question

[rarab43]

These may be dumb questions but my brain is going round and round and I just thought yall could help. My son has been on Cayston for about a year but after a severe bleed he stopped for a few months- bad idea. He decided to really start being compliant so we called to reorder Cayston- cant get it because of break in treatment. They prescribed Tobi- he hasnt taken it in a long time. He should do saline first-is this right? And he uses same neb with saline and Tobi? Also I have read about people using masks to do saline and that helps sinuses. How do we get these masks? Do we have to have prescription? Thanks.

 

[rarab43]

These may be dumb questions but my brain is going round and round and I just thought yall could help. My son has been on Cayston for about a year but after a severe bleed he stopped for a few months- bad idea. He decided to really start being compliant so we called to reorder Cayston- cant get it because of break in treatment. They prescribed Tobi- he hasnt taken it in a long time. He should do saline first-is this right? And he uses same neb with saline and Tobi? Also I have read about people using masks to do saline and that helps sinuses. How do we get these masks? Do we have to have prescription? Thanks.

 

[Havoc]

I do not do HTS or Tobi, as I don't tolerate either very well. I have been told by a friend of mine that a sidestream nebulizer is much better for HTS in terms of reducing irritation. And yes, I would do albuterol then HTS then Tobi.

 

[Havoc]

I do not do HTS or Tobi, as I don't tolerate either very well. I have been told by a friend of mine that a sidestream nebulizer is much better for HTS in terms of reducing irritation. And yes, I would do albuterol then HTS then Tobi.

 

[cfsucks]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> I do not do HTS or Tobi, as I don't tolerate either very well. I have been told by a friend of mine that a sidestream nebulizer is much better for HTS in terms of reducing irritation. And yes, I would do albuterol then HTS then Tobi.</end quote>

When you say you can't tolerate are you referring to bleeding/irritation? or just don't feel well while on it?

 

[cfsucks]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> I do not do HTS or Tobi, as I don't tolerate either very well. I have been told by a friend of mine that a sidestream nebulizer is much better for HTS in terms of reducing irritation. And yes, I would do albuterol then HTS then Tobi.</end quote>

When you say you can't tolerate are you referring to bleeding/irritation? or just don't feel well while on it?

 

[Havoc]

Irritation, specifically bronchospasm. This is especially true of HTS. Pulmozyme tears up my vocal cords. Tobi is the lesser of the evils, but I have not noticed a profound benefit that makes it worth doing.

 

[Havoc]

Irritation, specifically bronchospasm. This is especially true of HTS. Pulmozyme tears up my vocal cords. Tobi is the lesser of the evils, but I have not noticed a profound benefit that makes it worth doing.

 

[Anomie]

You can do HTS and tobi out of the pari neb but don't use the same nebulizer for both unless it is boiled in between.

 

[Anomie]

You can do HTS and tobi out of the pari neb but don't use the same nebulizer for both unless it is boiled in between.

 

[semperfiohana]

i think of it in these terms...i am a girl so it may be a little silly on my part...i call it going to the s.p.a.

saline
pulmozyme
antibiotic

hence going to the s.p.a.

 

[semperfiohana]

i think of it in these terms...i am a girl so it may be a little silly on my part...i call it going to the s.p.a.

saline
pulmozyme
antibiotic

hence going to the s.p.a.

 

[Incomudrox]

HTS is MUCH more tolerable in the sidestream nebulizer than in the Pari. The Pari is a finer particle size and will tear you up and cause spasms in the airway. Do Tobi from the Pari though as it needs to be micronized to a size most nebs can't do.

 

[Incomudrox]

HTS is MUCH more tolerable in the sidestream nebulizer than in the Pari. The Pari is a finer particle size and will tear you up and cause spasms in the airway. Do Tobi from the Pari though as it needs to be micronized to a size most nebs can't do.