running after a transplant

[theDUDE]

Im on the list and would like to start running after im transplanted. I plan running a marathon(s), has anyone done one after tx? i have been told that the anti-reject meds will be hard on ligaments and stuff like that, how bad is that really? i know each person is different, but any info will help..........................thanks

 

[theDUDE]

Im on the list and would like to start running after im transplanted. I plan running a marathon(s), has anyone done one after tx? i have been told that the anti-reject meds will be hard on ligaments and stuff like that, how bad is that really? i know each person is different, but any info will help..........................thanks

 

[theDUDE]

Im on the list and would like to start running after im transplanted. I plan running a marathon(s), has anyone done one after tx? i have been told that the anti-reject meds will be hard on ligaments and stuff like that, how bad is that really? i know each person is different, but any info will help..........................thanks

 

[PinkPigg]

Hey Dude,

You might want to get in touch with Ronnie Sharpe. His is a runner and has CF. He's still pre-tx but probably has lots of good contacts that may help. His blog site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.runsickboyrun.blogspot.com/
">http://www.runsickboyrun.blogspot.com/
</a>

Working out has helped me to hold off transplant from my first listing in 1992 (23 years old) until now. Just restarting tx evaluations etc. It's amazing what exercise can do for sure.

Hang in there and keep on abiding <img src="i/expressions/face-icon-small-smile.gif" border="0">

Peace,
Steph

 

[PinkPigg]

Hey Dude,

You might want to get in touch with Ronnie Sharpe. His is a runner and has CF. He's still pre-tx but probably has lots of good contacts that may help. His blog site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.runsickboyrun.blogspot.com/
">http://www.runsickboyrun.blogspot.com/
</a>

Working out has helped me to hold off transplant from my first listing in 1992 (23 years old) until now. Just restarting tx evaluations etc. It's amazing what exercise can do for sure.

Hang in there and keep on abiding <img src="i/expressions/face-icon-small-smile.gif" border="0">

Peace,
Steph

 

[PinkPigg]

Hey Dude,
<br />
<br />You might want to get in touch with Ronnie Sharpe. His is a runner and has CF. He's still pre-tx but probably has lots of good contacts that may help. His blog site is <a target=_blank class=ftalternatingbarlinklarge href="http://www.runsickboyrun.blogspot.com/
<br />">http://www.runsickboyrun.blogspot.com/
<br /></a>
<br />
<br />Working out has helped me to hold off transplant from my first listing in 1992 (23 years old) until now. Just restarting tx evaluations etc. It's amazing what exercise can do for sure.
<br />
<br />Hang in there and keep on abiding <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Peace,
<br />Steph

 

[Liza]

Summer has run in a half marathon (I believe it was a half). I do know that she runs though. She is post tx, I think 4-5 yrs.

Also, Isabell Stynzle Barnes, one of the twins that wrote the book "The Power of Two" also took up running after tx. She doesn't come on here too often though. She also plays the bagpipes!

I would PM Summer though.

 

[Liza]

Summer has run in a half marathon (I believe it was a half). I do know that she runs though. She is post tx, I think 4-5 yrs.

Also, Isabell Stynzle Barnes, one of the twins that wrote the book "The Power of Two" also took up running after tx. She doesn't come on here too often though. She also plays the bagpipes!

I would PM Summer though.

 

[Liza]

Summer has run in a half marathon (I believe it was a half). I do know that she runs though. She is post tx, I think 4-5 yrs.
<br />
<br />Also, Isabell Stynzle Barnes, one of the twins that wrote the book "The Power of Two" also took up running after tx. She doesn't come on here too often though. She also plays the bagpipes!
<br />
<br />I would PM Summer though.

 

[summer732]

Hi,

Liza is right, I picked up running post transplant. I'm around 5 1/2 years out now and still running. I ran a half marathon last year and then (since I didn't have time to train) I ran 4 miles with my boyfriend who ran the Half Marathon this year.

I would say prednisone is both a blessing a curse when it comes to running. It really makes it difficult to develop muscle so you will find that your legs are going to give out well before your lungs. It's important to focus on strentgh training and core exercises as well when you are training to run. I had to restart my running since I basically took 9 months off after my PTLD diagnosis. I'm also in the process of lowering my prednisone from 10 mgs to 5 mgs. My body feels every single 1 mg difference so I'm literally fighting an uphill battle trying to build back up to 13 miles. Just be patient, start slow, build your muscle and build your distance and time as you get stronger. I haven't had any problems with ligaments when running, but I do take it easy if I'm on levaquin or Cipro.

 

[summer732]

Hi,

Liza is right, I picked up running post transplant. I'm around 5 1/2 years out now and still running. I ran a half marathon last year and then (since I didn't have time to train) I ran 4 miles with my boyfriend who ran the Half Marathon this year.

I would say prednisone is both a blessing a curse when it comes to running. It really makes it difficult to develop muscle so you will find that your legs are going to give out well before your lungs. It's important to focus on strentgh training and core exercises as well when you are training to run. I had to restart my running since I basically took 9 months off after my PTLD diagnosis. I'm also in the process of lowering my prednisone from 10 mgs to 5 mgs. My body feels every single 1 mg difference so I'm literally fighting an uphill battle trying to build back up to 13 miles. Just be patient, start slow, build your muscle and build your distance and time as you get stronger. I haven't had any problems with ligaments when running, but I do take it easy if I'm on levaquin or Cipro.

