I'm not sure how to start this, so heregoes.
I am currently taking a college level course. Our assignment is to interview parents of a child with "a serious chromosomal or genetic problem". However, I feel this is very intrusive on someone's life. Especially since the instructor told us that if we don't know anybody we are to call a foundation and get paired up with someone. She wants us to ask personal questions to people we don't even know.
I felt that if I were to do this people would feel pressured into answering questions they may not feel comfortable with. I did not want this to be the case, so I thought I would come to a message board.
It would really help me out if you could take the time to answer a question that you feel comfortable with. The questions are:
1) When and how did you find out that your child had a medical complication?
2) What was your first reaction to it?
3) Did this initally cause any stress between you and your partner?
4) If you found out in utero, what was the deciding factor that you were going to keep your child?
5) Was your partner supportive of your decision?
6) Did the decision cause any additional stress on you?
7) Were your family and friends there for you?
8) How has your life changed since the birth?
9) To what degree is the condition? Does it impair daily life?
10) Did having this child prevent you from having any others? Why?
11) Is your child still alive?
12) If you could do it over again, would you make the same decision?
13) Are there any questions you wish I had asked?
14) Is there any other information you think would be useful for me to know?
Thank you for taking the time to read this post.
~Julie
I am currently taking a college level course. Our assignment is to interview parents of a child with "a serious chromosomal or genetic problem". However, I feel this is very intrusive on someone's life. Especially since the instructor told us that if we don't know anybody we are to call a foundation and get paired up with someone. She wants us to ask personal questions to people we don't even know.
I felt that if I were to do this people would feel pressured into answering questions they may not feel comfortable with. I did not want this to be the case, so I thought I would come to a message board.
It would really help me out if you could take the time to answer a question that you feel comfortable with. The questions are:
1) When and how did you find out that your child had a medical complication?
2) What was your first reaction to it?
3) Did this initally cause any stress between you and your partner?
4) If you found out in utero, what was the deciding factor that you were going to keep your child?
5) Was your partner supportive of your decision?
6) Did the decision cause any additional stress on you?
7) Were your family and friends there for you?
8) How has your life changed since the birth?
9) To what degree is the condition? Does it impair daily life?
10) Did having this child prevent you from having any others? Why?
11) Is your child still alive?
12) If you could do it over again, would you make the same decision?
13) Are there any questions you wish I had asked?
14) Is there any other information you think would be useful for me to know?
Thank you for taking the time to read this post.
~Julie