Questions about C diff.

  • Thread starter NanaOf8GirlsAndCounting
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NanaOf8GirlsAndCounting

Guest
About a month ago Graycie tested positive for C diff again. They put her on Vanco and she was off of it for around a week. My daughter noticed that Graycie wasn't eating again and was clingy and crabby. The next day she started having diarria again and it was that stinky c diff smell. So once again to the peds and they called and she is testing positive for c diff again. They called the GI dr and now the Infectious Disease drs are involved. My question is this : has anyone had reaccurances of c diff? They don't know if it is a reacurrance or if it never left her in the first place. They are talking about putting her on another med but from what I read there are only 2 that are used to fight c diff. Flaygl and Vanco. Have you been treated with any other med for c diff? They are suppose to call us today with a plan so we don't know if they are admitting her again or what. Any help would be greatly appreciated.
 
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NanaOf8GirlsAndCounting

Guest
About a month ago Graycie tested positive for C diff again. They put her on Vanco and she was off of it for around a week. My daughter noticed that Graycie wasn't eating again and was clingy and crabby. The next day she started having diarria again and it was that stinky c diff smell. So once again to the peds and they called and she is testing positive for c diff again. They called the GI dr and now the Infectious Disease drs are involved. My question is this : has anyone had reaccurances of c diff? They don't know if it is a reacurrance or if it never left her in the first place. They are talking about putting her on another med but from what I read there are only 2 that are used to fight c diff. Flaygl and Vanco. Have you been treated with any other med for c diff? They are suppose to call us today with a plan so we don't know if they are admitting her again or what. Any help would be greatly appreciated.
 
N

NanaOf8GirlsAndCounting

Guest
About a month ago Graycie tested positive for C diff again. They put her on Vanco and she was off of it for around a week. My daughter noticed that Graycie wasn't eating again and was clingy and crabby. The next day she started having diarria again and it was that stinky c diff smell. So once again to the peds and they called and she is testing positive for c diff again. They called the GI dr and now the Infectious Disease drs are involved. My question is this : has anyone had reaccurances of c diff? They don't know if it is a reacurrance or if it never left her in the first place. They are talking about putting her on another med but from what I read there are only 2 that are used to fight c diff. Flaygl and Vanco. Have you been treated with any other med for c diff? They are suppose to call us today with a plan so we don't know if they are admitting her again or what. Any help would be greatly appreciated.
 
J

jmom

New member
Patti-
You have been through so much! You're willingness to help others through your experience is much appreciated, I'm sure. I wish you small successes and miracles in your health, and rejoice with you in the big improvements you've had.
Nana-of-8...good luck with your Graycie's health. Will be praying for your family.
Not to be insensitive to this post's topic, but can I ask a related question? We are still working on a diagnosis for my daughter, who has fat malabsorption. Several years ago, she suffered three times from significant GI bleeding. She had 3 colonoscopies in less than half a year, and each time they found significant results, indicating infection (neutrophilic infiltration) and a hematoma/lesion that they were going to remove part of her colon to biopsy. When they went back in, the lesion was gone. They never identified the source of infection, but she always got better. Does anyone know if CF patients are more prone to colon infections?
 
J

jmom

New member
Patti-
You have been through so much! You're willingness to help others through your experience is much appreciated, I'm sure. I wish you small successes and miracles in your health, and rejoice with you in the big improvements you've had.
Nana-of-8...good luck with your Graycie's health. Will be praying for your family.
Not to be insensitive to this post's topic, but can I ask a related question? We are still working on a diagnosis for my daughter, who has fat malabsorption. Several years ago, she suffered three times from significant GI bleeding. She had 3 colonoscopies in less than half a year, and each time they found significant results, indicating infection (neutrophilic infiltration) and a hematoma/lesion that they were going to remove part of her colon to biopsy. When they went back in, the lesion was gone. They never identified the source of infection, but she always got better. Does anyone know if CF patients are more prone to colon infections?
 
