Recommended Pediatricians North of Boston, MA?

[arcjoshua]

<P>Hi all, I've been reading for about a year now but this is my first post. My son is nearly 1.5 years old, and was diagnosed with CF through the newborn screen. I want to thank all of you for sharing your questions, stories, and words of encouragement to each other so openly here. I've learned that we share many of the same fears and frustrations, I've found answers to many of my questions, and most importantly this reminds me that CF is manageable and we are not alone. Thanks so much for all of that!</P>
<P>I'm hoping that one/some of you live North of Boston in Massachusetts and could recommend a good pediatrician who currently cares for your litte one(s) with CF? I'm looking for someone who at least has a decent understanding of CF, and some wish list criteria would include (1) willingness to follow the infection control policies the CFF recommends (gloves/gowns in patient room, limit or eliminate wait times in waiting rooms, etc), and (2) proactively consults with your CF doctor when illnesses come up. If you have other criteria that you think make your Pedi a great one, feel free to share!</P>
<P>There are lots of things we like about our current Pedi, but a few things that really drive us crazy. It's a bigger practice with multiple MD's and FNP's, so we don't often see the same person twice (which always makes us wonder if they are connecting the dots between visits or illnesses). Some of the providers are great, and some rub us the wrong way. Our biggest issue is the office staff, who we think are generally not professional and occasionally are downright rude and unhelpful. I won't mention the specific name of the practice, and if you don't want to mention specific names please PM me rather than post a reply.</P>
<P>Thanks!</P>

 

[arcjoshua]

<P>Hi all, I've been reading for about a year now but this is my first post. My son is nearly 1.5 years old, and was diagnosed with CF through the newborn screen. I want to thank all of you for sharing your questions, stories, and words of encouragementto each other so openly here. I've learned that we share many of the same fears and frustrations, I've found answers to many of my questions, and most importantly this reminds me that CF is manageable and we are not alone. Thanks so much for all of that!</P>
<P>I'm hoping that one/some of you live North of Boston in Massachusetts and could recommend a good pediatrician who currently cares for your litte one(s) with CF? I'm looking for someone who at least has a decent understanding of CF, and some wish list criteria would include (1) willingness to follow the infection control policies the CFF recommends (gloves/gowns in patient room, limit or eliminate wait times in waiting rooms, etc), and (2) proactively consults with your CF doctor when illnesses come up. If you have other criteria that you think make your Pedi a great one, feel free to share!</P>
<P>There are lots of things we like about our current Pedi, but a few things that really drive us crazy. It's a bigger practice with multiple MD's and FNP's, so we don't often see the same person twice (whichalways makes us wonder if they are connecting the dots between visits or illnesses). Some of the providers are great, and some rub us the wrong way. Our biggest issue is the office staff, who we think are generally notprofessional and occasionally are downright rude and unhelpful. I won't mention the specific name of the practice, and if you don't want to mention specific names please PM me rather than post a reply.</P>
<P>Thanks!</P>

 

[arcjoshua]

<P>Hi all, I've been reading for about a year now but this is my first post. My son is nearly 1.5 years old, and was diagnosed with CF through the newborn screen. I want to thank all of you for sharing your questions, stories, and words of encouragementto each other so openly here. I've learned that we share many of the same fears and frustrations, I've found answers to many of my questions, and most importantly this reminds me that CF is manageable and we are not alone. Thanks so much for all of that!</P>
<P>I'm hoping that one/some of you live North of Boston in Massachusetts and could recommend a good pediatrician who currently cares for your litte one(s) with CF? I'm looking for someone who at least has a decent understanding of CF, and some wish list criteria would include (1) willingness to follow the infection control policies the CFF recommends (gloves/gowns in patient room, limit or eliminate wait times in waiting rooms, etc), and (2) proactively consults with your CF doctor when illnesses come up. If you have other criteria that you think make your Pedi a great one, feel free to share!</P>
<P>There are lots of things we like about our current Pedi, but a few things that really drive us crazy. It's a bigger practice with multiple MD's and FNP's, so we don't often see the same person twice (whichalways makes us wonder if they are connecting the dots between visits or illnesses). Some of the providers are great, and some rub us the wrong way. Our biggest issue is the office staff, who we think are generally notprofessional and occasionally are downright rude and unhelpful. I won't mention the specific name of the practice, and if you don't want to mention specific names please PM me rather than post a reply.</P>
<P>Thanks!</P>

 

[Printer]

Josh:

I too am north of Boston. Your son should be seen at an approved CF Center. Mass General Hospital, Childrens Hospital in Boston and U Mass Hospital in Worcester are all approved. Sand me a personal message if you need to talk.

Bill

 

[Printer]

Josh:

I too am north of Boston. Your son should be seen at an approved CF Center. Mass General Hospital, Childrens Hospital in Boston and U Mass Hospital in Worcester are all approved. Sand me a personal message if you need to talk.

