Answering some questions I've been asked-2nd sweat test in -negative-8-last one was a 7. Doc.said Ambry test would take several weeks-I specifically asked for Ambry Amplified? Sputum cultures have not grown anything as of yet-wait until Monday for that final result-Baby not any better-4 albuterol treaments a day -2 pulmocorts,prevacid in the morning and singulair at night-Doc. showed us actual pictures of bronch/scope-you could see the mucous in her airways-Does the prednisone or pulmocort affect the sweat test results? What else causes your child to be constantly plugged w/mucous in their chest?-I stopped all dairy 2 weeks ago. I just want her to get better- No, I don't want her to have CF- I want her to be able to breathe- Exasperated and tired. If you guys tell me there is no reason to worry w/those low numbers, I won't bother you again-thanks for everything-I understand the anxiety of not knowing and just not being able to make your baby well no matter what you do-you start to feel like it's your fault she's sick. kelly.
result on 2nd sweat test-negative
- Thread starter AlexsMom
- Start date
Answering some questions I've been asked-2nd sweat test in -negative-8-last one was a 7. Doc.said Ambry test would take several weeks-I specifically asked for Ambry Amplified? Sputum cultures have not grown anything as of yet-wait until Monday for that final result-Baby not any better-4 albuterol treaments a day -2 pulmocorts,prevacid in the morning and singulair at night-Doc. showed us actual pictures of bronch/scope-you could see the mucous in her airways-Does the prednisone or pulmocort affect the sweat test results? What else causes your child to be constantly plugged w/mucous in their chest?-I stopped all dairy 2 weeks ago. I just want her to get better- No, I don't want her to have CF- I want her to be able to breathe- Exasperated and tired. If you guys tell me there is no reason to worry w/those low numbers, I won't bother you again-thanks for everything-I understand the anxiety of not knowing and just not being able to make your baby well no matter what you do-you start to feel like it's your fault she's sick. kelly.
Answering some questions I've been asked-2nd sweat test in -negative-8-last one was a 7. Doc.said Ambry test would take several weeks-I specifically asked for Ambry Amplified? Sputum cultures have not grown anything as of yet-wait until Monday for that final result-Baby not any better-4 albuterol treaments a day -2 pulmocorts,prevacid in the morning and singulair at night-Doc. showed us actual pictures of bronch/scope-you could see the mucous in her airways-Does the prednisone or pulmocort affect the sweat test results? What else causes your child to be constantly plugged w/mucous in their chest?-I stopped all dairy 2 weeks ago. I just want her to get better- No, I don't want her to have CF- I want her to be able to breathe- Exasperated and tired. If you guys tell me there is no reason to worry w/those low numbers, I won't bother you again-thanks for everything-I understand the anxiety of not knowing and just not being able to make your baby well no matter what you do-you start to feel like it's your fault she's sick. kelly.
Answering some questions I've been asked-2nd sweat test in -negative-8-last one was a 7. Doc.said Ambry test would take several weeks-I specifically asked for Ambry Amplified? Sputum cultures have not grown anything as of yet-wait until Monday for that final result-Baby not any better-4 albuterol treaments a day -2 pulmocorts,prevacid in the morning and singulair at night-Doc. showed us actual pictures of bronch/scope-you could see the mucous in her airways-Does the prednisone or pulmocort affect the sweat test results? What else causes your child to be constantly plugged w/mucous in their chest?-I stopped all dairy 2 weeks ago. I just want her to get better- No, I don't want her to have CF- I want her to be able to breathe- Exasperated and tired. If you guys tell me there is no reason to worry w/those low numbers, I won't bother you again-thanks for everything-I understand the anxiety of not knowing and just not being able to make your baby well no matter what you do-you start to feel like it's your fault she's sick. kelly.
Answering some questions I've been asked-2nd sweat test in -negative-8-last one was a 7. Doc.said Ambry test would take several weeks-I specifically asked for Ambry Amplified? Sputum cultures have not grown anything as of yet-wait until Monday for that final result-Baby not any better-4 albuterol treaments a day -2 pulmocorts,prevacid in the morning and singulair at night-Doc. showed us actual pictures of bronch/scope-you could see the mucous in her airways-Does the prednisone or pulmocort affect the sweat test results? What else causes your child to be constantly plugged w/mucous in their chest?-I stopped all dairy 2 weeks ago. I just want her to get better- No, I don't want her to have CF- I want her to be able to breathe- Exasperated and tired. If you guys tell me there is no reason to worry w/those low numbers, I won't bother you again-thanks for everything-I understand the anxiety of not knowing and just not being able to make your baby well no matter what you do-you start to feel like it's your fault she's sick. kelly.
