Siblings

[anonymous]

I am 20, I don't have CF but my brother who did have it recently passed away. He was 22. Right now I'm so upset and I hate this stupid disease. I know other people with CF through him, though, who have lost brothers and sisters to the disease and I can't even imagine how difficult it must be for those people. You are all so strong because I don't even have CF and I'm finding it hard to cope, I can't imagine what it's like having a brother or sister passing away from the disease you have yourself.

Also, I was wondering what people with CF's siblings without CF feel about it? I met a girl the other day who's sister has CF and she felt jealous and resentment towards her. I have NEVER felt this about my brother, I always wished I could take it from him and always wanted him to be well. I don't understand how there could be feelings of jealousy. Any insight I'd be glad to hear!

Isabella

 

[anonymous]

Isabella,

My name is Kay. I have an older sister and younger brother with CF. They are both doing good. I too hate this horrible disease. It hurts my heart so much to think that one day this disease could really take over their bodies. As far as the one who is jealous, how old is that person? I was somewhat jealous as a young child, but as an adult, I wish I could take the cf away from them. I know this is silly, but sometimes when I see a falling star, I wish that I could take their cf from them and let them have a healthy life for a change. I love my sister and brother with all my heart and when the time comes for them to go, I can honestly say I am not so sure if I will be able to handle it.

CF is a horrible disease and I do everything I can to help raise money for research for finding a cure.

If anytime you need to talk my email is isomamanda@yahoo.com.
God Bless and remember your brother is health and happy now.

 

[jaipow]

Isabella


I'm 20 years old and have CF. I am so sorry to year about your brother. It is very hard to cope w/ it and sometimes I don't want to be here b/c it really does suck. I think about what if I was to die today what would my family say and how would they feel? I hate to ask this question but I get really scared a lot b/c I don't want to die young but I know it happens. I keep think they will find a cure real soon. Like in the next 1-3 years. When your brother died was it a painful death for him. Did he die slowly in the hospital? I don't want to die in a hospital for one but I don't want to hurt and die slowly either. What caused him to die so young? Was it his lungs, an infection?

Jaime

 

[anonymous]

Jaime, my brothers death was completely painless and as "peaceful" as a death can be. it broke my heart seeing him lying there knowing it would be the last time i'd get to see his face, hear him laugh, squeeze his hand.
he was always unwell so i feel lucky that i was able to have him around for 20 years.
the one thing i did envy about him was his absolute zest for life...he never took anything for granted and in his short time he did many things that lots of people wouldnt do in a lifetime!
i feel bad because in a way im relieved that hes gone because now hes not in pain anymore. i miss him everyday and want to know if the pain will ever go away!
unlike other kids, when i was little at birthday parties and other things when someone said make a wish mine would always be "i wish ryan didnt have cf anymore".
miss ya heaps ry.... i know hed be calling me a computer geek right now for being on here!
all you cfers (sorry to say that i know my brother hated it!) on here look after yourselves...i admire you all so much.

isabella

 

[ButtonNO1]

I WAS SO TOUCHED BY YOUR MESSAGE JAIME I HAVE CF AND IT IS SO HORRIBLE THE OLDER I GET THE MORE I FIND IT HARD TO COPE I AM SCARED AT THE THOUGHT OF DYING I WANT TO GET MARRIED AND HAVE A BABY BUT I DONT WANT TO HAVE A BABY AND NOT SHE THEM GROW UP THAT SCARES ME I KNOW MY PARENTS WOULDNT COPE WITH ME GONE . MY BROTHER I THINK CAN SOMETIMES BE JEALOUS COS I GET A LOT OF ATTENTION FROM MY MUM AND DAD BUT I KNOW HE CARES DEEP DOWN AND THAT IS THE MAIN THING. KEEP STRONG AND REMEMBER YOUR BROTHER IS AT PEACE AND WOULDN'T WANT YOU TO BE SAD BEST WISHES FROM JOXXXXX P.S HE WAS LUCKY TO HAVE SOMEONE LIKE YOU .

 

[anonymous]

Isabella,
I lost a sister to CF & I can totally relate to your comment about being glad that the suffering is over. My sister was so ready to go & it would have been selfish of me to wish her here to suffer. I'm just glad that she is healed now. Like someone else mentioned, her death wasn't a painful ordeal, but was probably a lot to deal with there at the end, just knowing her time was limited.<img src="i/expressions/heart.gif" border="0">