Hi, I am not sure where to post this, but I saw similar posts here so .... here goes. I am a mother, through adoption, to a 2 yr old. From the day she came hom she had problems with diarrhea. We were sent to a GI who said she had a milk protein allergy and because of all the antibiotics she was on from sinus ifections she had probably killed the "good" bacteria in her intestines and gave us a powder to add to her formula to build the good bacteria back and put her on Nutramigen. 2 yrs later, she has no problems with milk, but still has diarrhea on and off. GI says she has "chronic diarrhea of infancy" ... and she is almost 3 now.
She is very petite and has been in and out of "failure to thrive". Her weight is actually decent at the 25% but her height is off the charts in the negatives.
She has had more sinus infections then I can count, pneumonia twice this yr, bronchitis once, and now has some sort of respiratory bug I'm taking her into the pedi about today. She has had her adnoids taken out and 2 sets of ear tubes placed. Her ENT said that it was an infection in her adnoids causing a years worth of sinus infections that weren't responding to antibiotics. That worked for 2 months, but now it is starting over again.
She has had a FISH genetic testing to rule out chromosomal abnormalities because of "short stature". My question is, would that have caught CF?
My sister is a respiratory therapist at texas children's and she is pushing me to have her tested for CF. I have been reading posts here for hours and hours and she seems similar to other stories. I guess part of me just wants an answer, but this isnt the answer i want. When she went to her cariologist (she had a tiny ventricular septal defect as a baby that closed itself), she wanted her pedi to test her for CF, but the pedi said she didnt look like a CF kid. But, reading here, I found that there is no "look". Now, due to insurance change, we have a new pedi and I was thinking of asking her for the sweat test.
Sorry for the ramble. Just a worried mom looking for answers.
She is very petite and has been in and out of "failure to thrive". Her weight is actually decent at the 25% but her height is off the charts in the negatives.
She has had more sinus infections then I can count, pneumonia twice this yr, bronchitis once, and now has some sort of respiratory bug I'm taking her into the pedi about today. She has had her adnoids taken out and 2 sets of ear tubes placed. Her ENT said that it was an infection in her adnoids causing a years worth of sinus infections that weren't responding to antibiotics. That worked for 2 months, but now it is starting over again.
She has had a FISH genetic testing to rule out chromosomal abnormalities because of "short stature". My question is, would that have caught CF?
My sister is a respiratory therapist at texas children's and she is pushing me to have her tested for CF. I have been reading posts here for hours and hours and she seems similar to other stories. I guess part of me just wants an answer, but this isnt the answer i want. When she went to her cariologist (she had a tiny ventricular septal defect as a baby that closed itself), she wanted her pedi to test her for CF, but the pedi said she didnt look like a CF kid. But, reading here, I found that there is no "look". Now, due to insurance change, we have a new pedi and I was thinking of asking her for the sweat test.
Sorry for the ramble. Just a worried mom looking for answers.