Bill

 

[Printer]

Josh:
<br />
<br />I too am north of Boston. Your son should be seen at an approved CF Center. Mass General Hospital, Childrens Hospital in Boston and U Mass Hospital in Worcester are all approved. Sand me a personal message if you need to talk.
<br />
<br />Bill

 

[arcjoshua]

Hi Bill,
Thanks for the quick reply! He does see the CF specialists at one of the clinics in Boston, but I'm looking for a good local Pedi North of Boston for him to see for all the non-CF stuff (well visits, vaccines, etc).

Thanks!

 

[arcjoshua]

Hi Bill,
Thanks for the quick reply! He does see the CF specialists at one of the clinics in Boston, but I'm looking for a good local Pedi North of Boston for him to see for all the non-CF stuff (well visits, vaccines, etc).

Thanks!

 

[arcjoshua]

Hi Bill,
<br />Thanks for the quick reply! He does see the CF specialists at one of the clinics in Boston, but I'm looking for a good local Pedi North of Boston for him to see for all the non-CF stuff (well visits, vaccines, etc).
<br />
<br />Thanks!

 

[Printer]

In that case ask your CF Doctor to give you a name.

Bill

 

[Printer]

In that case ask your CF Doctor to give you a name.

Bill

 

[Printer]

In that case ask your CF Doctor to give you a name.
<br />
<br />Bill

 

[sdelorenzo]

How close are you to your CF Center? The reason I ask is that I take my kids only to see their CF doctor if they are having anything CF related. If they have a fever, rash, or anything unrelated to CF then I go to the pediatrician. Their pediatrician has sent us once or twice to the Children's hospital if he unable to determine what is causing a fever, etc. So if you live close to the CF Center than it really isn't important for the pediatrician and pulmonologist to have a good relationship because you will be in direct contact with the pulmonologist with everything CF related (weight, lung issues) and skip the pediatrician.

Also, why would the pediatrician need to follow CF guidelines of infection control (gloves/gowns in patient room). I get that you don't want to be exposed to other sick kids at the pediatricians office, so hopefully they would help you out if the wait is too long. As far as wearing gloves and gowns, that is usually due to cross infection from CF patient to CF patient that you have in the CF center and not in the pediatricians office. Congratulations on the baby you are expecting in January!
Sharon, mom of Sophia, 10, and Jack, 8 both with CF, Grant, 2 and Paige, 1 both without CF

 

[sdelorenzo]

How close are you to your CF Center? The reason I ask is that I take my kids only to see their CF doctor if they are having anything CF related. If they have a fever, rash, or anything unrelated to CF then I go to the pediatrician. Their pediatrician has sent us once or twice to the Children's hospital if he unable to determine what is causing a fever, etc. So if you live close to the CF Center than it really isn't important for the pediatrician and pulmonologist to have a good relationship because you will be in direct contact with the pulmonologist with everything CF related (weight, lung issues) and skip the pediatrician.

Also, why would the pediatrician need to follow CF guidelines of infection control (gloves/gowns in patient room). I get that you don't want to be exposed to other sick kids at the pediatricians office, so hopefully they would help you out if the wait is too long. As far as wearing gloves and gowns, that is usually due to cross infection from CF patient to CF patient that you have in the CF center and not in the pediatricians office. Congratulations on the baby you are expecting in January!
Sharon, mom of Sophia, 10, and Jack, 8 both with CF, Grant, 2 and Paige, 1 both without CF

 

[sdelorenzo]

How close are you to your CF Center? The reason I ask is that I take my kids only to see their CF doctor if they are having anything CF related. If they have a fever, rash, or anything unrelated to CF then I go to the pediatrician. Their pediatrician has sent us once or twice to the Children's hospital if he unable to determine what is causing a fever, etc. So if you live close to the CF Center than it really isn't important for the pediatrician and pulmonologist to have a good relationship because you will be in direct contact with the pulmonologist with everything CF related (weight, lung issues) and skip the pediatrician.
<br />
<br />Also, why would the pediatrician need to follow CF guidelines of infection control (gloves/gowns in patient room). I get that you don't want to be exposed to other sick kids at the pediatricians office, so hopefully they would help you out if the wait is too long. As far as wearing gloves and gowns, that is usually due to cross infection from CF patient to CF patient that you have in the CF center and not in the pediatricians office. Congratulations on the baby you are expecting in January!
<br />Sharon, mom of Sophia, 10, and Jack, 8 both with CF, Grant, 2 and Paige, 1 both without CF

 

[Jane]

The clinic social worker should be able to give you some names. Once you find someone, the clinic nurses or social worker can contact them with CF specific recommendations.

 

[Jane]

The clinic social worker should be able to give you some names. Once you find someone, the clinic nurses or social worker can contact them with CF specific recommendations.

 

[Jane]

The clinic social worker should be able to give you some names. Once you find someone, the clinic nurses or social worker can contact them with CF specific recommendations.