Hi! My name is Brittnie and I am doing a school project on cf and we need to know how families are effected by the disease and how they deal with it. Honestly I don't really know how families are effected by cf and how they deal with it, informational websites don't give that kind of information. So, if anyone would be willing to give me some information on the effects of cf that would be great! Thanx! ~Britt
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school project
- Thread starter anonymous
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i dont have cf but i know it can be hard for a family to deal with. i know that some people go to therapy to get through the stress of it. I know that children diagnosed with it while still in the mother, alot of families terminate the preganancy. I dont reallyknow how families deal with it, but thats what i have read
Brittnie,I am the mother of a 5 year old with CF. Please visit our website at www.teamtrevor.org. It touches upon some of the things we deal with on a daily basis. If I can answer any additional questions, our website gives you a contact address.Thanks for asking about CF.Christie
Brittnie,feel free to visit our site too. http://groups.msn.com/teamracheljane My daughter is 5 with Cf and i am happy to answer any questions you hve. you can post questions to me on the site's bulletin board. A brief description of our day would go like this:Get up and get Rachel out of bed, give her reflux meds, do nebulizer treatment (s) and chest physio therapy. Make a high fat high calorie breakfast for Rachel and beg her to eat it after she gets her digestive enzymes. oral antibiotics go in. get ready for school (brush teeth, clean up get dressed.........) take her to school for a few hours. (she gets a snack and more enzymes there) Go home and clean out the nebs so we are ready for them later. pick her up from school, more reflux meds before lunchtime. digestive enzymes and lunch. play or read whatever 5 year old stuff we want to do. have a high fat high cal snack with enzymes. around 4 pm we start nebs and vest treatments again. they take about 20 min to half hour for us, but everyone is different. more reflux meds, dinner with more enzymesregular evening stuff like bathtime and watching tv with Daddy. I get the g-tube feed ready and hook Rachel up to it. (Rachel has a g-tube because she doesn't eat enough). She finally falls asleep with it running and then we get to rest!yes this is the short version.Andreamom of Rachel 5 with CF and a baby boy on the way
Britt,We just found out that we are having a child with CF. Someone mentioned that it is possible to terminate the pregnancy and we contemplated that, but not finding out until the baby was 20-21 weeks makes it very difficult to terminate. After you can feel the baby inside you and when you are trying to have a baby you want to do everything possible to keep this baby.At first I was angry and think that I am still am to a certain point, but know that things happen for a reason and god is leading us the way we should be lead. We are due in June and im sure that we will be very busy in handling all of this, but I wouldnt trade it for anything. Little Kaylee will be with us hopefully for a long time but only as long as god wants her to be with us.I am still dealing with emotional issues, but know that these will pass in time.Sorry, I couldnt be more help, but until she is here with us I have no idea what its going to be like. I do know that I have a whole different perspective on life!
Britt,I am a 29 year old without cf. I have two siblings with cf. I have helped one young man with a school project a couple of weeks ago and I would be more than willing to help you out, from a sibling point of view. my email is isomsail@msn.com. Email me anytime. I will email back asap. Thanks.Kay29yr old w/o cf2 siblings w/cf
beetlebrat
New member
Hey! Thank you guys so much. You have been really helpful!! ~~~Britt