Grayson has always had looser stools. On top of her having CF, she has short gut too. She pulled the short straw for sure. In morning there is a huge blow out and a mess to clean. I talked to the nutritionist about the powder enzyme to put in her formula at nite to help with the stool output. They don't want to put her on it. They don't like to use it. They backed her down to 4 enzymes with meals and snacks we give 2. So all day long i am cleaning up poop. She has very loose stools and makes a mess on everything if i don't catch it soon enough. So on top of her needing full time care im feeling like im poop patrol. Not to mention i broke my hand and have a cast and 2 fingers. Plus its my writing hand. I am disabled at doing the littlest tasks. I can't read my own writing.LOL! Anyway, how many enzymes do you give? They are so picky with G and don't like changing things with her. They calculate everything. Im frustruated cuz they don't change these blowouts daily. Poor baby gets sores on her butt. The latest change they did was at nite feedings we can reduce the time but increase the rate. Well duh, its the same amount in the end. By morning she still gets the full amount. That don't help. So any ideas?
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
should i adjust enzymes?
- Thread starter Tcole
- Start date
Grayson has always had looser stools. On top of her having CF, she has short gut too. She pulled the short straw for sure. In morning there is a huge blow out and a mess to clean. I talked to the nutritionist about the powder enzyme to put in her formula at nite to help with the stool output. They don't want to put her on it. They don't like to use it. They backed her down to 4 enzymes with meals and snacks we give 2. So all day long i am cleaning up poop. She has very loose stools and makes a mess on everything if i don't catch it soon enough. So on top of her needing full time care im feeling like im poop patrol. Not to mention i broke my hand and have a cast and 2 fingers. Plus its my writing hand. I am disabled at doing the littlest tasks. I can't read my own writing.LOL! Anyway, how many enzymes do you give? They are so picky with G and don't like changing things with her. They calculate everything. Im frustruated cuz they don't change these blowouts daily. Poor baby gets sores on her butt. The latest change they did was at nite feedings we can reduce the time but increase the rate. Well duh, its the same amount in the end. By morning she still gets the full amount. That don't help. So any ideas?
Grayson has always had looser stools. On top of her having CF, she has short gut too. She pulled the short straw for sure. In morning there is a huge blow out and a mess to clean. I talked to the nutritionist about the powder enzyme to put in her formula at nite to help with the stool output. They don't want to put her on it. They don't like to use it. They backed her down to 4 enzymes with meals and snacks we give 2. So all day long i am cleaning up poop. She has very loose stools and makes a mess on everything if i don't catch it soon enough. So on top of her needing full time care im feeling like im poop patrol. Not to mention i broke my hand and have a cast and 2 fingers. Plus its my writing hand. I am disabled at doing the littlest tasks. I can't read my own writing.LOL! Anyway, how many enzymes do you give? They are so picky with G and don't like changing things with her. They calculate everything. Im frustruated cuz they don't change these blowouts daily. Poor baby gets sores on her butt. The latest change they did was at nite feedings we can reduce the time but increase the rate. Well duh, its the same amount in the end. By morning she still gets the full amount. That don't help. So any ideas?
Grayson has always had looser stools. On top of her having CF, she has short gut too. She pulled the short straw for sure. In morning there is a huge blow out and a mess to clean. I talked to the nutritionist about the powder enzyme to put in her formula at nite to help with the stool output. They don't want to put her on it. They don't like to use it. They backed her down to 4 enzymes with meals and snacks we give 2. So all day long i am cleaning up poop. She has very loose stools and makes a mess on everything if i don't catch it soon enough. So on top of her needing full time care im feeling like im poop patrol. Not to mention i broke my hand and have a cast and 2 fingers. Plus its my writing hand. I am disabled at doing the littlest tasks. I can't read my own writing.LOL! Anyway, how many enzymes do you give? They are so picky with G and don't like changing things with her. They calculate everything. Im frustruated cuz they don't change these blowouts daily. Poor baby gets sores on her butt. The latest change they did was at nite feedings we can reduce the time but increase the rate. Well duh, its the same amount in the end. By morning she still gets the full amount. That don't help. So any ideas?
