I was looking for a little input. My daughter Maggie had a cold/cough last week, alot of kids in her nursery had it. It was not a "bad" cough, no fever, she's acting fine, energy good, appetite regular. She seems like her regular self. She has occasional boogers after I use Simply Saline, but her boogers are clear, NOT green or yellow. Anyway, She still has this occasional cough throughout the day, seems like in her throat, which is where the cold started. I just get nervous about this progressing to something else. She regularly cultures MRSA though her last culture was "normal". The only antibiotics that is oral that work for her is Zyvox, so we use that in moments that I call" zyvox moments" which this is not. She's doing her VEST 3 times a day, her ususal nebs, pulmicort, pulmozyme and albuterol. I encourage fluids. I increased her VESt time to 25 min instead of 20 min per session. HMM anything else we can do? My son No CF had a bad cough around the same time, in fact he was much, much worse than Maggie and he still has an occasional cough as well. I'm not worried about him. But for Maggie I get so worreid about missing something, We see her CF doc in March and I was thinking of asking him about Mucomyst. Anyway, I'm hoping this cough will fade out for Maggie and not turn into something else, like it has in the past. Any advice is appreciated. And yes I am a worrywart.
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Residual cough
- Thread starter Rebjane
- Start date
I was looking for a little input. My daughter Maggie had a cold/cough last week, alot of kids in her nursery had it. It was not a "bad" cough, no fever, she's acting fine, energy good, appetite regular. She seems like her regular self. She has occasional boogers after I use Simply Saline, but her boogers are clear, NOT green or yellow. Anyway, She still has this occasional cough throughout the day, seems like in her throat, which is where the cold started. I just get nervous about this progressing to something else. She regularly cultures MRSA though her last culture was "normal". The only antibiotics that is oral that work for her is Zyvox, so we use that in moments that I call" zyvox moments" which this is not. She's doing her VEST 3 times a day, her ususal nebs, pulmicort, pulmozyme and albuterol. I encourage fluids. I increased her VESt time to 25 min instead of 20 min per session. HMM anything else we can do? My son No CF had a bad cough around the same time, in fact he was much, much worse than Maggie and he still has an occasional cough as well. I'm not worried about him. But for Maggie I get so worreid about missing something, We see her CF doc in March and I was thinking of asking him about Mucomyst. Anyway, I'm hoping this cough will fade out for Maggie and not turn into something else, like it has in the past. Any advice is appreciated. And yes I am a worrywart.
I was looking for a little input. My daughter Maggie had a cold/cough last week, alot of kids in her nursery had it. It was not a "bad" cough, no fever, she's acting fine, energy good, appetite regular. She seems like her regular self. She has occasional boogers after I use Simply Saline, but her boogers are clear, NOT green or yellow. Anyway, She still has this occasional cough throughout the day, seems like in her throat, which is where the cold started. I just get nervous about this progressing to something else. She regularly cultures MRSA though her last culture was "normal". The only antibiotics that is oral that work for her is Zyvox, so we use that in moments that I call" zyvox moments" which this is not. She's doing her VEST 3 times a day, her ususal nebs, pulmicort, pulmozyme and albuterol. I encourage fluids. I increased her VESt time to 25 min instead of 20 min per session. HMM anything else we can do? My son No CF had a bad cough around the same time, in fact he was much, much worse than Maggie and he still has an occasional cough as well. I'm not worried about him. But for Maggie I get so worreid about missing something, We see her CF doc in March and I was thinking of asking him about Mucomyst. Anyway, I'm hoping this cough will fade out for Maggie and not turn into something else, like it has in the past. Any advice is appreciated. And yes I am a worrywart.
A few things you need to remember. Kids get sick (CF or not) & CFers have coughs. You are doing her treatments regularly & keeping a close eye on things. IF it gets worse then I would kick up the "worrywart mode". It might be post nasal drip irritating her throat causing the cough.
