />
<br />I would definitely go with a high risk OB-preferrably one that has experience with CF. Its a great idea to ask your CF clinic.
 
R

rubyroselee

New member
Hi,

I saw a high-risk OB for my pregnancy. I just felt safer being with a group of doctors that had worked with CF women before and could handle any potential complications I would have. Luckily I had no CF issues during pregnancy, but it was nice knowing they had worked with other CF women before me and sort of know what to expected with me. The only issue I had was that they treated me as if I needed to get the baby out sooner rather than later to avoid having CF complications. Of course, this is not true. They offered induction to me due to CF even when I was not having any CF-related complications at all. I think they just wanted to make sure I had a healthy baby before any adverse things happened (which is silly, because I was fine). From what they told me, I was the healthiest CF woman they had cared for, so it was almost like they were treating me as if I was sicker than I really was because their only experience was with CF women who had complications. But it seems that most high-risk OB's have experience working with pregnant CF women, so you should be in good hands if you go that direction. But I do know that some people have gone to regular OB's or midwives and things have worked out just fine for them as well.
 
R

rubyroselee

New member
Hi,

I saw a high-risk OB for my pregnancy. I just felt safer being with a group of doctors that had worked with CF women before and could handle any potential complications I would have. Luckily I had no CF issues during pregnancy, but it was nice knowing they had worked with other CF women before me and sort of know what to expected with me. The only issue I had was that they treated me as if I needed to get the baby out sooner rather than later to avoid having CF complications. Of course, this is not true. They offered induction to me due to CF even when I was not having any CF-related complications at all. I think they just wanted to make sure I had a healthy baby before any adverse things happened (which is silly, because I was fine). From what they told me, I was the healthiest CF woman they had cared for, so it was almost like they were treating me as if I was sicker than I really was because their only experience was with CF women who had complications. But it seems that most high-risk OB's have experience working with pregnant CF women, so you should be in good hands if you go that direction. But I do know that some people have gone to regular OB's or midwives and things have worked out just fine for them as well.
 
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