Questions about pregnancy

DainaMay

New member
Hi. Just wondering what other pregnant people do about Physio, I prefer to do manual percussions, and im just wondering if its still ok to do while your pregnant? Also I have a G-tube. Assuming other soon to be moms have them to, what do you do about it? keep it in?, replace it with a foley? Thanks Daina- 21 w.cf Cepatia
 
K

kross10911

Guest
I am 28 weeks along and I am still doing my vest. I cant think of any reason to not be able to do the manual percussions. Doing physio while pregnant is just as important if not more important than usual. I cant help you out on the G-tube. Ive never had one so I have no idea. Hopefully someone else will have some info.
 

beautifulsoul

Super Moderator
I'm not pregnant & never have been but I have a G tube and I've never heard of any CF women who have a G-tube while pregnant. I'm not even sure how that would work. It seems like it would pop out once the baby starts growing bigger & bigger. Are you currently using your G tube? I personally wouldn't conceive if I knew I needed extra nutrition or other things through my G tube. Those are just my thoughts.
 
J

jrotier

Guest
I can speak to the g-tube a bit. First off, the CF center I attend has had several women with g-tubes who have been pregnant, so yes, it does happen. I'm not pregnant, but we are in the process of trying to conceive. I ended up getting the g-tube because we wanted to conceive. I have been doing well all my life FEV wise, but after a major infection several years ago, I never really got back to baseline. I kept getting sick, losing weight, getting sick and the cycle continued. After ruling out all the other possibilities, we basically decided that my quickly declining weight was the the problem and pregnancy was not going to happen unless I got my weight up. I had tried all other methods, until I finally decided to get the tube. Pre g-tube, my FEV was 80%, a year after, my FEV is 97%, with little to no need for antibiotics. I still use my tube and will most likely need to, especially when pregnant. The idea is that by being aggressive with the tube, we were able to prevent major lung damage and recover the lung function that was lost.

I say all this because I think there is a negative connotation about g-tubes; that it means someone tends to be sicker from the CF perspective, and maybe not in the best health to be pregnant. When it was first suggested to me, I sure thought it meant I was getting sicker. But for me, it was what I needed TO get healthy. I personally think we will start to see more g-tubes in the CF population, as centers are suggesting them sooner as the correlation between BMI and FEV is quite clear.

According to my CF center, OB, and the surgeon who placed the tube, there are NOTHING says that because you have a g-tube, you can't be pregnant. As it was explained to me, as the baby grows, the internal organs shift and the tube is flexible and will shift with it. They did say I might need a longer button to allow for that shifting. Obviously, I assume towards the end it will be uncomfortable, but certainly not impossible.

Keep in mind, there are many reasons that g-tubes are utilized for a variety of GI disorders. Back when considering having it placed, I did a google search in which women with g-tubes were able to have children without problems with the tube. Of course its not common, but from what I could find, definitely not contraindicated.

I would talk with your doctor, but mine assured me that the g-tube itself was fine to have and even use during pregnancy.
 
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