Scedosporium apiospermum

CaliSally

New member
Well, today I just got a copy of the results of a culture (from a year ago) and had this in it. Though I'm still waiting to hear what last weeks culture showed.

I don't know anything about this one. I tried googling it and keep coming up with the same dr-speak mumbo jumbo. And, not all of the cases were CF/Lung, but were cancer and HIV patients. I guess it's fungal, but I don't know what drugs are anti-fungal.

Is there a site you guys utilize to review bugs and treatments of them?
 

CaliSally

New member
Well, today I just got a copy of the results of a culture (from a year ago) and had this in it. Though I'm still waiting to hear what last weeks culture showed.

I don't know anything about this one. I tried googling it and keep coming up with the same dr-speak mumbo jumbo. And, not all of the cases were CF/Lung, but were cancer and HIV patients. I guess it's fungal, but I don't know what drugs are anti-fungal.

Is there a site you guys utilize to review bugs and treatments of them?
 

CaliSally

New member
Well, today I just got a copy of the results of a culture (from a year ago) and had this in it. Though I'm still waiting to hear what last weeks culture showed.

I don't know anything about this one. I tried googling it and keep coming up with the same dr-speak mumbo jumbo. And, not all of the cases were CF/Lung, but were cancer and HIV patients. I guess it's fungal, but I don't know what drugs are anti-fungal.

Is there a site you guys utilize to review bugs and treatments of them?
 

CaliSally

New member
Well, today I just got a copy of the results of a culture (from a year ago) and had this in it. Though I'm still waiting to hear what last weeks culture showed.

I don't know anything about this one. I tried googling it and keep coming up with the same dr-speak mumbo jumbo. And, not all of the cases were CF/Lung, but were cancer and HIV patients. I guess it's fungal, but I don't know what drugs are anti-fungal.

Is there a site you guys utilize to review bugs and treatments of them?
 

CaliSally

New member
Well, today I just got a copy of the results of a culture (from a year ago) and had this in it. Though I'm still waiting to hear what last weeks culture showed.
<br />
<br />I don't know anything about this one. I tried googling it and keep coming up with the same dr-speak mumbo jumbo. And, not all of the cases were CF/Lung, but were cancer and HIV patients. I guess it's fungal, but I don't know what drugs are anti-fungal.
<br />
<br />Is there a site you guys utilize to review bugs and treatments of them?
<br />
<br />
<br />
 

CowTown

New member
Hi Sally, I tried to do some searching for you and all I saw was a lot of mumbo jumbo that I could not figure out also. Sorry for the no-help. I've never heard of it before. Sounds similar maybe to pseudo though.

I don't have one site I go for looking up bugs. I just google the names and see what comes up. WebMD is one, but there isn't any mention of this one in there. Ask Rao to explain it to you. Did you just get a copy of your medical report? Is that why you're just finding out?
 

CowTown

New member
Hi Sally, I tried to do some searching for you and all I saw was a lot of mumbo jumbo that I could not figure out also. Sorry for the no-help. I've never heard of it before. Sounds similar maybe to pseudo though.

I don't have one site I go for looking up bugs. I just google the names and see what comes up. WebMD is one, but there isn't any mention of this one in there. Ask Rao to explain it to you. Did you just get a copy of your medical report? Is that why you're just finding out?
 

CowTown

New member
Hi Sally, I tried to do some searching for you and all I saw was a lot of mumbo jumbo that I could not figure out also. Sorry for the no-help. I've never heard of it before. Sounds similar maybe to pseudo though.

I don't have one site I go for looking up bugs. I just google the names and see what comes up. WebMD is one, but there isn't any mention of this one in there. Ask Rao to explain it to you. Did you just get a copy of your medical report? Is that why you're just finding out?
 

CowTown

New member
Hi Sally, I tried to do some searching for you and all I saw was a lot of mumbo jumbo that I could not figure out also. Sorry for the no-help. I've never heard of it before. Sounds similar maybe to pseudo though.

I don't have one site I go for looking up bugs. I just google the names and see what comes up. WebMD is one, but there isn't any mention of this one in there. Ask Rao to explain it to you. Did you just get a copy of your medical report? Is that why you're just finding out?
 

CowTown

New member
Hi Sally, I tried to do some searching for you and all I saw was a lot of mumbo jumbo that I could not figure out also. Sorry for the no-help. I've never heard of it before. Sounds similar maybe to pseudo though.
<br />
<br />I don't have one site I go for looking up bugs. I just google the names and see what comes up. WebMD is one, but there isn't any mention of this one in there. Ask Rao to explain it to you. Did you just get a copy of your medical report? Is that why you're just finding out?
 

etabetac

New member
I don't culture this but was curious about this bug so I read some of those big word websites. I have some experience in reading difficult things like this so I thought I'd share what I read, though you definitely shouldn't take this as anything other than my interpretation of the websites.