A few things you need to remember. Kids get sick (CF or not) & CFers have coughs. You are doing her treatments regularly & keeping a close eye on things. IF it gets worse then I would kick up the "worrywart mode". It might be post nasal drip irritating her throat causing the cough.
A few things you need to remember. Kids get sick (CF or not) & CFers have coughs. You are doing her treatments regularly & keeping a close eye on things. IF it gets worse then I would kick up the "worrywart mode". It might be post nasal drip irritating her throat causing the cough.
I don't have cf, but whatever I had -- bronchitis, sinus infection -- last month is still causing problems for me. Mainly I keep feeling stuff in my throat -- more than usual postnasal drip. It's clear and I'm pretty sure it's just my sinuses still draining. But I'm constantly having to clear my throat and cough the stuff out.
Sounds like you're doing all the right stuff.
Sounds like you're doing all the right stuff.
I don't have cf, but whatever I had -- bronchitis, sinus infection -- last month is still causing problems for me. Mainly I keep feeling stuff in my throat -- more than usual postnasal drip. It's clear and I'm pretty sure it's just my sinuses still draining. But I'm constantly having to clear my throat and cough the stuff out.
Sounds like you're doing all the right stuff.
Sounds like you're doing all the right stuff.
I don't have cf, but whatever I had -- bronchitis, sinus infection -- last month is still causing problems for me. Mainly I keep feeling stuff in my throat -- more than usual postnasal drip. It's clear and I'm pretty sure it's just my sinuses still draining. But I'm constantly having to clear my throat and cough the stuff out.
Sounds like you're doing all the right stuff.
Sounds like you're doing all the right stuff.
I hear you. When Max was first diagnosed, one of the doctors and a couple other aquaintances, asked if I wanted to talk to some other CFer mom's to offer inspiration, hope... Instead, two out of the three told me horror stories about how sick their kids were the first few years of life. How they'd get a cold and it'd turn into a staph infection, end up being hospitalized... I lived in fear every time he'd get a cold and all the what if's -- what if he's always in the hospital? What if he's always sick.
The other CF mom told me that her daughter mainly had sinus issues, had to have a few surgeries over the years and was heading off to the university and was going to be living in the dorms.
Back of my mind every time one of us gets sick I'm afraid he's going to get it. Or if he gets a little cough or sniffle it's going to turn into something much worse.. Worry, worry, worry. <img src="i/expressions/face-icon-small-smile.gif" border="0">
The other CF mom told me that her daughter mainly had sinus issues, had to have a few surgeries over the years and was heading off to the university and was going to be living in the dorms.
Back of my mind every time one of us gets sick I'm afraid he's going to get it. Or if he gets a little cough or sniffle it's going to turn into something much worse.. Worry, worry, worry. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I hear you. When Max was first diagnosed, one of the doctors and a couple other aquaintances, asked if I wanted to talk to some other CFer mom's to offer inspiration, hope... Instead, two out of the three told me horror stories about how sick their kids were the first few years of life. How they'd get a cold and it'd turn into a staph infection, end up being hospitalized... I lived in fear every time he'd get a cold and all the what if's -- what if he's always in the hospital? What if he's always sick.
The other CF mom told me that her daughter mainly had sinus issues, had to have a few surgeries over the years and was heading off to the university and was going to be living in the dorms.
Back of my mind every time one of us gets sick I'm afraid he's going to get it. Or if he gets a little cough or sniffle it's going to turn into something much worse.. Worry, worry, worry. <img src="i/expressions/face-icon-small-smile.gif" border="0">
The other CF mom told me that her daughter mainly had sinus issues, had to have a few surgeries over the years and was heading off to the university and was going to be living in the dorms.
Back of my mind every time one of us gets sick I'm afraid he's going to get it. Or if he gets a little cough or sniffle it's going to turn into something much worse.. Worry, worry, worry. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I hear you. When Max was first diagnosed, one of the doctors and a couple other aquaintances, asked if I wanted to talk to some other CFer mom's to offer inspiration, hope... Instead, two out of the three told me horror stories about how sick their kids were the first few years of life. How they'd get a cold and it'd turn into a staph infection, end up being hospitalized... I lived in fear every time he'd get a cold and all the what if's -- what if he's always in the hospital? What if he's always sick.
