That is great that Ashton might be coming home soon!! Life is SOOOO much easier/better when they come home as I am sure you expect. I really feel that breast milk is best. My daughter and son both did really well on breast milk. It is easily digestible and can give antibodies to children. The dietician recommended that I stop breastfeeding my daughter when she was four months old. She was vomiting a lot and could have gained a little more weight, although her weight was good (25%). I had major problems breastfeeding that ended up requiring surgery for me. Once we switched my daughter to formula, the vomiting increased and her weight fell. Anyway, she did end up having a milk allergy. But had I kept breastfeeding I know she would have done better. I breastfed my son for a year, and he did very well.
Jack was on TPN for two weeks when he was born while we waited for his intestines to clear of the meconium. It along with the meconium illeus caused liver problems I was told. He started on ursidol and is still on it today. Our GI doctor is not as thrilled about the ursidol/actigal. She says that while the liver enzymes numbers do fall with ursidol, the liver could still be having problems. So even though Jack's liver is the right size and his liver enzymes numbers are good, I am told he still has liver disease. Not sure I understand that, and I keep trying to get her to tell me he doesn't have it, but I am told he does. I would expect that Ashton is put on ursidol and enzymes this week, if not politely request (i.e. demand) it.
Sharon, mom of Sophia, 4 and Jack, 2 both with cf
