Risky or not?

Shine · Mar 19, 2010

Hi,

Sorry I haven't been on this forum for quite a long time and for not keeping people updated on how things are going with our fertility journey.
I've just been quite depressed over last 7 months as my dad passed away last August and I'm having a hard time coming to term with it.

So anyway... here's my situation.

I'm a 28yrs old female w cf gene DDF05, pancreatic insufficient and have been married for just over 4 years now.

Since we got married, the doc gave me the go ahead and said I was fine to become pregnant. But since that time, I haven't been able to conceive.

So about a 2 years ago we were seen by a fertility specialist.
Both of us went through the necessary testing to see if both or one of us was infertile.
The test results came back fine.
The report said no obvious signs of infertility and at the end of it all it was revealed that we were an 'unexplained fertility case'.
That's when our fertility specialist recommended we go for the IUI or IVF.

Currently I'm deciding whether or not to going through with 3 -4 cycles of IUI.
but I have a concerns that my health might get worse if I was to become pregnant.

My lung function can fluctuate anywhere between 47% to the low 50s.

So my question is...
Is it risky (health wise) to be pregnant between a lung function of 47 - 50% fev1?

The reason I ask, is that I've read a few of your comments on this subject that a cfer who has a lung function lower than 60% may be risky for them.
Is this true?

My doc thinks I'm perfectly fine to go ahead with the process regardless of my lung function level.
I'm so confused with what is the right decision in this case. Should I risk it or accept the fact that maybe it's too late?
I really want to become a mother but I feel time is running out! Help! <img src="i/expressions/face-icon-small-sad.gif" border="0">

I would really appreciate your thoughts on this.
Thanks in advance <img src="i/expressions/face-icon-small-smile.gif" border="0">

Sarah

Shine · Mar 19, 2010

Hi,

Sorry I haven't been on this forum for quite a long time and for not keeping people updated on how things are going with our fertility journey.
I've just been quite depressed over last 7 months as my dad passed away last August and I'm having a hard time coming to term with it.

So anyway... here's my situation.

I'm a 28yrs old female w cf gene DDF05, pancreatic insufficient and have been married for just over 4 years now.

Since we got married, the doc gave me the go ahead and said I was fine to become pregnant. But since that time, I haven't been able to conceive.

So about a 2 years ago we were seen by a fertility specialist.
Both of us went through the necessary testing to see if both or one of us was infertile.
The test results came back fine.
The report said no obvious signs of infertility and at the end of it all it was revealed that we were an 'unexplained fertility case'.
That's when our fertility specialist recommended we go for the IUI or IVF.

Currently I'm deciding whether or not to going through with 3 -4 cycles of IUI.
but I have a concerns that my health might get worse if I was to become pregnant.

My lung function can fluctuate anywhere between 47% to the low 50s.

So my question is...
Is it risky (health wise) to be pregnant between a lung function of 47 - 50% fev1?

The reason I ask, is that I've read a few of your comments on this subject that a cfer who has a lung function lower than 60% may be risky for them.
Is this true?

My doc thinks I'm perfectly fine to go ahead with the process regardless of my lung function level.
I'm so confused with what is the right decision in this case. Should I risk it or accept the fact that maybe it's too late?
I really want to become a mother but I feel time is running out! Help! <img src="i/expressions/face-icon-small-sad.gif" border="0">

I would really appreciate your thoughts on this.
Thanks in advance <img src="i/expressions/face-icon-small-smile.gif" border="0">

Sarah

Shine · Mar 19, 2010

Hi,

Sorry I haven't been on this forum for quite a long time and for not keeping people updated on how things are going with our fertility journey.
I've just been quite depressed over last 7 months as my dad passed away last August and I'm having a hard time coming to term with it.

So anyway... here's my situation.

I'm a 28yrs old female w cf gene DDF05, pancreatic insufficient and have been married for just over 4 years now.

Since we got married, the doc gave me the go ahead and said I was fine to become pregnant. But since that time, I haven't been able to conceive.

So about a 2 years ago we were seen by a fertility specialist.
Both of us went through the necessary testing to see if both or one of us was infertile.
The test results came back fine.
The report said no obvious signs of infertility and at the end of it all it was revealed that we were an 'unexplained fertility case'.
That's when our fertility specialist recommended we go for the IUI or IVF.

