Questions re: symptoms

[Mommy2Zeke]

I read a paper regarding adult CF symptoms and it mentioned joint pain and osteoporosis, as well as liver enlargement. I am being tested, but my symptoms certainly are seeming to line up with what this paper was saying.

Do you all experience this as CFr's?

I have been diagnosed already with Degenerative Disc Disease about 10 years ago and it is still getting worse. My joint pain was bad enough in my teens that I was diagnosed with fibromyalgia, but I've never totally felt that was the correct diagnosis... and my liver has been discovered to be slightly enlarged on more than one occasion. Is this common among Adult Cfr's?

[I also have much of the standard CF respiratory 'markers'... frequent bronchitis, pneumonia (have it right now), nasal polyps, chronic sinusitis.]

This may be a really dumb question. But I'm just trying to make sense of all this as much as I can while I go through testing.

 

[Mommy2Zeke]

I read a paper regarding adult CF symptoms and it mentioned joint pain and osteoporosis, as well as liver enlargement. I am being tested, but my symptoms certainly are seeming to line up with what this paper was saying.

Do you all experience this as CFr's?

I have been diagnosed already with Degenerative Disc Disease about 10 years ago and it is still getting worse. My joint pain was bad enough in my teens that I was diagnosed with fibromyalgia, but I've never totally felt that was the correct diagnosis... and my liver has been discovered to be slightly enlarged on more than one occasion. Is this common among Adult Cfr's?

[I also have much of the standard CF respiratory 'markers'... frequent bronchitis, pneumonia (have it right now), nasal polyps, chronic sinusitis.]

This may be a really dumb question. But I'm just trying to make sense of all this as much as I can while I go through testing.

 

[Mommy2Zeke]

I read a paper regarding adult CF symptoms and it mentioned joint pain and osteoporosis, as well as liver enlargement. I am being tested, but my symptoms certainly are seeming to line up with what this paper was saying.

Do you all experience this as CFr's?

I have been diagnosed already with Degenerative Disc Disease about 10 years ago and it is still getting worse. My joint pain was bad enough in my teens that I was diagnosed with fibromyalgia, but I've never totally felt that was the correct diagnosis... and my liver has been discovered to be slightly enlarged on more than one occasion. Is this common among Adult Cfr's?

[I also have much of the standard CF respiratory 'markers'... frequent bronchitis, pneumonia (have it right now), nasal polyps, chronic sinusitis.]

This may be a really dumb question. But I'm just trying to make sense of all this as much as I can while I go through testing.

 

[Mommy2Zeke]

I read a paper regarding adult CF symptoms and it mentioned joint pain and osteoporosis, as well as liver enlargement. I am being tested, but my symptoms certainly are seeming to line up with what this paper was saying.

Do you all experience this as CFr's?

I have been diagnosed already with Degenerative Disc Disease about 10 years ago and it is still getting worse. My joint pain was bad enough in my teens that I was diagnosed with fibromyalgia, but I've never totally felt that was the correct diagnosis... and my liver has been discovered to be slightly enlarged on more than one occasion. Is this common among Adult Cfr's?

[I also have much of the standard CF respiratory 'markers'... frequent bronchitis, pneumonia (have it right now), nasal polyps, chronic sinusitis.]

This may be a really dumb question. But I'm just trying to make sense of all this as much as I can while I go through testing.

 

[Mommy2Zeke]

I read a paper regarding adult CF symptoms and it mentioned joint pain and osteoporosis, as well as liver enlargement. I am being tested, but my symptoms certainly are seeming to line up with what this paper was saying.
<br />
<br />Do you all experience this as CFr's?
<br />
<br />I have been diagnosed already with Degenerative Disc Disease about 10 years ago and it is still getting worse. My joint pain was bad enough in my teens that I was diagnosed with fibromyalgia, but I've never totally felt that was the correct diagnosis... and my liver has been discovered to be slightly enlarged on more than one occasion. Is this common among Adult Cfr's?
<br />
<br />[I also have much of the standard CF respiratory 'markers'... frequent bronchitis, pneumonia (have it right now), nasal polyps, chronic sinusitis.]
<br />
<br />This may be a really dumb question. But I'm just trying to make sense of all this as much as I can while I go through testing.

