rural living

sstrohn

New member
Anyone out there live in a rural type setting ranch or farm? Our family lives in Central Californai on a cattle ranch. Wouldn't have it any other way. I work in town but have to dueto all of our expenses insurance doesn't cover.My daughter 8 goes to school, plays, rides, ropes and does everything a kid should do. She keeps up with her non cf brother, 10, just great.Hope to hear from some other ranching family.
 

farmfamily

New member
Yes we live in a very rural area in fact we have to drive over 200 miles to a clinic visits. We have 3 children Boy 15 no CF, Boy 11 CF and girl 7 w/CF. That was one of the first questons we asked when diagnosed if the dust, animals, ect would be harmful. They said like everything else there are advantages and disadvantages. My son has had lots of problem my daugter is much healther. I think the advantages of living the life we live outweigh the disadvantages.Mom of three<img src="i/expressions/face-icon-small-cool.gif" border="0">
 

anonymous

New member
Hello, We love in Potomac Montana, and I would have to say Montana is rural enough, but then to choose to love on a ranch an hour outside of town has proven to be difficult with a 2 1/2 year old daughter with CF. When we first foubd out we probably all asked the same questions about animals and dust. We thought about moving but that would be devastating because we love our horses, and she does too.We drive 2 and 1/2 hours to see the CF specialist but now we use it as a minnie vacation.My daughter has not been doing well, but we are trying to get a better handle on things, we just got diagnosed last August, and are still new to everything.I am the Mom, and this is the first time I have made contact with anyone else who has a CF child.<a target=new class=ftalternatingbarlinklarge href="mailto:jennifer@doublejarena.net">Text</a>
 

anonymous

New member
I have to say the first year after diagnosis is the worse. I t gets better. I hope you can get a handle on our daugter's health. Hang in there. There still are good days ahead. This is the first message I've replied to too. Mom of three
 

anonymous

New member
To the two moms getting used to CF - better days are ahead. I have three children, all with CF. The 2nd child was diagnosed first and a week later, his brother was diagnosed. I thought it was the end of the world, but four years later, I chose to have another baby - and she has CF too. There is much to learn and comprehend at first. I think that it takes a while to steady yourself emotionally before you can really think about what is happening. It just takes time and support from family, friends, and your doctors. We only live one hour from the hospital and when the kids are hospitalized, that is far enough to travel. We are in Boston so I feel that we are with a good hospital with knowledgeable doctors. I would rely on your CF doctors for information, not old articles, internet info, medical books, etc. You don't want to read old info because I think that there are new therapies and meds coming out each year so old news does not sound as promising as the current. I love our pediatrician but I find that for the real specific CF info, I go right to the CF Specialist. It takes time to know what to do on a daily basis, when to get nervous about a cough or a temp, when to call the doctor and not seem paranoid, or when to give the kid a day to fight off a simple sniffle. I would think that most doctors of newly diagnosed children expect lots of questions. They may not personaly live with CF but if this is their specialty, they see it every day and can guide you from what they see in their other patients.This may sound crazy, but try to have as normal a life as possible. My kids don't think there is anything they can't do right now. They play football, track, baseball, basketball, dance, karate, snowboard, go away to camp during the summer, we go away on vacation (needs a little extra planning), and enjoy family and friends. They know they can't be firemen, or hairdresser, or many other professions, but there are lots to choose from so they will make a decision from what they can. We have had almost every holiday with one or more of the kids in the hospital but you make what you can of it. We have done Shrimp Scampi for Thanksgiving, cakes for birthdays or anniversaries, Trick-or-Treating, whatever. You just have to care that you are all there together and make that the important part of the day. Attitude is a little thing that makes a BIG difference. Although some days that will be very difficult to live by, give it all you've got.
 
Top