Grayson has always had looser stools. On top of her having CF, she has short gut too. She pulled the short straw for sure. In morning there is a huge blow out and a mess to clean. I talked to the nutritionist about the powder enzyme to put in her formula at nite to help with the stool output. They don't want to put her on it. They don't like to use it. They backed her down to 4 enzymes with meals and snacks we give 2. So all day long i am cleaning up poop. She has very loose stools and makes a mess on everything if i don't catch it soon enough. So on top of her needing full time care im feeling like im poop patrol. Not to mention i broke my hand and have a cast and 2 fingers. Plus its my writing hand. I am disabled at doing the littlest tasks. I can't read my own writing.LOL! Anyway, how many enzymes do you give? They are so picky with G and don't like changing things with her. They calculate everything. Im frustruated cuz they don't change these blowouts daily. Poor baby gets sores on her butt. The latest change they did was at nite feedings we can reduce the time but increase the rate. Well duh, its the same amount in the end. By morning she still gets the full amount. That don't help. So any ideas?
ehtansky21
New member
What type of snacks is she having???? Caleb has big enough snacks that he just takes the dosage he usually does for meals. I would look at the calorie/fat amount and see if the dosage for snacks is correct...
blessings,
missa
blessings,
missa
ehtansky21
New member
What type of snacks is she having???? Caleb has big enough snacks that he just takes the dosage he usually does for meals. I would look at the calorie/fat amount and see if the dosage for snacks is correct...
blessings,
missa
blessings,
missa
ehtansky21
New member
What type of snacks is she having???? Caleb has big enough snacks that he just takes the dosage he usually does for meals. I would look at the calorie/fat amount and see if the dosage for snacks is correct...
blessings,
missa
blessings,
missa
ehtansky21
New member
What type of snacks is she having???? Caleb has big enough snacks that he just takes the dosage he usually does for meals. I would look at the calorie/fat amount and see if the dosage for snacks is correct...
blessings,
missa
blessings,
missa
ehtansky21
New member
What type of snacks is she having???? Caleb has big enough snacks that he just takes the dosage he usually does for meals. I would look at the calorie/fat amount and see if the dosage for snacks is correct...
<br />
<br />blessings,
<br />missa
<br />
<br />blessings,
<br />missa
Has the nutritionist done any calculations based on what she's eating? When we used to go to the local CF clinic, a week before the appointment, we were supposed to write down typical meals/snacks and they would calculate the caloric content as well as fat. DS was on extra calorie formula, plus by the time he was 6 months old he was getting babyfood and regular ground up food fortified with butter, cream, olive oil... So we based DS' enzymes on input and output.
Unfortunately, we still dealt with a lot of diaper bombs, poop up the back until DS was older -- I dont' recall really seeing real "normal" poop until he was off formula and eating/drinking regular food. And it wasn't until last summer when the enzymes were changed to a higher dosage that we stopped seeing as many loose, bulky, floaters.
And even when DS was a baby, when we did gradually adjust his enzymes -- half a capsule at a time, sometimes we had to go back because he'd end up with constipation issues.
Diaper/Normal Poop issues were the one thing that drove me the most insane -- there just wasn't a simple answer as to what normal poop looked like, how many enzymes to give ds. Soooo frustrating.
Unfortunately, we still dealt with a lot of diaper bombs, poop up the back until DS was older -- I dont' recall really seeing real "normal" poop until he was off formula and eating/drinking regular food. And it wasn't until last summer when the enzymes were changed to a higher dosage that we stopped seeing as many loose, bulky, floaters.
And even when DS was a baby, when we did gradually adjust his enzymes -- half a capsule at a time, sometimes we had to go back because he'd end up with constipation issues.
Diaper/Normal Poop issues were the one thing that drove me the most insane -- there just wasn't a simple answer as to what normal poop looked like, how many enzymes to give ds. Soooo frustrating.