This fungus occurs in people who have no problems with their immune systems and those who do have immune system problems (AIDS, HIV). The treatment of the fungus is tricky because it is resistant to many drugs including amphotericin, ketoconazole, fluconazole, itraconazole, and several more. However, while the fungus is resistant on an individual basis, pairing two of the drugs (itraconazole and terbinafine) has been effective (95% of strains in labs respond to the pairing). Amphotericin, particularly with other drugs in the anti-fungal category has been effective in helping control the fungus or stop colonization. However, the literature suggests that there is a greater need for more research and new treatments. Outcomes are based on your immune status and where the fungus is.

Also, a study looking specifically at the colonization of this fungus in cf patients found that this was the second most common fungus after aspergillus. It may be even more frequent than we know about in pwcf. It tends to occur in pwcf only if they have underlying lung disease/damage. Like aspergillus it may trigger inflammation.

There's not a lot available on the treatment of this fungus in cf. My guess would be that treatment would involve, depending on how colonized you are, anti-fungual ivs, inhaled amphotericin, steroids (oral and probably ongoing inhaled steroids to treat inflammation). But again, this is just a guess. I have no personal experience with treating or being treated for this fungus.
 

etabetac

New member
I don't culture this but was curious about this bug so I read some of those big word websites. I have some experience in reading difficult things like this so I thought I'd share what I read, though you definitely shouldn't take this as anything other than my interpretation of the websites.

This fungus occurs in people who have no problems with their immune systems and those who do have immune system problems (AIDS, HIV). The treatment of the fungus is tricky because it is resistant to many drugs including amphotericin, ketoconazole, fluconazole, itraconazole, and several more. However, while the fungus is resistant on an individual basis, pairing two of the drugs (itraconazole and terbinafine) has been effective (95% of strains in labs respond to the pairing). Amphotericin, particularly with other drugs in the anti-fungal category has been effective in helping control the fungus or stop colonization. However, the literature suggests that there is a greater need for more research and new treatments. Outcomes are based on your immune status and where the fungus is.

Also, a study looking specifically at the colonization of this fungus in cf patients found that this was the second most common fungus after aspergillus. It may be even more frequent than we know about in pwcf. It tends to occur in pwcf only if they have underlying lung disease/damage. Like aspergillus it may trigger inflammation.

There's not a lot available on the treatment of this fungus in cf. My guess would be that treatment would involve, depending on how colonized you are, anti-fungual ivs, inhaled amphotericin, steroids (oral and probably ongoing inhaled steroids to treat inflammation). But again, this is just a guess. I have no personal experience with treating or being treated for this fungus.
 

etabetac

New member
I don't culture this but was curious about this bug so I read some of those big word websites. I have some experience in reading difficult things like this so I thought I'd share what I read, though you definitely shouldn't take this as anything other than my interpretation of the websites.

This fungus occurs in people who have no problems with their immune systems and those who do have immune system problems (AIDS, HIV). The treatment of the fungus is tricky because it is resistant to many drugs including amphotericin, ketoconazole, fluconazole, itraconazole, and several more. However, while the fungus is resistant on an individual basis, pairing two of the drugs (itraconazole and terbinafine) has been effective (95% of strains in labs respond to the pairing). Amphotericin, particularly with other drugs in the anti-fungal category has been effective in helping control the fungus or stop colonization. However, the literature suggests that there is a greater need for more research and new treatments. Outcomes are based on your immune status and where the fungus is.

Also, a study looking specifically at the colonization of this fungus in cf patients found that this was the second most common fungus after aspergillus. It may be even more frequent than we know about in pwcf. It tends to occur in pwcf only if they have underlying lung disease/damage. Like aspergillus it may trigger inflammation.

There's not a lot available on the treatment of this fungus in cf. My guess would be that treatment would involve, depending on how colonized you are, anti-fungual ivs, inhaled amphotericin, steroids (oral and probably ongoing inhaled steroids to treat inflammation). But again, this is just a guess. I have no personal experience with treating or being treated for this fungus.
 

etabetac

New member
I don't culture this but was curious about this bug so I read some of those big word websites. I have some experience in reading difficult things like this so I thought I'd share what I read, though you definitely shouldn't take this as anything other than my interpretation of the websites.

This fungus occurs in people who have no problems with their immune systems and those who do have immune system problems (AIDS, HIV). The treatment of the fungus is tricky because it is resistant to many drugs including amphotericin, ketoconazole, fluconazole, itraconazole, and several more. However, while the fungus is resistant on an individual basis, pairing two of the drugs (itraconazole and terbinafine) has been effective (95% of strains in labs respond to the pairing). Amphotericin, particularly with other drugs in the anti-fungal category has been effective in helping control the fungus or stop colonization. However, the literature suggests that there is a greater need for more research and new treatments. Outcomes are based on your immune status and where the fungus is.

Also, a study looking specifically at the colonization of this fungus in cf patients found that this was the second most common fungus after aspergillus. It may be even more frequent than we know about in pwcf. It tends to occur in pwcf only if they have underlying lung disease/damage. Like aspergillus it may trigger inflammation.