Currently I'm deciding whether or not to going through with 3 -4 cycles of IUI.
but I have a concerns that my health might get worse if I was to become pregnant.

My lung function can fluctuate anywhere between 47% to the low 50s.

So my question is...
Is it risky (health wise) to be pregnant between a lung function of 47 - 50% fev1?

The reason I ask, is that I've read a few of your comments on this subject that a cfer who has a lung function lower than 60% may be risky for them.
Is this true?

My doc thinks I'm perfectly fine to go ahead with the process regardless of my lung function level.
I'm so confused with what is the right decision in this case. Should I risk it or accept the fact that maybe it's too late?
I really want to become a mother but I feel time is running out! Help! <img src="i/expressions/face-icon-small-sad.gif" border="0">

I would really appreciate your thoughts on this.
Thanks in advance <img src="i/expressions/face-icon-small-smile.gif" border="0">

Sarah

Shine · Mar 19, 2010

Hi,

Sorry I haven't been on this forum for quite a long time and for not keeping people updated on how things are going with our fertility journey.
I've just been quite depressed over last 7 months as my dad passed away last August and I'm having a hard time coming to term with it.

So anyway... here's my situation.

I'm a 28yrs old female w cf gene DDF05, pancreatic insufficient and have been married for just over 4 years now.

Since we got married, the doc gave me the go ahead and said I was fine to become pregnant. But since that time, I haven't been able to conceive.

So about a 2 years ago we were seen by a fertility specialist.
Both of us went through the necessary testing to see if both or one of us was infertile.
The test results came back fine.
The report said no obvious signs of infertility and at the end of it all it was revealed that we were an 'unexplained fertility case'.
That's when our fertility specialist recommended we go for the IUI or IVF.

Currently I'm deciding whether or not to going through with 3 -4 cycles of IUI.
but I have a concerns that my health might get worse if I was to become pregnant.

My lung function can fluctuate anywhere between 47% to the low 50s.

So my question is...
Is it risky (health wise) to be pregnant between a lung function of 47 - 50% fev1?

The reason I ask, is that I've read a few of your comments on this subject that a cfer who has a lung function lower than 60% may be risky for them.
Is this true?

My doc thinks I'm perfectly fine to go ahead with the process regardless of my lung function level.
I'm so confused with what is the right decision in this case. Should I risk it or accept the fact that maybe it's too late?
I really want to become a mother but I feel time is running out! Help! <img src="i/expressions/face-icon-small-sad.gif" border="0">

I would really appreciate your thoughts on this.
Thanks in advance <img src="i/expressions/face-icon-small-smile.gif" border="0">

Sarah

Shine · Mar 19, 2010

Hi,
 
 Sorry I haven't been on this forum for quite a long time and for not keeping people updated on how things are going with our fertility journey.
 I've just been quite depressed over last 7 months as my dad passed away last August and I'm having a hard time coming to term with it.
 
 So anyway... here's my situation.
 
 I'm a 28yrs old female w cf gene DDF05, pancreatic insufficient and have been married for just over 4 years now.
 
 Since we got married, the doc gave me the go ahead and said I was fine to become pregnant. But since that time, I haven't been able to conceive.
 
 So about a 2 years ago we were seen by a fertility specialist.
 Both of us went through the necessary testing to see if both or one of us was infertile.
 The test results came back fine.
 The report said no obvious signs of infertility and at the end of it all it was revealed that we were an 'unexplained fertility case'.
 That's when our fertility specialist recommended we go for the IUI or IVF.
 
 Currently I'm deciding whether or not to going through with 3 -4 cycles of IUI.
 but I have a concerns that my health might get worse if I was to become pregnant.
 
 My lung function can fluctuate anywhere between 47% to the low 50s.
 
 So my question is...
 Is it risky (health wise) to be pregnant between a lung function of 47 - 50% fev1?
 
 The reason I ask, is that I've read a few of your comments on this subject that a cfer who has a lung function lower than 60% may be risky for them.
 Is this true?
 
