Scared mom...

J

JamieB

Guest
My daughter is 11 years old and we started to see an allergist in January. He did a CT scan and she was diagnosed with nasal polyps & chronic sinus infections. After 6 weeks of antibiotics and about 8 weeks of steroids she is finally clear for the first time in her life.

Because of the nasal polyps the doc ordered a sweat test. We had it done on Monday, but is wasn't done at a CF center. Her result was 61 - I was shocked. Now we are waiting for our appointment to be scheduled at the CF center at Childrens Hospital in Dallas to have the test repeated.

My daughter does not have any other symptoms besides the polyps and chronic sinus stuff. I am worried and scared sick because of this. I have read & reread many of the posts on this forum and was just wondering if anyone had any experience similiar to mine also was curious if anyone attends the CF center at Childrens Hospital in Dallas.

Jamie
 
J

JamieB

Guest
My daughter is 11 years old and we started to see an allergist in January. He did a CT scan and she was diagnosed with nasal polyps & chronic sinus infections. After 6 weeks of antibiotics and about 8 weeks of steroids she is finally clear for the first time in her life.

Because of the nasal polyps the doc ordered a sweat test. We had it done on Monday, but is wasn't done at a CF center. Her result was 61 - I was shocked. Now we are waiting for our appointment to be scheduled at the CF center at Childrens Hospital in Dallas to have the test repeated.

My daughter does not have any other symptoms besides the polyps and chronic sinus stuff. I am worried and scared sick because of this. I have read & reread many of the posts on this forum and was just wondering if anyone had any experience similiar to mine also was curious if anyone attends the CF center at Childrens Hospital in Dallas.

Jamie
 
J

JamieB

Guest
My daughter is 11 years old and we started to see an allergist in January. He did a CT scan and she was diagnosed with nasal polyps & chronic sinus infections. After 6 weeks of antibiotics and about 8 weeks of steroids she is finally clear for the first time in her life.

Because of the nasal polyps the doc ordered a sweat test. We had it done on Monday, but is wasn't done at a CF center. Her result was 61 - I was shocked. Now we are waiting for our appointment to be scheduled at the CF center at Childrens Hospital in Dallas to have the test repeated.

My daughter does not have any other symptoms besides the polyps and chronic sinus stuff. I am worried and scared sick because of this. I have read & reread many of the posts on this forum and was just wondering if anyone had any experience similiar to mine also was curious if anyone attends the CF center at Childrens Hospital in Dallas.

Jamie
 
J

JazzysMom

New member
We do have a few CFers that have mainly sinus issues and no other problems. They are the minority, but they exist. You are better to find out now and get appropriate treatment. Let us know what happens!
 
J

JazzysMom

New member
We do have a few CFers that have mainly sinus issues and no other problems. They are the minority, but they exist. You are better to find out now and get appropriate treatment. Let us know what happens!
 
J

JazzysMom

New member
We do have a few CFers that have mainly sinus issues and no other problems. They are the minority, but they exist. You are better to find out now and get appropriate treatment. Let us know what happens!
 
M

mneville

Guest
So sorry you are going through this. We have a two year old with CF who was diagnosed through newborn screening. He is pancreatic insufficient so he does require enzymes. However he has been very healthy other than sinus issues. He had sinus surgery at 1 and has also had nasal polyps. I know you must be so confused and shocked. Nasal polyps are a pretty good indication of Cystic Fibrosis from what we have been told. Take one day at a time and see what the CF Center tells you next.

megan
 
M

mneville

Guest
So sorry you are going through this. We have a two year old with CF who was diagnosed through newborn screening. He is pancreatic insufficient so he does require enzymes. However he has been very healthy other than sinus issues. He had sinus surgery at 1 and has also had nasal polyps. I know you must be so confused and shocked. Nasal polyps are a pretty good indication of Cystic Fibrosis from what we have been told. Take one day at a time and see what the CF Center tells you next.

megan
 
M

mneville

Guest
So sorry you are going through this. We have a two year old with CF who was diagnosed through newborn screening. He is pancreatic insufficient so he does require enzymes. However he has been very healthy other than sinus issues. He had sinus surgery at 1 and has also had nasal polyps. I know you must be so confused and shocked. Nasal polyps are a pretty good indication of Cystic Fibrosis from what we have been told. Take one day at a time and see what the CF Center tells you next.

megan
 
J

JamieB

Guest
Thank you for responding. We have another sweat test scheduled for tomorrow morning - hopefully I will know something by tomorrow afternoon.