 

[rubyroselee]

Hi Jen,

I don't know how common the liver issues are, but I do know that it does not affect everyone. I have never had an issue with my liver, although I know someone who had such a problem with it he had a liver tx when he was a kid. That's good that you're getting tested though so that you will know once and for all why you're having these issues. Do you have any digestive issues as well? The other thing to keep in mind is that there are a lot of other things out there that are similar to CF respiratory-wise.

I really wish researchers would do some valid research on carrier symptoms. I think that is such an important thing to test for. I have heard of so many people that have CF-like issues who are carriers.

Well, good luck and let us know the outcome.

 

[rubyroselee]

Hi Jen,

I don't know how common the liver issues are, but I do know that it does not affect everyone. I have never had an issue with my liver, although I know someone who had such a problem with it he had a liver tx when he was a kid. That's good that you're getting tested though so that you will know once and for all why you're having these issues. Do you have any digestive issues as well? The other thing to keep in mind is that there are a lot of other things out there that are similar to CF respiratory-wise.

I really wish researchers would do some valid research on carrier symptoms. I think that is such an important thing to test for. I have heard of so many people that have CF-like issues who are carriers.

Well, good luck and let us know the outcome.

 

[rubyroselee]

Hi Jen,

I don't know how common the liver issues are, but I do know that it does not affect everyone. I have never had an issue with my liver, although I know someone who had such a problem with it he had a liver tx when he was a kid. That's good that you're getting tested though so that you will know once and for all why you're having these issues. Do you have any digestive issues as well? The other thing to keep in mind is that there are a lot of other things out there that are similar to CF respiratory-wise.

I really wish researchers would do some valid research on carrier symptoms. I think that is such an important thing to test for. I have heard of so many people that have CF-like issues who are carriers.

Well, good luck and let us know the outcome.

 

[rubyroselee]

Hi Jen,

I don't know how common the liver issues are, but I do know that it does not affect everyone. I have never had an issue with my liver, although I know someone who had such a problem with it he had a liver tx when he was a kid. That's good that you're getting tested though so that you will know once and for all why you're having these issues. Do you have any digestive issues as well? The other thing to keep in mind is that there are a lot of other things out there that are similar to CF respiratory-wise.

I really wish researchers would do some valid research on carrier symptoms. I think that is such an important thing to test for. I have heard of so many people that have CF-like issues who are carriers.

Well, good luck and let us know the outcome.

 

[rubyroselee]

Hi Jen,
<br />
<br />I don't know how common the liver issues are, but I do know that it does not affect everyone. I have never had an issue with my liver, although I know someone who had such a problem with it he had a liver tx when he was a kid. That's good that you're getting tested though so that you will know once and for all why you're having these issues. Do you have any digestive issues as well? The other thing to keep in mind is that there are a lot of other things out there that are similar to CF respiratory-wise.
<br />
<br />I really wish researchers would do some valid research on carrier symptoms. I think that is such an important thing to test for. I have heard of so many people that have CF-like issues who are carriers.
<br />
<br />Well, good luck and let us know the outcome.

 

[Mommy2Zeke]

I do have digestive issues, (diagnosed IBS, GERD, lactose intolerant), but I am pancreatic sufficient.

 

[Mommy2Zeke]

I do have digestive issues, (diagnosed IBS, GERD, lactose intolerant), but I am pancreatic sufficient.

 

[Mommy2Zeke]

I do have digestive issues, (diagnosed IBS, GERD, lactose intolerant), but I am pancreatic sufficient.

 

[Mommy2Zeke]

I do have digestive issues, (diagnosed IBS, GERD, lactose intolerant), but I am pancreatic sufficient.

 

[Mommy2Zeke]

I do have digestive issues, (diagnosed IBS, GERD, lactose intolerant), but I am pancreatic sufficient.

 

[BaylorCrew07]

Hey Jen,

Your symptoms sound a lot like mine, however I do not have the joint pain. I had a bone scan to test for osteoporosis; I don't have it, but mine was on the lower end of normal, so my dr has my taking calcium supplements, etc.