 My doc thinks I'm perfectly fine to go ahead with the process regardless of my lung function level.
 I'm so confused with what is the right decision in this case. Should I risk it or accept the fact that maybe it's too late?
 I really want to become a mother but I feel time is running out! Help! <img src="i/expressions/face-icon-small-sad.gif" border="0">
 
 I would really appreciate your thoughts on this.
 Thanks in advance <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
 Sarah

mamaScarlett · Mar 19, 2010

Well I'll chime in since I have some experience here-Yes, it is, or can be, risky.
The 'general' guideline is having an fev1 of at or above 70%. That being said, you can have pfts in the 90s and still have complications from preg. There's patients that went into preg with pfts lower than 70s and did just fine-and theres some that got extremely sick.
Theres alot to consider, not only how preg will affect your lungs and body, but what if you need meds-which can you take, how will you handle after the baby is born, the sleeplessness, etc. Its pretty involved.

I think that docs feel that having higher pfts, while it is certainly no guarantee, its buying a little more 'insurance' for you. Inevitably no matter what your #s are, pregnancy and caring for a newborn will put a strain on your health. Having higher numbers will give you more flexibility with the inevitable dip your lungs will take. You and docs would feel much better starting out at say 70, dipping down to 55 and climbing up again...then say starting at 55, dipping to a dangerous 35...thats a whole different story.

Regardless of what your numbers are at, you will have to work really hard while preg to stay healthy.
Basically w my situation, I had never assumed I could consider preg bc thats what I was always told. My pfts bounced from 50-60. I was lucky that with 2 yrs of hard work and treatment (and a new doctor), my pfts came up to a steady 70-75 and I had a complication free, easy preg. My #s did go down which is normal. It took me about 1.5 yrs to totally recover my pre-preg health.

If you are asking an opinion-straight...no, I would never chose to get preg with pfts in the 50s. In fact after I gave birth 3 yrs ago I wanted to get preg again when my lo was 1.5. But, we chose not to bc my #s were too low (60s). Now they are really good, and we're going to try again soon.

I KNOW how you feel. Work your *ss off!!!! Do whatever you can to get your #s up...join a gym, increase pt, anything. Its not just about having a baby, right...Its about mothering! Which is AMAZING-but tiring too! You need a measure of strength for it.

You'll get there.

If I were you-I'd take the next 6 months, and make my entire life improving my health. Fitness, diet, 3 pts a day, research alternative therapies, foods, etc...Totally commit to upping your pfts. Really do it. If your #s are the same, you know that you are at your best-then you can move forward with a decision. But even if your #s don't go up, theres no doubt you'll feel better. And thats the best way to go into a preg.

mamaScarlett · Mar 19, 2010

Well I'll chime in since I have some experience here-Yes, it is, or can be, risky.
The 'general' guideline is having an fev1 of at or above 70%. That being said, you can have pfts in the 90s and still have complications from preg. There's patients that went into preg with pfts lower than 70s and did just fine-and theres some that got extremely sick.
Theres alot to consider, not only how preg will affect your lungs and body, but what if you need meds-which can you take, how will you handle after the baby is born, the sleeplessness, etc. Its pretty involved.

I think that docs feel that having higher pfts, while it is certainly no guarantee, its buying a little more 'insurance' for you. Inevitably no matter what your #s are, pregnancy and caring for a newborn will put a strain on your health. Having higher numbers will give you more flexibility with the inevitable dip your lungs will take. You and docs would feel much better starting out at say 70, dipping down to 55 and climbing up again...then say starting at 55, dipping to a dangerous 35...thats a whole different story.

Regardless of what your numbers are at, you will have to work really hard while preg to stay healthy.
Basically w my situation, I had never assumed I could consider preg bc thats what I was always told. My pfts bounced from 50-60. I was lucky that with 2 yrs of hard work and treatment (and a new doctor), my pfts came up to a steady 70-75 and I had a complication free, easy preg. My #s did go down which is normal. It took me about 1.5 yrs to totally recover my pre-preg health.

If you are asking an opinion-straight...no, I would never chose to get preg with pfts in the 50s. In fact after I gave birth 3 yrs ago I wanted to get preg again when my lo was 1.5. But, we chose not to bc my #s were too low (60s). Now they are really good, and we're going to try again soon.

