questions about how you were raised

damiensmom

New member
Well isnt this quite the topic, your childs care is just that . your childs,your buissness .I also think the degree of care should be condusive to thier condition, age ,weight, and if they have taken any hard hits. Welfare or rich, day care or not , I would imagine we all do what makes us feel like were doing the best for our loved ones . And that "what" is very realitve. God Bless
 

Brad

New member
Hello

I was raised with 4 siblings, I am the youngest boy, so I
was roughed up a lot, lol....

My Mother and Father put almost no restrictions on
our (my) avtivity, I road bikes and played baseball on a team from age
nine till I was like 21.
When I was very young I was sick a lot and under weight,
it seemed the more I did the more I ate and I gained weight
and my health improved,So I guess I really had no limits
put on me , My Parants let me do what ever I could handle,
I also got into Karate and boxing, wrestling and weight lifting,
 

Ratatosk

Administrator
Staff member
Liza's pulm said no to day care, but says YES to a teeny, tiny community waiting room. Liza's pulm also doesn't wash his hands when he comes into the room and has to be reminded to do so before he touches her toddler. Liza's pulm says no to any sports except gymnastics and track -- specfically said no to swimming and football. Liza's said ds's coughing so hard until he vomited up his formula was normal -- all cfers cough. He had bronchitis. He's the only pulmo in our town who treats cfers and we're probably not going to be going to the local cf clinic much longer.

Liza
 

Emily65Roses

New member
Yeah, I grew up swimming all the time. Loved it, it did good things for my lungs. I've always heard from dr's that swimming is a plus.
 

anonymous

New member
Pulmonologist says no to swimming because DS might be exposed to mold. We'd asked his pediatrician about swimming lessons at DS's 2 year well child exam and the doctor deferred to the pulmonologist. Since my outlaws have a lake home, we feel it's important that DS learn how to swim, plus at the CF clinic in the city we know of several CFers who are on the swim team and at that facility, the medical staff feels that swimming is an excellent form of exercise for cfers.

Last local clinic appointment the doctor said no football because of the potential for kicking up dirt -- he obviously hasn't heard about astro turf. Also no hockey either 'cuz of the potenial for mold.

Liza aka ratatosk
 

thelizardqueen

New member
I find it funny that a lot of people talk about not letting their kids do stuff because of the "potential" for mold - like football, hockey, swimming, etc. I'm not pointing fingers at certain people, but am just saying in general. Mold is EVERYWHERE. May as well not let your kids be active doing anything just for the "off chance" that they may be around mold. Guess that would mean no soccer, no baseball, no horseback riding, no playing outside, etc. May as well be living in a bubble. Growing up I went swimming in pools, lakes, water parks, etc. I played soccer, I had gym and recess outside where *gasp* mold might be. I played in the dirt growing up, and I did fine.

Again, I'm not pointing any people out, I'm just ranting in general. It seems that a lot of kids with CF are shielded from a lot of outdoor activity that could be beneficial to them for the simple reason of "what if...". CF isn't a normal disease. People with CF are not normal. Why can't they have a normal childhood? Why can't they be active outside? Its hard enough being someone with CF, but I can only imagine how hard it must be for the kids who can't go outdoors and do stuff they want to do as well. "Sorry Jimmy - I can't go out and play at the park with you, because I may catch mold there."
 

anonymous

New member
That's what is so frustrating with the local clinic. They're just not consistent -- I've talked about how they think we're overreacting when we've complained about the community waiting room at the cf clinic.

One doctor basically told me to shut up, that I didn't have a right to complain about the community waiting room because we send our child to day care.

We want our child to lead a normal life. Participate in normal childhood activities. Our fear when he was diagnosed was that he'd be the lonely sickly child who didn't have any friends and would have to stay inside during recess, etc. Our doctors in the city put our minds at ease by telling us our child can do anything he wants to do. They told us about other children who are on high school swimming, football and hockey teams. And then we get back home, full of hope and are told -- no no no -- we must raise "bubble boy"

Liza aka ratatosk
 

thelizardqueen

New member
I say scr*w the doctors. So long as your child is healthy i.e. has a good FEV1 number, good lung function - let them be active! Doctors don't always know what is best for your child. You know your child and his/her health better then a doctor who see's a ton of kids a day who are all different when it comes to their health. When it comes to the waiting room - if you have a cell, why not stay in your car or somewhere other then the room, and let the receptionist call you when its your kids time? They can't say no - remember, you're the customer, and they are your service provider.
 
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