Question. Please Help

[auzziunit]

Hi my names clinton and im a 21 year old from australia but am
living in missouri to go to college. i have been a national level
sprinter for years so i practice alot. since 1999 i have had
numerous chest infections which leads to pneumonia. i have been
hospitalized since then for over a week at least 14 times. i have
been diagnosed with asthma, Bronchiectasis  and acute
bronchiopulmonary  aspergillosis.    i fall
right into the cystic fybrosis  category as i constantly have
a cough, have constant phlegm, have salty tasting skin and i eat so
so much food yet i am 142 pounds.<br>
i have been tested 6 years ago for cf and was negative, can that
change<br>
over the last month i can not even run 100m without taking 15
minutes to recover because my chest kills me and i cant get any air
in, i get tired, sore joints and it is really worrying me. in my
recent spirometry tests last week i was sitting at 50% whichc is
terrible. does anyone have any idea to what it can be as i am very
very worried about my condition 

 

[silvermoon]

how tall was the concentration of the ions (chlorid and sodium) ?
was it a real negativ result or was it in the "could be could not be" aera?
if it was in the real negativ aera then I think you dont have cf but if it was in the other aera i would repeat the test and perhaps make a genetic test

lg anouk

 

[thelizardqueen]

All I know is that there is a such thing as a false negative, but never a false positive. Is there history of CF in your family? Could you go for a 2nd opinion at an accredited CF centre, and get the test redone? You might want to try a blood test as well. Those are more accurate then a salt test. That is the test you got 6 years ago right? - a salt test? I would suggest going to an accredited CF centre and get the test redone.

 

[blindhearted]

I agree with Liz. Go to a credited CF Center (go to <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/chapters_and_care_centers/">http://www.cff.org/chapters_and_care_centers/</a> , click on your state, and list of centers should show up), make an appointment, and get the sweat test done again, as well as a blood test. Its better to get tested and know something than to continue wondering, especially if you feel there maybe something there.

 

[anonymous]

Hi Clinton,
Now allow me to make this clear...this is just my story and it may give you some direction, not diagnosis.

From birth on I was missed diagnosed...I was a very sickly child with some CF symptoms...low weight included. Salty skin the works...but sweat test always came back normal. They finally did a biopsy of my lungs...I have a form of Cf called immobile cilia syndrome. It is very rare and is just what the words mean...no moving cilia therefore...LOTS of Infections! They have treated me as a CFer ever since. Finally success. Now recently, less then a year ago...DNA test. Show I do have the CF gene. And this was just with a blood test...cake right?

All in all I lead a fairly healthy life with nebs and infections...but hey...I am now 33 and have problems with too MUCH weight!

Good luck to you. I hope all goes well and you find some answers soon.
Sylvia

 

[anonymous]

hi clinton my name is dani. dont be afraid about it living with cf is hard, but it is nothing to worry about. you learn to live with it.

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