My 5 yr old grandson w/cf has had a g-tube for about 3 yrs.
He is now going great with oral feedings and gets only 6 oz. of tube feeding per day.
The decision will have to be made whether to leave the tube in ,just in case,or have it removed.
It would be a great back up,but it would also be great to not have to wear a shirt to the beach or be self conscious in front of others.
Anyone have any experience or thoughts on the subject?
He is now going great with oral feedings and gets only 6 oz. of tube feeding per day.
The decision will have to be made whether to leave the tube in ,just in case,or have it removed.
It would be a great back up,but it would also be great to not have to wear a shirt to the beach or be self conscious in front of others.
Anyone have any experience or thoughts on the subject?