I KNOW how you feel. Work your *ss off!!!! Do whatever you can to get your #s up...join a gym, increase pt, anything. Its not just about having a baby, right...Its about mothering! Which is AMAZING-but tiring too! You need a measure of strength for it.

You'll get there.

If I were you-I'd take the next 6 months, and make my entire life improving my health. Fitness, diet, 3 pts a day, research alternative therapies, foods, etc...Totally commit to upping your pfts. Really do it. If your #s are the same, you know that you are at your best-then you can move forward with a decision. But even if your #s don't go up, theres no doubt you'll feel better. And thats the best way to go into a preg.

mamaScarlett · Mar 19, 2010

Well I'll chime in since I have some experience here-Yes, it is, or can be, risky.
The 'general' guideline is having an fev1 of at or above 70%. That being said, you can have pfts in the 90s and still have complications from preg. There's patients that went into preg with pfts lower than 70s and did just fine-and theres some that got extremely sick.
Theres alot to consider, not only how preg will affect your lungs and body, but what if you need meds-which can you take, how will you handle after the baby is born, the sleeplessness, etc. Its pretty involved.

I think that docs feel that having higher pfts, while it is certainly no guarantee, its buying a little more 'insurance' for you. Inevitably no matter what your #s are, pregnancy and caring for a newborn will put a strain on your health. Having higher numbers will give you more flexibility with the inevitable dip your lungs will take. You and docs would feel much better starting out at say 70, dipping down to 55 and climbing up again...then say starting at 55, dipping to a dangerous 35...thats a whole different story.

Regardless of what your numbers are at, you will have to work really hard while preg to stay healthy.
Basically w my situation, I had never assumed I could consider preg bc thats what I was always told. My pfts bounced from 50-60. I was lucky that with 2 yrs of hard work and treatment (and a new doctor), my pfts came up to a steady 70-75 and I had a complication free, easy preg. My #s did go down which is normal. It took me about 1.5 yrs to totally recover my pre-preg health.

If you are asking an opinion-straight...no, I would never chose to get preg with pfts in the 50s. In fact after I gave birth 3 yrs ago I wanted to get preg again when my lo was 1.5. But, we chose not to bc my #s were too low (60s). Now they are really good, and we're going to try again soon.

I KNOW how you feel. Work your *ss off!!!! Do whatever you can to get your #s up...join a gym, increase pt, anything. Its not just about having a baby, right...Its about mothering! Which is AMAZING-but tiring too! You need a measure of strength for it.

You'll get there.

If I were you-I'd take the next 6 months, and make my entire life improving my health. Fitness, diet, 3 pts a day, research alternative therapies, foods, etc...Totally commit to upping your pfts. Really do it. If your #s are the same, you know that you are at your best-then you can move forward with a decision. But even if your #s don't go up, theres no doubt you'll feel better. And thats the best way to go into a preg.

mamaScarlett · Mar 19, 2010

Well I'll chime in since I have some experience here-Yes, it is, or can be, risky.
The 'general' guideline is having an fev1 of at or above 70%. That being said, you can have pfts in the 90s and still have complications from preg. There's patients that went into preg with pfts lower than 70s and did just fine-and theres some that got extremely sick.
Theres alot to consider, not only how preg will affect your lungs and body, but what if you need meds-which can you take, how will you handle after the baby is born, the sleeplessness, etc. Its pretty involved.

I think that docs feel that having higher pfts, while it is certainly no guarantee, its buying a little more 'insurance' for you. Inevitably no matter what your #s are, pregnancy and caring for a newborn will put a strain on your health. Having higher numbers will give you more flexibility with the inevitable dip your lungs will take. You and docs would feel much better starting out at say 70, dipping down to 55 and climbing up again...then say starting at 55, dipping to a dangerous 35...thats a whole different story.

Regardless of what your numbers are at, you will have to work really hard while preg to stay healthy.
Basically w my situation, I had never assumed I could consider preg bc thats what I was always told. My pfts bounced from 50-60. I was lucky that with 2 yrs of hard work and treatment (and a new doctor), my pfts came up to a steady 70-75 and I had a complication free, easy preg. My #s did go down which is normal. It took me about 1.5 yrs to totally recover my pre-preg health.