Answering some questions I've been asked-2nd sweat test in -negative-8-last one was a 7. Doc.said Ambry test would take several weeks-I specifically asked for Ambry Amplified? Sputum cultures have not grown anything as of yet-wait until Monday for that final result-Baby not any better-4 albuterol treaments a day -2 pulmocorts,prevacid in the morning and singulair at night-Doc. showed us actual pictures of bronch/scope-you could see the mucous in her airways-Does the prednisone or pulmocort affect the sweat test results? What else causes your child to be constantly plugged w/mucous in their chest?-I stopped all dairy 2 weeks ago. I just want her to get better- No, I don't want her to have CF- I want her to be able to breathe- Exasperated and tired. If you guys tell me there is no reason to worry w/those low numbers, I won't bother you again-thanks for everything-I understand the anxiety of not knowing and just not being able to make your baby well no matter what you do-you start to feel like it's your fault she's sick. kelly.
larasmommy
New member
Hi Kelly,
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
larasmommy
New member
Hi Kelly,
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
larasmommy
New member
Hi Kelly,
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
larasmommy
New member
Hi Kelly,
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
larasmommy
New member
Hi Kelly,
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
larasmommy
New member
Hi Kelly,
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
Im new to this site, but I have some input on the first post you wrote (6/27??). My daughter Lara is being checked for CF, she went for genetic testing on 6/11 and I wont know for sure until mid august, I just keep praying she doesnt have it.
I am going to try and make a long story short, OK here goes.
Lara is 5 and has always wheezed, asthma runs in my and my husbands family, she was diagnosed with it at around 1 1/2 yrs old when she had her 1st pnuemonnia. When Lara gets really sick (which is often) she goes on all the exact same meds you give your daughter, but her cough and congestion takes about a month to clear up, even if she has been hospitalized. Her regular Ped. has hospitalized her twice, but the last time she was hospitalized was March of this year, and she was extremely bad (I dont even like to think of it) and that is where a PED.PULMO finally saw her, they stabilized her and said whe had some kind of lung infection (not pnue.) and thats when she said she should go for a sweat test, the first 1 , she didnt sweat enough and the 2nd 1 came back boarderline (46mmol).. The point I was trying to get at was, (sorry I was trying to make it as short as possible) Her pulmo. said that because she was so sick her cough would take weeks to clear up, and she was right, it took about 8 weeks for it to go away completely. But it was the same like your saying about your daughter, every morning it would be horrible( the doc said because she was asleep all night), so I just wanted to let you know this and try to ease your mind a little, I know how hard it is to see your child so sick. Good luck with your test results.Hope I helped a little.<img src="i/expressions/face-icon-small-happy.gif" border="0">
I don't have any answers for you but wanted to be sure you knew it is "OK to bother us" 
I'm sure this is a difficult time for you -- type away.... it's what we are here for.
I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I'm sure this is a difficult time for you -- type away.... it's what we are here for.I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I don't have any answers for you but wanted to be sure you knew it is "OK to bother us" I'm sure this is a difficult time for you -- type away.... it's what we are here for.
I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I'm sure this is a difficult time for you -- type away.... it's what we are here for.I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I don't have any answers for you but wanted to be sure you knew it is "OK to bother us" I'm sure this is a difficult time for you -- type away.... it's what we are here for.
I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I'm sure this is a difficult time for you -- type away.... it's what we are here for.I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I don't have any answers for you but wanted to be sure you knew it is "OK to bother us" I'm sure this is a difficult time for you -- type away.... it's what we are here for.
I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I'm sure this is a difficult time for you -- type away.... it's what we are here for.I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I don't have any answers for you but wanted to be sure you knew it is "OK to bother us" I'm sure this is a difficult time for you -- type away.... it's what we are here for.
I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I'm sure this is a difficult time for you -- type away.... it's what we are here for.I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I don't have any answers for you but wanted to be sure you knew it is "OK to bother us" I'm sure this is a difficult time for you -- type away.... it's what we are here for.
I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.
I'm sure this is a difficult time for you -- type away.... it's what we are here for.I have not heard of any drug that would lower a sweat test result, but I'm far from an expert, that's for sure.