Has the nutritionist done any calculations based on what she's eating? When we used to go to the local CF clinic, a week before the appointment, we were supposed to write down typical meals/snacks and they would calculate the caloric content as well as fat. DS was on extra calorie formula, plus by the time he was 6 months old he was getting babyfood and regular ground up food fortified with butter, cream, olive oil... So we based DS' enzymes on input and output.
Unfortunately, we still dealt with a lot of diaper bombs, poop up the back until DS was older -- I dont' recall really seeing real "normal" poop until he was off formula and eating/drinking regular food. And it wasn't until last summer when the enzymes were changed to a higher dosage that we stopped seeing as many loose, bulky, floaters.
And even when DS was a baby, when we did gradually adjust his enzymes -- half a capsule at a time, sometimes we had to go back because he'd end up with constipation issues.
Diaper/Normal Poop issues were the one thing that drove me the most insane -- there just wasn't a simple answer as to what normal poop looked like, how many enzymes to give ds. Soooo frustrating.
Unfortunately, we still dealt with a lot of diaper bombs, poop up the back until DS was older -- I dont' recall really seeing real "normal" poop until he was off formula and eating/drinking regular food. And it wasn't until last summer when the enzymes were changed to a higher dosage that we stopped seeing as many loose, bulky, floaters.
And even when DS was a baby, when we did gradually adjust his enzymes -- half a capsule at a time, sometimes we had to go back because he'd end up with constipation issues.
Diaper/Normal Poop issues were the one thing that drove me the most insane -- there just wasn't a simple answer as to what normal poop looked like, how many enzymes to give ds. Soooo frustrating.
Has the nutritionist done any calculations based on what she's eating? When we used to go to the local CF clinic, a week before the appointment, we were supposed to write down typical meals/snacks and they would calculate the caloric content as well as fat. DS was on extra calorie formula, plus by the time he was 6 months old he was getting babyfood and regular ground up food fortified with butter, cream, olive oil... So we based DS' enzymes on input and output.
Unfortunately, we still dealt with a lot of diaper bombs, poop up the back until DS was older -- I dont' recall really seeing real "normal" poop until he was off formula and eating/drinking regular food. And it wasn't until last summer when the enzymes were changed to a higher dosage that we stopped seeing as many loose, bulky, floaters.
And even when DS was a baby, when we did gradually adjust his enzymes -- half a capsule at a time, sometimes we had to go back because he'd end up with constipation issues.
Diaper/Normal Poop issues were the one thing that drove me the most insane -- there just wasn't a simple answer as to what normal poop looked like, how many enzymes to give ds. Soooo frustrating.
Unfortunately, we still dealt with a lot of diaper bombs, poop up the back until DS was older -- I dont' recall really seeing real "normal" poop until he was off formula and eating/drinking regular food. And it wasn't until last summer when the enzymes were changed to a higher dosage that we stopped seeing as many loose, bulky, floaters.
And even when DS was a baby, when we did gradually adjust his enzymes -- half a capsule at a time, sometimes we had to go back because he'd end up with constipation issues.
Diaper/Normal Poop issues were the one thing that drove me the most insane -- there just wasn't a simple answer as to what normal poop looked like, how many enzymes to give ds. Soooo frustrating.
Has the nutritionist done any calculations based on what she's eating? When we used to go to the local CF clinic, a week before the appointment, we were supposed to write down typical meals/snacks and they would calculate the caloric content as well as fat. DS was on extra calorie formula, plus by the time he was 6 months old he was getting babyfood and regular ground up food fortified with butter, cream, olive oil... So we based DS' enzymes on input and output.
Unfortunately, we still dealt with a lot of diaper bombs, poop up the back until DS was older -- I dont' recall really seeing real "normal" poop until he was off formula and eating/drinking regular food. And it wasn't until last summer when the enzymes were changed to a higher dosage that we stopped seeing as many loose, bulky, floaters.