The other CF mom told me that her daughter mainly had sinus issues, had to have a few surgeries over the years and was heading off to the university and was going to be living in the dorms.
Back of my mind every time one of us gets sick I'm afraid he's going to get it. Or if he gets a little cough or sniffle it's going to turn into something much worse.. Worry, worry, worry. <img src="i/expressions/face-icon-small-smile.gif" border="0">
The other CF mom told me that her daughter mainly had sinus issues, had to have a few surgeries over the years and was heading off to the university and was going to be living in the dorms.
Back of my mind every time one of us gets sick I'm afraid he's going to get it. Or if he gets a little cough or sniffle it's going to turn into something much worse.. Worry, worry, worry. <img src="i/expressions/face-icon-small-smile.gif" border="0">
Ben just has a little virus where he fevered in the middle of it and threw me for a loop. We just watched and did extra CPT like you. It took about a week after the active part (7-10 days) to go back to regular mucus levels with no junk. Neither our clinic or pediatrician would give an antibiotic and I am so glad to see they really wait until necessary, because he cleared it fine. But I know what you mean. When my nonCfer gets sick I just never doubt she'll get through it...I hesitate and watch like a hawk with Ben.
We do inhaled GSH which I feel helps tremendously wiht colds and keeping the lungs clear of mucus. He has been on it for a year with great results (weight and appetite has steadily increased and no antibiotics since he was 15 months old). He cultures staph but hasn't cultured PA again since starting the treatments. It may be something to research and compare with Mucomist (which is basically NAC a precursor to GSH). We continue to watch the Nac research. Oral GSH will also increase the levels if not comfortable with inhaled. Something to discuss. I know a few people whose Dr. is supportive of trying it and seeing how it goes.
We do inhaled GSH which I feel helps tremendously wiht colds and keeping the lungs clear of mucus. He has been on it for a year with great results (weight and appetite has steadily increased and no antibiotics since he was 15 months old). He cultures staph but hasn't cultured PA again since starting the treatments. It may be something to research and compare with Mucomist (which is basically NAC a precursor to GSH). We continue to watch the Nac research. Oral GSH will also increase the levels if not comfortable with inhaled. Something to discuss. I know a few people whose Dr. is supportive of trying it and seeing how it goes.
Ben just has a little virus where he fevered in the middle of it and threw me for a loop. We just watched and did extra CPT like you. It took about a week after the active part (7-10 days) to go back to regular mucus levels with no junk. Neither our clinic or pediatrician would give an antibiotic and I am so glad to see they really wait until necessary, because he cleared it fine. But I know what you mean. When my nonCfer gets sick I just never doubt she'll get through it...I hesitate and watch like a hawk with Ben.
We do inhaled GSH which I feel helps tremendously wiht colds and keeping the lungs clear of mucus. He has been on it for a year with great results (weight and appetite has steadily increased and no antibiotics since he was 15 months old). He cultures staph but hasn't cultured PA again since starting the treatments. It may be something to research and compare with Mucomist (which is basically NAC a precursor to GSH). We continue to watch the Nac research. Oral GSH will also increase the levels if not comfortable with inhaled. Something to discuss. I know a few people whose Dr. is supportive of trying it and seeing how it goes.
We do inhaled GSH which I feel helps tremendously wiht colds and keeping the lungs clear of mucus. He has been on it for a year with great results (weight and appetite has steadily increased and no antibiotics since he was 15 months old). He cultures staph but hasn't cultured PA again since starting the treatments. It may be something to research and compare with Mucomist (which is basically NAC a precursor to GSH). We continue to watch the Nac research. Oral GSH will also increase the levels if not comfortable with inhaled. Something to discuss. I know a few people whose Dr. is supportive of trying it and seeing how it goes.