P
pepperderr
Guest
Now that I have been to this fourm and was thinking about it, a lot of times when I kiss my husband there is definitely a salty taste. He has never been diagnosed with CF but never been tested either. He has terrible sinus problems but otherwise, I don't know of any other symptoms. Could he be a carrier and have the salty tasting skin or is that only with people who definitely HAVE CF?
I am asking this because our 2yo is labled failure to thrive although now he is on 3 or 4 cans of Pediasure a day and doing much better. He had a feeding tube in his nose until he was a year old and starte the Pediasure. He has lots of throwing up wich of course they labled reflux. He has never had a formed stool in his life but I am not sure it would "look" like what you all discribe in patients with CF. They did a CF test on him and had to repeat it twice saying they didn't get enough the first time. I think he was about 6 months or less at the time and very small. Could they have done the tests wrong or he was borderline and they just said that it isn't the problem. I have no idea what the number was for the sweat test. I just assumed he doesn't have it because he is getting better and I didn't know much about it anyway.
Now my 6yo is being given a sweat test in a few weeks because they have ruled out just about everything they can think of besides CF. He too has never had a formed stool in his life and it definitely floats. He has a chronic cough but it had gone away for about 2 weeks and now it is back it sounds a lot worse than before. I keep asking him if he is coughing anything up be he says no. He vomits a lot at night but they suposedly ruled out acid refulx. He had a bleeding ulcer at 4yo. He has a lot of sinus problems like his dad but he aslo has allergies. So far no asthma or allergy meds or cough meds make his cough go away. He is low on the weight charts too just like his brother but never offically diagnosed with FTT.
I know his symptoms my not have anything to do with CF so I am asking this because I want to know if I should push the doc to do more tests if it comes back negative on a sweat test? I have never been tested either. When I looked up the list of CF clinics the hospital where he already goes is on the list but I don't know if he would see someone in a different department for testing or just think they know what they are doing when it comes to the sweat test? He sees a pulmonary doc there now. Thanks!
Rebecca
I am asking this because our 2yo is labled failure to thrive although now he is on 3 or 4 cans of Pediasure a day and doing much better. He had a feeding tube in his nose until he was a year old and starte the Pediasure. He has lots of throwing up wich of course they labled reflux. He has never had a formed stool in his life but I am not sure it would "look" like what you all discribe in patients with CF. They did a CF test on him and had to repeat it twice saying they didn't get enough the first time. I think he was about 6 months or less at the time and very small. Could they have done the tests wrong or he was borderline and they just said that it isn't the problem. I have no idea what the number was for the sweat test. I just assumed he doesn't have it because he is getting better and I didn't know much about it anyway.
Now my 6yo is being given a sweat test in a few weeks because they have ruled out just about everything they can think of besides CF. He too has never had a formed stool in his life and it definitely floats. He has a chronic cough but it had gone away for about 2 weeks and now it is back it sounds a lot worse than before. I keep asking him if he is coughing anything up be he says no. He vomits a lot at night but they suposedly ruled out acid refulx. He had a bleeding ulcer at 4yo. He has a lot of sinus problems like his dad but he aslo has allergies. So far no asthma or allergy meds or cough meds make his cough go away. He is low on the weight charts too just like his brother but never offically diagnosed with FTT.
I know his symptoms my not have anything to do with CF so I am asking this because I want to know if I should push the doc to do more tests if it comes back negative on a sweat test? I have never been tested either. When I looked up the list of CF clinics the hospital where he already goes is on the list but I don't know if he would see someone in a different department for testing or just think they know what they are doing when it comes to the sweat test? He sees a pulmonary doc there now. Thanks!
Rebecca