There's not a lot available on the treatment of this fungus in cf. My guess would be that treatment would involve, depending on how colonized you are, anti-fungual ivs, inhaled amphotericin, steroids (oral and probably ongoing inhaled steroids to treat inflammation). But again, this is just a guess. I have no personal experience with treating or being treated for this fungus.
 

etabetac

New member
I don't culture this but was curious about this bug so I read some of those big word websites. I have some experience in reading difficult things like this so I thought I'd share what I read, though you definitely shouldn't take this as anything other than my interpretation of the websites.
<br />
<br />This fungus occurs in people who have no problems with their immune systems and those who do have immune system problems (AIDS, HIV). The treatment of the fungus is tricky because it is resistant to many drugs including amphotericin, ketoconazole, fluconazole, itraconazole, and several more. However, while the fungus is resistant on an individual basis, pairing two of the drugs (itraconazole and terbinafine) has been effective (95% of strains in labs respond to the pairing). Amphotericin, particularly with other drugs in the anti-fungal category has been effective in helping control the fungus or stop colonization. However, the literature suggests that there is a greater need for more research and new treatments. Outcomes are based on your immune status and where the fungus is.
<br />
<br />Also, a study looking specifically at the colonization of this fungus in cf patients found that this was the second most common fungus after aspergillus. It may be even more frequent than we know about in pwcf. It tends to occur in pwcf only if they have underlying lung disease/damage. Like aspergillus it may trigger inflammation.
<br />
<br />There's not a lot available on the treatment of this fungus in cf. My guess would be that treatment would involve, depending on how colonized you are, anti-fungual ivs, inhaled amphotericin, steroids (oral and probably ongoing inhaled steroids to treat inflammation). But again, this is just a guess. I have no personal experience with treating or being treated for this fungus.
<br />
 

CaliSally

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i>
Did you just get a copy of your medical report? Is that why you're just finding out?</end quote></div>
I'm in for a tune-up <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> and the pulmo asked if I was taking an anti-fungal. I said "not that I know of, why" He mentioned a lab result showing this growth and I got a copy of it from him. The culture was from May 2007. But in the assessment sheets they give us at clinic, the last culture (Oct 2007) only names pseudo and staph.
I will have to send an email to Rao. Maybe I had it but it's gone? Maybe, like you said and as I thought I read, it's still named in the pseudo class/ category/whatever.

And thank you etabetac for your interpretations.

p.s. I freaked out when I saw a picture of it OMFG!! fungus does not belong in the body!
 

CaliSally

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i>
Did you just get a copy of your medical report? Is that why you're just finding out?</end quote></div>
I'm in for a tune-up <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> and the pulmo asked if I was taking an anti-fungal. I said "not that I know of, why" He mentioned a lab result showing this growth and I got a copy of it from him. The culture was from May 2007. But in the assessment sheets they give us at clinic, the last culture (Oct 2007) only names pseudo and staph.
I will have to send an email to Rao. Maybe I had it but it's gone? Maybe, like you said and as I thought I read, it's still named in the pseudo class/ category/whatever.

And thank you etabetac for your interpretations.

p.s. I freaked out when I saw a picture of it OMFG!! fungus does not belong in the body!
 

CaliSally

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i>
Did you just get a copy of your medical report? Is that why you're just finding out?</end quote></div>
I'm in for a tune-up <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> and the pulmo asked if I was taking an anti-fungal. I said "not that I know of, why" He mentioned a lab result showing this growth and I got a copy of it from him. The culture was from May 2007. But in the assessment sheets they give us at clinic, the last culture (Oct 2007) only names pseudo and staph.
I will have to send an email to Rao. Maybe I had it but it's gone? Maybe, like you said and as I thought I read, it's still named in the pseudo class/ category/whatever.

And thank you etabetac for your interpretations.

p.s. I freaked out when I saw a picture of it OMFG!! fungus does not belong in the body!
 

CaliSally

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i>
Did you just get a copy of your medical report? Is that why you're just finding out?</end quote>
I'm in for a tune-up <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> and the pulmo asked if I was taking an anti-fungal. I said "not that I know of, why" He mentioned a lab result showing this growth and I got a copy of it from him. The culture was from May 2007. But in the assessment sheets they give us at clinic, the last culture (Oct 2007) only names pseudo and staph.
I will have to send an email to Rao. Maybe I had it but it's gone? Maybe, like you said and as I thought I read, it's still named in the pseudo class/ category/whatever.

And thank you etabetac for your interpretations.

p.s. I freaked out when I saw a picture of it OMFG!! fungus does not belong in the body!
 

CaliSally

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i>
<br />Did you just get a copy of your medical report? Is that why you're just finding out?</end quote>
<br />I'm in for a tune-up <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> and the pulmo asked if I was taking an anti-fungal. I said "not that I know of, why" He mentioned a lab result showing this growth and I got a copy of it from him. The culture was from May 2007. But in the assessment sheets they give us at clinic, the last culture (Oct 2007) only names pseudo and staph.
<br />I will have to send an email to Rao. Maybe I had it but it's gone? Maybe, like you said and as I thought I read, it's still named in the pseudo class/ category/whatever.
<br />
<br />And thank you etabetac for your interpretations.
<br />
<br />p.s. I freaked out when I saw a picture of it OMFG!! fungus does not belong in the body!
 
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