My daughter Jenn was diagnosed with cystic fibrosis when she was twelve years old. The only way that i knew something was wrong, was because she had been having really bad bouts of bronchitis and other respiratory illnesses. How are you coping with this, and how can i learn more about CF????<a target=new class=ftalternatingbarlinklarge href="mailto:nobody@nowhere.com">Text</a>
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QUESTIONS!!!!
- Thread starter anonymous
- Start date
You have come to the right board for help, questions, comments, discussions. You will always get honest answers here and all the support you could ask for from other parents, patients and care givers. Check out cff.org for general info and they will refer you to other sites for more info, but ask questions here for more specific info. My daughter, Emily, just turned 21. It takes a while to learn to live with CF. She was diagnosed at two days of age, so we have had a long time. She is doing pretty well at college in Boston and comes home weekends to see her family (really her boyfriend ...LOL!)
Hang in there and ask away!
Hang in there and ask away!
there is a really good book called "Cystic Fibrosis A guide for patient and Family", It is by David M. Orenstein Another good place to get answers is your doctor. If you go to a Cystic Fibrosis clinic they can help you get answers to lots of questions. There are support groups also. I don't know where you live but contact a children's hopital and have them send you some information or the Cystic Fibrosis foundation. This book has lots of information in it. I hope that it helps.
Emily65Roses
New member
Oh man! You figured me out! If Mike lived in Boston, I'd never come home. <img src="i/expressions/face-icon-small-wink.gif" border="0">
I was diagnosed in the Army at the age of 20. I am 36 now, but I my FEV1 is 18% now. I am waiting for a lung transplant and I have made a daily diary for myself. It may not be what you are looking for, but it may give you a little insight. I also have a few links for CF as well. I adding to it day by day.
Here is the link. http://lungfordan.blogspot.com
Hope this helps.
Dan 36 w/CF
Here is the link. http://lungfordan.blogspot.com
Hope this helps.
Dan 36 w/CF