If you are asking an opinion-straight...no, I would never chose to get preg with pfts in the 50s. In fact after I gave birth 3 yrs ago I wanted to get preg again when my lo was 1.5. But, we chose not to bc my #s were too low (60s). Now they are really good, and we're going to try again soon.

I KNOW how you feel. Work your *ss off!!!! Do whatever you can to get your #s up...join a gym, increase pt, anything. Its not just about having a baby, right...Its about mothering! Which is AMAZING-but tiring too! You need a measure of strength for it.

You'll get there.

If I were you-I'd take the next 6 months, and make my entire life improving my health. Fitness, diet, 3 pts a day, research alternative therapies, foods, etc...Totally commit to upping your pfts. Really do it. If your #s are the same, you know that you are at your best-then you can move forward with a decision. But even if your #s don't go up, theres no doubt you'll feel better. And thats the best way to go into a preg.

mamaScarlett · Mar 19, 2010

Well I'll chime in since I have some experience here-Yes, it is, or can be, risky.
 The 'general' guideline is having an fev1 of at or above 70%. That being said, you can have pfts in the 90s and still have complications from preg. There's patients that went into preg with pfts lower than 70s and did just fine-and theres some that got extremely sick.
 Theres alot to consider, not only how preg will affect your lungs and body, but what if you need meds-which can you take, how will you handle after the baby is born, the sleeplessness, etc. Its pretty involved.
 
 I think that docs feel that having higher pfts, while it is certainly no guarantee, its buying a little more 'insurance' for you. Inevitably no matter what your #s are, pregnancy and caring for a newborn will put a strain on your health. Having higher numbers will give you more flexibility with the inevitable dip your lungs will take. You and docs would feel much better starting out at say 70, dipping down to 55 and climbing up again...then say starting at 55, dipping to a dangerous 35...thats a whole different story.
 
 Regardless of what your numbers are at, you will have to work really hard while preg to stay healthy.
 Basically w my situation, I had never assumed I could consider preg bc thats what I was always told. My pfts bounced from 50-60. I was lucky that with 2 yrs of hard work and treatment (and a new doctor), my pfts came up to a steady 70-75 and I had a complication free, easy preg. My #s did go down which is normal. It took me about 1.5 yrs to totally recover my pre-preg health.
 
 If you are asking an opinion-straight...no, I would never chose to get preg with pfts in the 50s. In fact after I gave birth 3 yrs ago I wanted to get preg again when my lo was 1.5. But, we chose not to bc my #s were too low (60s). Now they are really good, and we're going to try again soon.
 
 I KNOW how you feel. Work your *ss off!!!! Do whatever you can to get your #s up...join a gym, increase pt, anything. Its not just about having a baby, right...Its about mothering! Which is AMAZING-but tiring too! You need a measure of strength for it.
 
 You'll get there.
 
 If I were you-I'd take the next 6 months, and make my entire life improving my health. Fitness, diet, 3 pts a day, research alternative therapies, foods, etc...Totally commit to upping your pfts. Really do it. If your #s are the same, you know that you are at your best-then you can move forward with a decision. But even if your #s don't go up, theres no doubt you'll feel better. And thats the best way to go into a preg.

Shine · Mar 21, 2010

Hi Christian,

Sorry if I sound so worried and all...just never been through a pregnancy before and it's all new to me at this stage.

Thanks for the feedback I really appreciated it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

I totally agree with you on getting health up to the best it can be.

Believe me I've definitely got some plans in place that will hopefully help with health.

Can I ask you...do most cf mothers on here have pics or port o caths? And does it make life a lot easier?

I ask this, as I still have peripherals every time I'm in for i.vs.

I use to have long lines, until I got 2 major blood clots in the subclavian & jugular veins.

Anyway thank again for your feedback it's helpful <img src="i/expressions/face-icon-small-smile.gif" border="0">

Shine · Mar 21, 2010

Hi Christian,

Sorry if I sound so worried and all...just never been through a pregnancy before and it's all new to me at this stage.

Thanks for the feedback I really appreciated it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

I totally agree with you on getting health up to the best it can be.