And even when DS was a baby, when we did gradually adjust his enzymes -- half a capsule at a time, sometimes we had to go back because he'd end up with constipation issues.
Diaper/Normal Poop issues were the one thing that drove me the most insane -- there just wasn't a simple answer as to what normal poop looked like, how many enzymes to give ds. Soooo frustrating.
Unfortunately, we still dealt with a lot of diaper bombs, poop up the back until DS was older -- I dont' recall really seeing real "normal" poop until he was off formula and eating/drinking regular food. And it wasn't until last summer when the enzymes were changed to a higher dosage that we stopped seeing as many loose, bulky, floaters.
And even when DS was a baby, when we did gradually adjust his enzymes -- half a capsule at a time, sometimes we had to go back because he'd end up with constipation issues.
Diaper/Normal Poop issues were the one thing that drove me the most insane -- there just wasn't a simple answer as to what normal poop looked like, how many enzymes to give ds. Soooo frustrating.
Has the nutritionist done any calculations based on what she's eating? When we used to go to the local CF clinic, a week before the appointment, we were supposed to write down typical meals/snacks and they would calculate the caloric content as well as fat. DS was on extra calorie formula, plus by the time he was 6 months old he was getting babyfood and regular ground up food fortified with butter, cream, olive oil... So we based DS' enzymes on input and output.
<br />
<br />Unfortunately, we still dealt with a lot of diaper bombs, poop up the back until DS was older -- I dont' recall really seeing real "normal" poop until he was off formula and eating/drinking regular food. And it wasn't until last summer when the enzymes were changed to a higher dosage that we stopped seeing as many loose, bulky, floaters.
<br />
<br />And even when DS was a baby, when we did gradually adjust his enzymes -- half a capsule at a time, sometimes we had to go back because he'd end up with constipation issues.
<br />
<br />Diaper/Normal Poop issues were the one thing that drove me the most insane -- there just wasn't a simple answer as to what normal poop looked like, how many enzymes to give ds. Soooo frustrating.
<br />
<br />Unfortunately, we still dealt with a lot of diaper bombs, poop up the back until DS was older -- I dont' recall really seeing real "normal" poop until he was off formula and eating/drinking regular food. And it wasn't until last summer when the enzymes were changed to a higher dosage that we stopped seeing as many loose, bulky, floaters.
<br />
<br />And even when DS was a baby, when we did gradually adjust his enzymes -- half a capsule at a time, sometimes we had to go back because he'd end up with constipation issues.
<br />
<br />Diaper/Normal Poop issues were the one thing that drove me the most insane -- there just wasn't a simple answer as to what normal poop looked like, how many enzymes to give ds. Soooo frustrating.
crickit715
New member
i would definatley check with the clinic first...there is a certain enzyme limit depending on the childs weight...my daughter is at the max, so they increased her prevacid which helps the stomach become less acidic and in turn makes the enzymes work better...but unfortunatley we still have really yucky diapers at times
crickit715
New member
i would definatley check with the clinic first...there is a certain enzyme limit depending on the childs weight...my daughter is at the max, so they increased her prevacid which helps the stomach become less acidic and in turn makes the enzymes work better...but unfortunatley we still have really yucky diapers at times
crickit715
New member
i would definatley check with the clinic first...there is a certain enzyme limit depending on the childs weight...my daughter is at the max, so they increased her prevacid which helps the stomach become less acidic and in turn makes the enzymes work better...but unfortunatley we still have really yucky diapers at times
crickit715
New member
i would definatley check with the clinic first...there is a certain enzyme limit depending on the childs weight...my daughter is at the max, so they increased her prevacid which helps the stomach become less acidic and in turn makes the enzymes work better...but unfortunatley we still have really yucky diapers at times
crickit715
New member
i would definatley check with the clinic first...there is a certain enzyme limit depending on the childs weight...my daughter is at the max, so they increased her prevacid which helps the stomach become less acidic and in turn makes the enzymes work better...but unfortunatley we still have really yucky diapers at times