Ok so my son tested positive for CF in his new born screening. I am stationed in Germany and was sent to a german Dr who performed 2 sweat test which apparently were inconclusive, a stool sample test which showed his pancrease was functioning normally. Now they want to put him under and perform a rectal biopsy - they are telling us this is the #1 way to accuratly diagnosis his status. His american pediatrician said this was an unnecessary procedure - my concern is that although he is developing fine he has a congestion since he was born and it seems to be getting worse. On friday they finally gave me some eye drop with an antibiotic which apparently is great for up the nose of a bay....army medicine go figure. But it has not made any improvement. Has anyone else out there had the biopsy done. Is there a chance my son could develop more respiratory issues as he gets older. I seriously want to get reassigned back to the states so that I can have proper medical care - the language barrier and lack of communication between the german drs and my american dr is driving me crazy. Every time I have a question my american Dr has to email someone in the states for an answer. Help!
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rectal biopsy?
- Thread starter armymom74
- Start date
Ok so my son tested positive for CF in his new born screening. I am stationed in Germany and was sent to a german Dr who performed 2 sweat test which apparently were inconclusive, a stool sample test which showed his pancrease was functioning normally. Now they want to put him under and perform a rectal biopsy - they are telling us this is the #1 way to accuratly diagnosis his status. His american pediatrician said this was an unnecessary procedure - my concern is that although he is developing fine he has a congestion since he was born and it seems to be getting worse. On friday they finally gave me some eye drop with an antibiotic which apparently is great for up the nose of a bay....army medicine go figure. But it has not made any improvement. Has anyone else out there had the biopsy done. Is there a chance my son could develop more respiratory issues as he gets older. I seriously want to get reassigned back to the states so that I can have proper medical care - the language barrier and lack of communication between the german drs and my american dr is driving me crazy. Every time I have a question my american Dr has to email someone in the states for an answer. Help!
Ok so my son tested positive for CF in his new born screening. I am stationed in Germany and was sent to a german Dr who performed 2 sweat test which apparently were inconclusive, a stool sample test which showed his pancrease was functioning normally. Now they want to put him under and perform a rectal biopsy - they are telling us this is the #1 way to accuratly diagnosis his status. His american pediatrician said this was an unnecessary procedure - my concern is that although he is developing fine he has a congestion since he was born and it seems to be getting worse. On friday they finally gave me some eye drop with an antibiotic which apparently is great for up the nose of a bay....army medicine go figure. But it has not made any improvement. Has anyone else out there had the biopsy done. Is there a chance my son could develop more respiratory issues as he gets older. I seriously want to get reassigned back to the states so that I can have proper medical care - the language barrier and lack of communication between the german drs and my american dr is driving me crazy. Every time I have a question my american Dr has to email someone in the states for an answer. Help!
Ok so my son tested positive for CF in his new born screening. I am stationed in Germany and was sent to a german Dr who performed 2 sweat test which apparently were inconclusive, a stool sample test which showed his pancrease was functioning normally. Now they want to put him under and perform a rectal biopsy - they are telling us this is the #1 way to accuratly diagnosis his status. His american pediatrician said this was an unnecessary procedure - my concern is that although he is developing fine he has a congestion since he was born and it seems to be getting worse. On friday they finally gave me some eye drop with an antibiotic which apparently is great for up the nose of a bay....army medicine go figure. But it has not made any improvement. Has anyone else out there had the biopsy done. Is there a chance my son could develop more respiratory issues as he gets older. I seriously want to get reassigned back to the states so that I can have proper medical care - the language barrier and lack of communication between the german drs and my american dr is driving me crazy. Every time I have a question my american Dr has to email someone in the states for an answer. Help!
Ok so my son tested positive for CF in his new born screening. I am stationed in Germany and was sent to a german Dr who performed 2 sweat test which apparently were inconclusive, a stool sample test which showed his pancrease was functioning normally. Now they want to put him under and perform a rectal biopsy - they are telling us this is the #1 way to accuratly diagnosis his status. His american pediatrician said this was an unnecessary procedure - my concern is that although he is developing fine he has a congestion since he was born and it seems to be getting worse. On friday they finally gave me some eye drop with an antibiotic which apparently is great for up the nose of a bay....army medicine go figure. But it has not made any improvement. Has anyone else out there had the biopsy done. Is there a chance my son could develop more respiratory issues as he gets older. I seriously want to get reassigned back to the states so that I can have proper medical care - the language barrier and lack of communication between the german drs and my american dr is driving me crazy. Every time I have a question my american Dr has to email someone in the states for an answer. Help!
mistylavon
New member
I've never heard of a rectal biopsy for a CF diagnosis. My daughter had that done before we found out she had CF but it was to test for Hirschsprung's Disease, not CF. I will you the best of luck on this.
mistylavon
New member
I've never heard of a rectal biopsy for a CF diagnosis. My daughter had that done before we found out she had CF but it was to test for Hirschsprung's Disease, not CF. I will you the best of luck on this.
mistylavon
New member
I've never heard of a rectal biopsy for a CF diagnosis. My daughter had that done before we found out she had CF but it was to test for Hirschsprung's Disease, not CF. I will you the best of luck on this.
mistylavon
New member
I've never heard of a rectal biopsy for a CF diagnosis. My daughter had that done before we found out she had CF but it was to test for Hirschsprung's Disease, not CF. I will you the best of luck on this.
mistylavon
New member
I've never heard of a rectal biopsy for a CF diagnosis. My daughter had that done before we found out she had CF but it was to test for Hirschsprung's Disease, not CF. I will you the best of luck on this.
rubyroselee
New member
Rectal biopsies are usually done for other digestive or autoimmune disorders, not CF. Maybe they were testing something else? The best way to know if your son has CF is a genetic test if sweat tests are inconclusive.
rubyroselee
New member
Rectal biopsies are usually done for other digestive or autoimmune disorders, not CF. Maybe they were testing something else? The best way to know if your son has CF is a genetic test if sweat tests are inconclusive.
rubyroselee
New member
Rectal biopsies are usually done for other digestive or autoimmune disorders, not CF. Maybe they were testing something else? The best way to know if your son has CF is a genetic test if sweat tests are inconclusive.
rubyroselee
New member
Rectal biopsies are usually done for other digestive or autoimmune disorders, not CF. Maybe they were testing something else? The best way to know if your son has CF is a genetic test if sweat tests are inconclusive.
rubyroselee
New member
Rectal biopsies are usually done for other digestive or autoimmune disorders, not CF. Maybe they were testing something else? The best way to know if your son has CF is a genetic test if sweat tests are inconclusive.