Believe me I've definitely got some plans in place that will hopefully help with health.

Can I ask you...do most cf mothers on here have pics or port o caths? And does it make life a lot easier?

I ask this, as I still have peripherals every time I'm in for i.vs.

I use to have long lines, until I got 2 major blood clots in the subclavian & jugular veins.

Anyway thank again for your feedback it's helpful <img src="i/expressions/face-icon-small-smile.gif" border="0">

Shine · Mar 21, 2010

Hi Christian,

Sorry if I sound so worried and all...just never been through a pregnancy before and it's all new to me at this stage.

Thanks for the feedback I really appreciated it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

I totally agree with you on getting health up to the best it can be.

Believe me I've definitely got some plans in place that will hopefully help with health.

Can I ask you...do most cf mothers on here have pics or port o caths? And does it make life a lot easier?

I ask this, as I still have peripherals every time I'm in for i.vs.

I use to have long lines, until I got 2 major blood clots in the subclavian & jugular veins.

Anyway thank again for your feedback it's helpful <img src="i/expressions/face-icon-small-smile.gif" border="0">

Shine · Mar 21, 2010

Hi Christian,

Sorry if I sound so worried and all...just never been through a pregnancy before and it's all new to me at this stage.

Thanks for the feedback I really appreciated it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

I totally agree with you on getting health up to the best it can be.

Believe me I've definitely got some plans in place that will hopefully help with health.

Can I ask you...do most cf mothers on here have pics or port o caths? And does it make life a lot easier?

I ask this, as I still have peripherals every time I'm in for i.vs.

I use to have long lines, until I got 2 major blood clots in the subclavian & jugular veins.

Anyway thank again for your feedback it's helpful <img src="i/expressions/face-icon-small-smile.gif" border="0">

Shine · Mar 21, 2010

Hi Christian,
 
 Sorry if I sound so worried and all...just never been through a pregnancy before and it's all new to me at this stage.
 
 Thanks for the feedback I really appreciated it! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
 I totally agree with you on getting health up to the best it can be.
 
 Believe me I've definitely got some plans in place that will hopefully help with health.
 
 Can I ask you...do most cf mothers on here have pics or port o caths? And does it make life a lot easier?
 
 I ask this, as I still have peripherals every time I'm in for i.vs.
 
 I use to have long lines, until I got 2 major blood clots in the subclavian & jugular veins.
 
 Anyway thank again for your feedback it's helpful <img src="i/expressions/face-icon-small-smile.gif" border="0">

mamaScarlett · Mar 21, 2010

No no, Its normal to be worried. I know, I've been there.
And it wouldn't be good if you were like 'whatever' and throwing caution to the wind either. You're being very wise and planning this out. Thats how I started-I got on these boards and talked to as many moms w cf as I could, to learn what to do and what not to do.

I have one friend w cf on these boards that has a port-Lou Lou...(hope you don't mind me mentioning you, hon!)-She's pretty open about all her treatments! In fact she has a video posted on the site about her port, so if you're curious-check it out.

I don't know off hand of many moms w cf that have them. I don't think its an indicator of health per se-just a choice. I don't have one, but I don't have any probs getting a picc in...At this point could you be re-evaluated for piccs...

I average needing ivs about once a year. I go to the radiology dept, they give me a local anesthetic, put the line in using a camera type thing, and in about 15 mins I walk out feeling fine. Never had a prob with a picc yet. My surgeon at St. V's in nyc is an expert on piccs and caths-Its all he does, all day long. Mabye thats part of why I've had success with them.

When I'm not ttc I also do TOBI. How about you...on anything like that yet..

<img src="i/expressions/heart.gif" border="0">

mamaScarlett · Mar 21, 2010

No no, Its normal to be worried. I know, I've been there.
And it wouldn't be good if you were like 'whatever' and throwing caution to the wind either. You're being very wise and planning this out. Thats how I started-I got on these boards and talked to as many moms w cf as I could, to learn what to do and what not to do.

I have one friend w cf on these boards that has a port-Lou Lou...(hope you don't mind me mentioning you, hon!)-She's pretty open about all her treatments! In fact she has a video posted on the site about her port, so if you're curious-check it out.

