I'm just curious, I read several responses to Jennifershope survey of people who skip their nebs all together. I'm just wondering how you can do that without it effecting your breathing? I know if I skip my treatment, then I'm pretty much coughing and congested most of the day. Maybe you guys are in better shape than I am, you know, me being an "oldie" and all (LOL). Just curious!!
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Related to Jennifershope survey
- Thread starter Allisa35
- Start date
well, like i said in my post, if i do nebs and physio when my lungs arent moist and productive, it makes my breathing worse and im unable to cough any gunk up, and we all know that leads to infection. thats just the way my body reacts. so i either let my lungs be when im well or cave into my doctors demands, do the treatments and waste a whole bunch of time and effort by getting nowhere. im not a 'mild' case either.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Allisa35</b></i>
I'm just curious, I read several responses to Jennifershope survey of people who skip their nebs all together. I'm just wondering how you can do that without it effecting your breathing? I know if I skip my treatment, then I'm pretty much coughing and congested most of the day. Maybe you guys are in better shape than I am, you know, me being an "oldie" and all (LOL). Just curious!!</end quote></div>
I cant go for more than one days without some type of treatment. I do feel the affects, but its not enough to stop me until its been a few days. The problem with skipping a few days is that it takes me a lot longer to clear myself out. WHen I was younger I didnt have the affects as obvious!
I'm just curious, I read several responses to Jennifershope survey of people who skip their nebs all together. I'm just wondering how you can do that without it effecting your breathing? I know if I skip my treatment, then I'm pretty much coughing and congested most of the day. Maybe you guys are in better shape than I am, you know, me being an "oldie" and all (LOL). Just curious!!</end quote></div>
I cant go for more than one days without some type of treatment. I do feel the affects, but its not enough to stop me until its been a few days. The problem with skipping a few days is that it takes me a lot longer to clear myself out. WHen I was younger I didnt have the affects as obvious!
JennifersHope
New member
I don't usually feel to much better when I do my treatments and it is a gradual decrease that happens when I don't do them, so gradual that I don't realize anything.
I am not the norm when it comes to CF though so I am not a good one to be compared to..
FYI I did a treatment last night.... all of them minus the vest.. I am working on it..
Jennifer
I am not the norm when it comes to CF though so I am not a good one to be compared to..
FYI I did a treatment last night.... all of them minus the vest.. I am working on it..
Jennifer
Scarlett81
New member
Even if i'm too tired to do the vest I'll always do my aerosals and try to force cough. But even that i try not to do often. If I skip two days, and even one day if I'm really stressed-I'll notice it. I get so tight, and I slump (my posture), I wheeze.
I have this leg condition, that comes and goes where my legs swell-and I think its oxygen related. I've had numerous doctors and test done on it. But I notice that if I'm going through something stressful in life, and then I skip about 2 therapies, for SURE I will have a flare up.
OK-I'll be honest here. I skipped therapy last night and this morning too! Busy weekend. And right now my legs are swollen and I'm tight in the chest.
After a while you notice patterns.
I try to view skipping treatments as a bank account. If I HAVE to skip, I take a 'loan'. But it has to be paid back right away! If I accumulate too many loans-I pay the price by getting tired, cranky, sick and losing my freedom. I think this is a good analogy to use with kids with cf.
I have this leg condition, that comes and goes where my legs swell-and I think its oxygen related. I've had numerous doctors and test done on it. But I notice that if I'm going through something stressful in life, and then I skip about 2 therapies, for SURE I will have a flare up.
OK-I'll be honest here. I skipped therapy last night and this morning too! Busy weekend. And right now my legs are swollen and I'm tight in the chest.
After a while you notice patterns.
I try to view skipping treatments as a bank account. If I HAVE to skip, I take a 'loan'. But it has to be paid back right away! If I accumulate too many loans-I pay the price by getting tired, cranky, sick and losing my freedom. I think this is a good analogy to use with kids with cf.
wanderlost
New member
I've never done nebs, so I am not really skipping them. I did start on HS, but I fins that unless I am feeling a bit under the weather and congested, it is more irritating than helpful. When i am congested, I think it works great at loosening things up and making my cough more productive. I have a pretty productive cough as it is, so sometimes the HS just makes me hoarse and wheezy and so i don't do it.