 

[summer732]

Hi,
<br />
<br />Liza is right, I picked up running post transplant. I'm around 5 1/2 years out now and still running. I ran a half marathon last year and then (since I didn't have time to train) I ran 4 miles with my boyfriend who ran the Half Marathon this year.
<br />
<br />I would say prednisone is both a blessing a curse when it comes to running. It really makes it difficult to develop muscle so you will find that your legs are going to give out well before your lungs. It's important to focus on strentgh training and core exercises as well when you are training to run. I had to restart my running since I basically took 9 months off after my PTLD diagnosis. I'm also in the process of lowering my prednisone from 10 mgs to 5 mgs. My body feels every single 1 mg difference so I'm literally fighting an uphill battle trying to build back up to 13 miles. Just be patient, start slow, build your muscle and build your distance and time as you get stronger. I haven't had any problems with ligaments when running, but I do take it easy if I'm on levaquin or Cipro.

 

[NYCLawGirl]

i know some CFers who have run marathons or half-marathons post-tx! it's true that pred can affect the muscles, but most people are able to be pretty active and athletic with their new lungs.

this woman is an AWESOME athlete post-tx with CF:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dottielessard.com/about.html
">http://www.dottielessard.com/about.html
</a>
also, "lex" on this forum is training for a marathon, i believe. lex, this one's right up your alley!

 

[NYCLawGirl]

i know some CFers who have run marathons or half-marathons post-tx! it's true that pred can affect the muscles, but most people are able to be pretty active and athletic with their new lungs.

this woman is an AWESOME athlete post-tx with CF:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dottielessard.com/about.html
">http://www.dottielessard.com/about.html
</a>
also, "lex" on this forum is training for a marathon, i believe. lex, this one's right up your alley!

 

[NYCLawGirl]

i know some CFers who have run marathons or half-marathons post-tx! it's true that pred can affect the muscles, but most people are able to be pretty active and athletic with their new lungs.
<br />
<br />this woman is an AWESOME athlete post-tx with CF:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.dottielessard.com/about.html
">http://www.dottielessard.com/about.html
</a><br />
<br />also, "lex" on this forum is training for a marathon, i believe. lex, this one's right up your alley!

 

[coltsfan715]

A guy by the name of Grant here in town started running and ran marathons all over after he was transplanted. I have asked about running myself because I had people within the rehab centers I went to after my transplant tell me not too, but when I asked my transplant team they encouraged it. It helps fight some of the issues that we face post transplant with the bone loss and such and also helps to keep us going with cardio and lung and heart health.

I think you should aim for it, there is nothing stopping you from making it a goal post transplant if it is what you really want to do.

Lindsey

 

[coltsfan715]

A guy by the name of Grant here in town started running and ran marathons all over after he was transplanted. I have asked about running myself because I had people within the rehab centers I went to after my transplant tell me not too, but when I asked my transplant team they encouraged it. It helps fight some of the issues that we face post transplant with the bone loss and such and also helps to keep us going with cardio and lung and heart health.

I think you should aim for it, there is nothing stopping you from making it a goal post transplant if it is what you really want to do.

Lindsey

 

[coltsfan715]

A guy by the name of Grant here in town started running and ran marathons all over after he was transplanted. I have asked about running myself because I had people within the rehab centers I went to after my transplant tell me not too, but when I asked my transplant team they encouraged it. It helps fight some of the issues that we face post transplant with the bone loss and such and also helps to keep us going with cardio and lung and heart health.
<br />
<br />I think you should aim for it, there is nothing stopping you from making it a goal post transplant if it is what you really want to do.
<br />
<br />Lindsey

 

[Lex]

I am training for the 2010 NYC Marathon. I had my TX on 11/10/09. So, DUDE...here's my deal.

I did a few road races when I was 10 or 12 years old, but soon after, I lost the ability to run. I always wanted to run, and I dreamed of the day post TX when I could.

Fast forward to January 2010. 2 months post TX I ran 1 mile. I wasn't winded at all. My stupid legs couldn't keep up because they had never been conditioned for running...and I was pretty immobile for the 6 months before TX.

As for the meds, I didn't really have much in the way of side effects 2 months post. I've had no problems building up muscle because of the insulin I'm taking because of the prednisone. My ligaments and tendons are just fine and dandy.

So far, 6 months post, I've run as much as 6 miles, no problem. I stopped at 6 because I got scared I was going to hurt myself. But I was fine. At the moment I'm letting a shin splint heal (IMAGINE THAT?!?!)...but on Sunday I'm running in a charity road race my wife created for CF and it will be 4 miles.

If you want to run after TX, my advice is to keep walking before TX. If you walk in, you'll walk out. Then you can RUN.

 

[Lex]

I am training for the 2010 NYC Marathon. I had my TX on 11/10/09. So, DUDE...here's my deal.

I did a few road races when I was 10 or 12 years old, but soon after, I lost the ability to run. I always wanted to run, and I dreamed of the day post TX when I could.

Fast forward to January 2010. 2 months post TX I ran 1 mile. I wasn't winded at all. My stupid legs couldn't keep up because they had never been conditioned for running...and I was pretty immobile for the 6 months before TX.

As for the meds, I didn't really have much in the way of side effects 2 months post. I've had no problems building up muscle because of the insulin I'm taking because of the prednisone. My ligaments and tendons are just fine and dandy.

So far, 6 months post, I've run as much as 6 miles, no problem. I stopped at 6 because I got scared I was going to hurt myself. But I was fine. At the moment I'm letting a shin splint heal (IMAGINE THAT?!?!)...but on Sunday I'm running in a charity road race my wife created for CF and it will be 4 miles.

If you want to run after TX, my advice is to keep walking before TX. If you walk in, you'll walk out. Then you can RUN.