I don't know off hand of many moms w cf that have them. I don't think its an indicator of health per se-just a choice. I don't have one, but I don't have any probs getting a picc in...At this point could you be re-evaluated for piccs...

I average needing ivs about once a year. I go to the radiology dept, they give me a local anesthetic, put the line in using a camera type thing, and in about 15 mins I walk out feeling fine. Never had a prob with a picc yet. My surgeon at St. V's in nyc is an expert on piccs and caths-Its all he does, all day long. Mabye thats part of why I've had success with them.

When I'm not ttc I also do TOBI. How about you...on anything like that yet..

<img src="i/expressions/heart.gif" border="0">

mamaScarlett · Mar 21, 2010

No no, Its normal to be worried. I know, I've been there.
And it wouldn't be good if you were like 'whatever' and throwing caution to the wind either. You're being very wise and planning this out. Thats how I started-I got on these boards and talked to as many moms w cf as I could, to learn what to do and what not to do.

I have one friend w cf on these boards that has a port-Lou Lou...(hope you don't mind me mentioning you, hon!)-She's pretty open about all her treatments! In fact she has a video posted on the site about her port, so if you're curious-check it out.

I don't know off hand of many moms w cf that have them. I don't think its an indicator of health per se-just a choice. I don't have one, but I don't have any probs getting a picc in...At this point could you be re-evaluated for piccs...

I average needing ivs about once a year. I go to the radiology dept, they give me a local anesthetic, put the line in using a camera type thing, and in about 15 mins I walk out feeling fine. Never had a prob with a picc yet. My surgeon at St. V's in nyc is an expert on piccs and caths-Its all he does, all day long. Mabye thats part of why I've had success with them.

When I'm not ttc I also do TOBI. How about you...on anything like that yet..

<img src="i/expressions/heart.gif" border="0">

mamaScarlett · Mar 21, 2010

No no, Its normal to be worried. I know, I've been there.
And it wouldn't be good if you were like 'whatever' and throwing caution to the wind either. You're being very wise and planning this out. Thats how I started-I got on these boards and talked to as many moms w cf as I could, to learn what to do and what not to do.

I have one friend w cf on these boards that has a port-Lou Lou...(hope you don't mind me mentioning you, hon!)-She's pretty open about all her treatments! In fact she has a video posted on the site about her port, so if you're curious-check it out.

I don't know off hand of many moms w cf that have them. I don't think its an indicator of health per se-just a choice. I don't have one, but I don't have any probs getting a picc in...At this point could you be re-evaluated for piccs...

I average needing ivs about once a year. I go to the radiology dept, they give me a local anesthetic, put the line in using a camera type thing, and in about 15 mins I walk out feeling fine. Never had a prob with a picc yet. My surgeon at St. V's in nyc is an expert on piccs and caths-Its all he does, all day long. Mabye thats part of why I've had success with them.

When I'm not ttc I also do TOBI. How about you...on anything like that yet..

<img src="i/expressions/heart.gif" border="0">

mamaScarlett · Mar 21, 2010

No no, Its normal to be worried. I know, I've been there.
 And it wouldn't be good if you were like 'whatever' and throwing caution to the wind either. You're being very wise and planning this out. Thats how I started-I got on these boards and talked to as many moms w cf as I could, to learn what to do and what not to do.
 
 I have one friend w cf on these boards that has a port-Lou Lou...(hope you don't mind me mentioning you, hon!)-She's pretty open about all her treatments! In fact she has a video posted on the site about her port, so if you're curious-check it out.
 
 I don't know off hand of many moms w cf that have them. I don't think its an indicator of health per se-just a choice. I don't have one, but I don't have any probs getting a picc in...At this point could you be re-evaluated for piccs...
 
 I average needing ivs about once a year. I go to the radiology dept, they give me a local anesthetic, put the line in using a camera type thing, and in about 15 mins I walk out feeling fine. Never had a prob with a picc yet. My surgeon at St. V's in nyc is an expert on piccs and caths-Its all he does, all day long. Mabye thats part of why I've had success with them.
 
 When I'm not ttc I also do TOBI. How about you...on anything like that yet..
 
 <img src="i/expressions/heart.gif" border="0">

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