Prior to being dx with CF I was dx chronic sinusitis (3 sinus surgeries), frequent/recurring bronchitis, etc. I started researching CF as a possibility after having bronchitis for about a year that never went away.

I have never been dx with IBS or anything, and am pancreatic sufficient, but do have digestive issues. Prior to being dx w/ CF, I thought I had severe espisodes of constipation - which I now think was probably a partial blockage? I don't know what it was, but it ended me in the ER numerous times because the pain was so bad and I couldn't get off the floor.

When are you supposed to get your test results back? I'm sorry you're playing the waiting game; I know it's hard. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Hope you have an answer soon!

 

[BaylorCrew07]

Hey Jen,

Your symptoms sound a lot like mine, however I do not have the joint pain. I had a bone scan to test for osteoporosis; I don't have it, but mine was on the lower end of normal, so my dr has my taking calcium supplements, etc.

Prior to being dx with CF I was dx chronic sinusitis (3 sinus surgeries), frequent/recurring bronchitis, etc. I started researching CF as a possibility after having bronchitis for about a year that never went away.

I have never been dx with IBS or anything, and am pancreatic sufficient, but do have digestive issues. Prior to being dx w/ CF, I thought I had severe espisodes of constipation - which I now think was probably a partial blockage? I don't know what it was, but it ended me in the ER numerous times because the pain was so bad and I couldn't get off the floor.

When are you supposed to get your test results back? I'm sorry you're playing the waiting game; I know it's hard. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Hope you have an answer soon!

 

[BaylorCrew07]

Hey Jen,

Your symptoms sound a lot like mine, however I do not have the joint pain. I had a bone scan to test for osteoporosis; I don't have it, but mine was on the lower end of normal, so my dr has my taking calcium supplements, etc.

Prior to being dx with CF I was dx chronic sinusitis (3 sinus surgeries), frequent/recurring bronchitis, etc. I started researching CF as a possibility after having bronchitis for about a year that never went away.

I have never been dx with IBS or anything, and am pancreatic sufficient, but do have digestive issues. Prior to being dx w/ CF, I thought I had severe espisodes of constipation - which I now think was probably a partial blockage? I don't know what it was, but it ended me in the ER numerous times because the pain was so bad and I couldn't get off the floor.

When are you supposed to get your test results back? I'm sorry you're playing the waiting game; I know it's hard. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Hope you have an answer soon!

 

[BaylorCrew07]

Hey Jen,

Your symptoms sound a lot like mine, however I do not have the joint pain. I had a bone scan to test for osteoporosis; I don't have it, but mine was on the lower end of normal, so my dr has my taking calcium supplements, etc.

Prior to being dx with CF I was dx chronic sinusitis (3 sinus surgeries), frequent/recurring bronchitis, etc. I started researching CF as a possibility after having bronchitis for about a year that never went away.

I have never been dx with IBS or anything, and am pancreatic sufficient, but do have digestive issues. Prior to being dx w/ CF, I thought I had severe espisodes of constipation - which I now think was probably a partial blockage? I don't know what it was, but it ended me in the ER numerous times because the pain was so bad and I couldn't get off the floor.

When are you supposed to get your test results back? I'm sorry you're playing the waiting game; I know it's hard. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Hope you have an answer soon!

 

[BaylorCrew07]

Hey Jen,
<br />
<br />Your symptoms sound a lot like mine, however I do not have the joint pain. I had a bone scan to test for osteoporosis; I don't have it, but mine was on the lower end of normal, so my dr has my taking calcium supplements, etc.
<br />
<br />Prior to being dx with CF I was dx chronic sinusitis (3 sinus surgeries), frequent/recurring bronchitis, etc. I started researching CF as a possibility after having bronchitis for about a year that never went away.
<br />
<br />I have never been dx with IBS or anything, and am pancreatic sufficient, but do have digestive issues. Prior to being dx w/ CF, I thought I had severe espisodes of constipation - which I now think was probably a partial blockage? I don't know what it was, but it ended me in the ER numerous times because the pain was so bad and I couldn't get off the floor.
<br />
<br />When are you supposed to get your test results back? I'm sorry you're playing the waiting game; I know it's hard. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Hope you have an answer soon!