Jamie
 
J

JamieB

Guest
Thank you for responding. We have another sweat test scheduled for tomorrow morning - hopefully I will know something by tomorrow afternoon.

Jamie
 
J

JamieB

Guest
Thank you for responding. We have another sweat test scheduled for tomorrow morning - hopefully I will know something by tomorrow afternoon.

Jamie
 
M

MYBOY

New member
Hi Jamie-
My son is 9 w/CF. He has had alot of sinus issues but not lung issues. He takes enzymes also. He has had nasal polyps removed 4 times now - hopefully the last time! Our ENT doc - which worked at the CF clinic - says polyps are a sign of CF in children - but he told us they seem to have less lung involvment in his opinion anyway. Don't know if thats true - I'm sure it will catch up with us sometime in the future. Hang in there - I'm sure you would like to get answers and be able to treat. Wishing you the best!!! We have always done the CPT and breathing treatments also.
 
M

MYBOY

New member
Hi Jamie-
My son is 9 w/CF. He has had alot of sinus issues but not lung issues. He takes enzymes also. He has had nasal polyps removed 4 times now - hopefully the last time! Our ENT doc - which worked at the CF clinic - says polyps are a sign of CF in children - but he told us they seem to have less lung involvment in his opinion anyway. Don't know if thats true - I'm sure it will catch up with us sometime in the future. Hang in there - I'm sure you would like to get answers and be able to treat. Wishing you the best!!! We have always done the CPT and breathing treatments also.
 
M

MYBOY

New member
Hi Jamie-
My son is 9 w/CF. He has had alot of sinus issues but not lung issues. He takes enzymes also. He has had nasal polyps removed 4 times now - hopefully the last time! Our ENT doc - which worked at the CF clinic - says polyps are a sign of CF in children - but he told us they seem to have less lung involvment in his opinion anyway. Don't know if thats true - I'm sure it will catch up with us sometime in the future. Hang in there - I'm sure you would like to get answers and be able to treat. Wishing you the best!!! We have always done the CPT and breathing treatments also.
 
T

tammykrumrey

Guest
Other people do get polyps also, it's just not as common. They can have allergies, hay fever, or bad sinus infections. I believe I have read that about 1 in 4 people with CF develop nasal polyps.

But with her sweat test results being elevated, it is good to re-do them and possilby think of geting the genetic screening. I feel that it is best to rule it out. I have read that if a child does develop polyps, it is a very good idea to test for CF, so I am happy to see that your daughters doctor is being agressive in finding out what is causing her these problems.

Please keep us updated on what goes on.
 
T

tammykrumrey

Guest
Other people do get polyps also, it's just not as common. They can have allergies, hay fever, or bad sinus infections. I believe I have read that about 1 in 4 people with CF develop nasal polyps.

But with her sweat test results being elevated, it is good to re-do them and possilby think of geting the genetic screening. I feel that it is best to rule it out. I have read that if a child does develop polyps, it is a very good idea to test for CF, so I am happy to see that your daughters doctor is being agressive in finding out what is causing her these problems.

Please keep us updated on what goes on.
 
T

tammykrumrey

Guest
Other people do get polyps also, it's just not as common. They can have allergies, hay fever, or bad sinus infections. I believe I have read that about 1 in 4 people with CF develop nasal polyps.

But with her sweat test results being elevated, it is good to re-do them and possilby think of geting the genetic screening. I feel that it is best to rule it out. I have read that if a child does develop polyps, it is a very good idea to test for CF, so I am happy to see that your daughters doctor is being agressive in finding out what is causing her these problems.

Please keep us updated on what goes on.
 
Z

Zoey7206

New member
hey Jamie! My name is Sarah. My daughter Zoey is 8 1/2 months old with cf. We attend the CF clinic in Dallas also. Zoey's doc is Dr. Prestige. They are really sweet over there. What is your daughters doctors name? I can't believe I finally found someone who goes to the childrens medical center in dallas on this site!!! Do you live in Dallas?
 
Z

Zoey7206

New member
hey Jamie! My name is Sarah. My daughter Zoey is 8 1/2 months old with cf. We attend the CF clinic in Dallas also. Zoey's doc is Dr. Prestige. They are really sweet over there. What is your daughters doctors name? I can't believe I finally found someone who goes to the childrens medical center in dallas on this site!!! Do you live in Dallas?
 
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