Sad.

truluv22

New member
My baby cousin Katey was just diagonosed with CF. I don't know how to handle this. I don't think she's even two. Will she live, what will happen? I don't know anything, and noone will tell me because I'm the second youngest, and they don't think I need to know.
 

anonymous

New member
Have no worries. Your cousin will live a long long life. Sure with some struggles. But whose life isn't without stuggles jus some have more. I am 21 and still doing fine with cf. Sure i get sick but that doesn't stop me from doing things i like to do. Its good that she is diagnosed this young. That why her parents and family can learn aobut the disease and know how to treat it. She will get the proper care early in life. Some cf patients don't get diagnosed until later and that can hurt their health. But this way little Katy will have the best chances from an early start. My advise to you and her parents is to treat her as if she doesn't ahve cf. I ,mean give her the proper care jsut don't spoil her thinking she won't live long. She will live a wonderful life especially with sucha caring cousin to look after her. Be her best friend. She is young now but in the future she will treasure that friendship as will you. Don't worry everything will be ok. Finding things out will scare you and the rest of the family. But be there for them, tell them it will all be ok. If you research cf thats good but don;t be scared by the life expectancies or other things. As time moves on cf life expectancies are increased a lot and treatments become more affective and easier. So by the time your cousin is my age she will have more opportunity than those who were born with cf 30, 20 and even 10 years ago. Thing change so quickly and for the better. So let your worries go. Everything will be fine.Amandaif you would like another source for people to go to go to this link copy and paste ithttp://groups.msn.com/CysticFibrosis2chat/homepage
 

anonymous

New member
I know that you must be scared, when my brother's best friends were diagnosed with this desease, they were only a few months old, and were a very rare case. (Keep in mind that when they were diagnosed the life expectancy was age seven.) They were ferternal twins and right now are struggling with the disease. One of the kids, we'll call him "John" loves vegetables, but isn't allowed to eat them, because they fill his stomach, but that is not going to help him gain weight. Even colds are a big struggle for them. Life might be harder for them, but they try to enjoy it as much as they can, trying to see past the daily treatments that they have to go through. Dont worry, you cousin will be fine. There are new scientific advancements constantly being made. <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

anonymous

New member
one of my close friends have CF and i told her about this post she said don't worry it will be years before anyone even has to worry about her dying. so take a deep breath and relax... most people who have cf are gonna live at the least of 30 years most likely longer though and since she was diagnosed early she will live so much longer.<img src="i/expressions/face-icon-small-wink.gif" border="0">.I am also doing research on this disease for a science project at school and i have learned over 30,000 people in the US have cf and over 10,000,000 americans carry the gene. talk to your parents they, and you might carry the gene... but chances r u dont have CF but one day u might have a child who has it.hope i helped...if i did... happy to help.if u would like to talk more and you have AIM im me on LanieC41791or email me<a target=new class=ftalternatingbarlinklarge href="mailto:LooLooLuvsYew@yahoo.com">my email... no junk mail PLEASE!</a>id be happy to keep talking to you about this.u and your cousin are in my prayers God Bless.~in Hope and Love~ ~*~Lanie~*~ttyl ~Buh*Bye~
 

anonymous

New member
Hey,know what? I was only 3 weeks old when I was diagnosed with CF. Though I got really sick, I still made it. so don't worry I think she'll be just fine.So loosen up a bit, and calm down. What my mom did was send me too the haspitl and the doctors said I would be fine. So my mom went home and read a good book to get her mind off things. So it will be OK. Promis!!!!Kayla Whitley
 

sirdrinkwater

New member
My young friends I would like to introduce you to a 66 year old male with CF, I have had it all my life but didn't Know about CF until my Grand nephew was tested. I fit the mold. I was tested January ,2004 positive.So a long full life is in your furtures, one good day and sometimes one bad day at a time. be all that you can be one step at a time.Don't restrict youself, I was a pilot, Federal Border Patrol officer, Worked in corrections, hiked, biked, walked, laughted, loved and now getting married for the fourth time .I am the second oldest CF in South Dakota, a woman is 72, so we have long lives.Love too all. one day at a time RUN HARD><img src="i/expressions/heart.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
 

anonymous

New member
Hey when i was born they told my parents i had CF and they didnt think i would make it but iam here now and i am fine i feel just fine. SO dont worry i think she'll do just fine
 

anonymous

New member
yes, it can be very hard having this disease.. Sometimes I don't even want to deal with it..I'm 19 and it can be hard to face some of the realities..but if she is treated properly it is possible for her to live a very long time...so keep your head up!
 
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