To the two moms getting used to CF - better days are ahead. I have three children, all with CF. The 2nd child was diagnosed first and a week later, his brother was diagnosed. I thought it was the end of the world, but four years later, I chose to have another baby - and she has CF too. There is much to learn and comprehend at first. I think that it takes a while to steady yourself emotionally before you can really think about what is happening. It just takes time and support from family, friends, and your doctors. We only live one hour from the hospital and when the kids are hospitalized, that is far enough to travel. We are in Boston so I feel that we are with a good hospital with knowledgeable doctors. I would rely on your CF doctors for information, not old articles, internet info, medical books, etc. You don't want to read old info because I think that there are new therapies and meds coming out each year so old news does not sound as promising as the current. I love our pediatrician but I find that for the real specific CF info, I go right to the CF Specialist. It takes time to know what to do on a daily basis, when to get nervous about a cough or a temp, when to call the doctor and not seem paranoid, or when to give the kid a day to fight off a simple sniffle. I would think that most doctors of newly diagnosed children expect lots of questions. They may not personaly live with CF but if this is their specialty, they see it every day and can guide you from what they see in their other patients.This may sound crazy, but try to have as normal a life as possible. My kids don't think there is anything they can't do right now. They play football, track, baseball, basketball, dance, karate, snowboard, go away to camp during the summer, we go away on vacation (needs a little extra planning), and enjoy family and friends. They know they can't be firemen, or hairdresser, or many other professions, but there are lots to choose from so they will make a decision from what they can. We have had almost every holiday with one or more of the kids in the hospital but you make what you can of it. We have done Shrimp Scampi for Thanksgiving, cakes for birthdays or anniversaries, Trick-or-Treating, whatever. You just have to care that you are all there together and make that the important part of the day. Attitude is a little thing that makes a BIG difference. Although some days that will be very difficult to live by, give it all you've got.