REECES' RESULTS FROM BRONCH

MOME2RT

New member
It's good to be back. I used to be under the name cfmom2rt. The last time I was on in Oct. I believe I was gathereing info on Bronchs, thanks for the easement (sp) Reece did ok. He was intabated & the dr. had to use a bigger tube then she wanted, so he had a swollen & irrated trachea afterwards, but was given an imflammatory. His o2 was in the mid 80s when he came out so of course he was on o2. He stayed in the hosptial for 2 days, due to his o2. Oh yeah, also when he came out, he coughed continously (they did albuertrol treatments) that seemed to help a little. This happened Nov.17th. The dr. found out that his lower left lobe was completely damaged. ( we sortta knew that cuz when he would get sick, thats where he would always be crackly) and his left & right upper lobes somewhat damaged, but not as bad as the lower. She sent us home for the Thanksgiving holidays unwillingly due to his heart rate up so high (140s-160s) just playing around the bed. She said it could be due to the albuetrol every 4 hrs. So she put him on Xopenox. Anyways she wanted us back Nov.28th to treat what she found aggressively w/ iv antibotics (vancamyicin) He did culture positive for MRSA again<img src="i/expressions/face-icon-small-sad.gif" border="0"> after a yr. testing neg. we NEVER got off contact!!! So we were in the hosptial 11 days then we got to go home on iv antiobotics for 2 more wks. he goes back to the dr. Jan 6th, It seems EVERYTIME we go in for a clinic visit we get admitted, so please keep reece in your prayers....thank you. Again its good to be back!!!<img src="i/expressions/face-icon-small-smile.gif" border="0">
Leah ~ mommy 2 Reece w/CF (3yrs old) <img src="i/expressions/angel_ani.gif" border="0">
 

JazzysMom

New member
I am sorry to hear this have been a bit bumpy. At least now the doctor has a better idea of what his lungs are like & can work from there. Its frustrating & seems like forever when you go thru it, but I have faith that this will pass. Keep plugging away. You are doing a great job & remember that we are here to vent if you feel like you are going to explode!
 

anonymous

New member
Hi --

Keep in mind, that the kids seem to be sicker when they are young. At least that has been my experience. The first few years with my girls were very difficult, neverending problems. But, now we can go one to two years with no hospital incidents. I was told that their lungs and airways are bigger so the mucous can be expelled easier.

Good luck -- keep the faith. Debra (mom of two girls w/cf)

PS - the girls are 12 and 9 now.
 

MOME2RT

New member
Thanks for asking...he has a cold right now ...the one going around here<img src="i/expressions/face-icon-small-sad.gif" border="0"> He goes to the clinic this fri. & of course Im nervous)
Leah Mommy 2 Reece
 

anonymous

New member
Ohh I wish I could say that our road has gotten easier as my daughter has gotten older - but, unfortunately for us it has been the opposite. She was diagnosed at 15 months and was not hospitalized the first time until age 4. From age 4 - 9 she was in the hospital about once a year. Then from age 10 - present (12) we've been in every 3-4 months. Her doctor has said that alot of her pulmonary changes are due to going through puberty and that girls do not fair as well as the boys. I just hope and pray to get out of this cycle very soon - I am so tired.
 

JazzysMom

New member
I absolutely believe puberty & the hormonal continuartoin affected me & still do. It levels out a bit, but I still need to be careful whe I am do for my period. Guys dont get it, but its really hard on our bodiees dealing with menustrating & CF!
 
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