J

jmom

New member
Patti-
<br /> You have been through so much! You're willingness to help others through your experience is much appreciated, I'm sure. I wish you small successes and miracles in your health, and rejoice with you in the big improvements you've had.
<br /> Nana-of-8...good luck with your Graycie's health. Will be praying for your family.
<br /> Not to be insensitive to this post's topic, but can I ask a related question? We are still working on a diagnosis for my daughter, who has fat malabsorption. Several years ago, she suffered three times from significant GI bleeding. She had 3 colonoscopies in less than half a year, and each time they found significant results, indicating infection (neutrophilic infiltration) and a hematoma/lesion that they were going to remove part of her colon to biopsy. When they went back in, the lesion was gone. They never identified the source of infection, but she always got better. Does anyone know if CF patients are more prone to colon infections?
 
T

Transplantmommy

New member
jmom,
Thank you for your kind words.

As for infections in the colon, I would think that it could be common in CFers becasue infections in the colon are normally caused by the good bacteria being eaten away by antibiotics, making the bad bacteria take over and cause the infections. Cfers are known to be on a lot of antibiotis!! When I had c-diff in 2007, that was the only time I had ever had an infection in my intestines, although I had had my fair share of bowel obstructions.

The only thing we can figure with me, is that I was on so many antibiotics pre-tx and then added all the new medications post tx, and I wasn't on anything to help keep the good bacteria count up. The docs in Cleveland learned from my case and the 2nd person who had a double lung and liver tx there was automatically put on probiotics after his transplant. Good for him, sad that they didn't think of that for me.

I hope you can find answers that you seek for your daughter. Not knowing exactly what is wrong is really frustrating!!
 
T

Transplantmommy

New member
jmom,
Thank you for your kind words.

As for infections in the colon, I would think that it could be common in CFers becasue infections in the colon are normally caused by the good bacteria being eaten away by antibiotics, making the bad bacteria take over and cause the infections. Cfers are known to be on a lot of antibiotis!! When I had c-diff in 2007, that was the only time I had ever had an infection in my intestines, although I had had my fair share of bowel obstructions.

The only thing we can figure with me, is that I was on so many antibiotics pre-tx and then added all the new medications post tx, and I wasn't on anything to help keep the good bacteria count up. The docs in Cleveland learned from my case and the 2nd person who had a double lung and liver tx there was automatically put on probiotics after his transplant. Good for him, sad that they didn't think of that for me.

I hope you can find answers that you seek for your daughter. Not knowing exactly what is wrong is really frustrating!!
 
T

Transplantmommy

New member
jmom,
<br />Thank you for your kind words.
<br />
<br />As for infections in the colon, I would think that it could be common in CFers becasue infections in the colon are normally caused by the good bacteria being eaten away by antibiotics, making the bad bacteria take over and cause the infections. Cfers are known to be on a lot of antibiotis!! When I had c-diff in 2007, that was the only time I had ever had an infection in my intestines, although I had had my fair share of bowel obstructions.
<br />
<br />The only thing we can figure with me, is that I was on so many antibiotics pre-tx and then added all the new medications post tx, and I wasn't on anything to help keep the good bacteria count up. The docs in Cleveland learned from my case and the 2nd person who had a double lung and liver tx there was automatically put on probiotics after his transplant. Good for him, sad that they didn't think of that for me.
<br />
<br />I hope you can find answers that you seek for your daughter. Not knowing exactly what is wrong is really frustrating!!
 
N

NanaOf8GirlsAndCounting

Guest
Thank you so much for replying Patti, I left a message on the adult forum. I havent been able to find alot of babies or toddlers who have had this experience and I really appreciate your help.
 
N

NanaOf8GirlsAndCounting

Guest
Thank you so much for replying Patti, I left a message on the adult forum. I havent been able to find alot of babies or toddlers who have had this experience and I really appreciate your help.
 
N

NanaOf8GirlsAndCounting

Guest
Thank you so much for replying Patti, I left a message on the adult forum. I havent been able to find alot of babies or toddlers who have had this experience and I really appreciate your help.
 
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