Sinusitis and polyps as main symptoms

[momofsinus]

My 22 yr old son is still getting tested - sweat chloride test at community hospital was 53. He will be retested at CFF center this week. His main symptoms are sinus infections and chronic inflammation. He has had 3 sinus surgeries and twice had polyps removed. He has seasonal allergies as well and now that spring is here has developed his first infection since last August. He regularly feels MISERABLE and has been unable to hold a job and complete his college studies. My question is does anyone else have this type of CF? And do doctors treat sinus infections any differently in CF patients? My son takes allegra D, a nasal spray, mucinex and sometimes an antifungal agent. Thanks for your input. I really enjoy this forum.

 

[momofsinus]

My 22 yr old son is still getting tested - sweat chloride test at community hospital was 53. He will be retested at CFF center this week. His main symptoms are sinus infections and chronic inflammation. He has had 3 sinus surgeries and twice had polyps removed. He has seasonal allergies as well and now that spring is here has developed his first infection since last August. He regularly feels MISERABLE and has been unable to hold a job and complete his college studies. My question is does anyone else have this type of CF? And do doctors treat sinus infections any differently in CF patients? My son takes allegra D, a nasal spray, mucinex and sometimes an antifungal agent. Thanks for your input. I really enjoy this forum.

 

[momofsinus]

My 22 yr old son is still getting tested - sweat chloride test at community hospital was 53. He will be retested at CFF center this week. His main symptoms are sinus infections and chronic inflammation. He has had 3 sinus surgeries and twice had polyps removed. He has seasonal allergies as well and now that spring is here has developed his first infection since last August. He regularly feels MISERABLE and has been unable to hold a job and complete his college studies. My question is does anyone else have this type of CF? And do doctors treat sinus infections any differently in CF patients? My son takes allegra D, a nasal spray, mucinex and sometimes an antifungal agent. Thanks for your input. I really enjoy this forum.

 

[momofsinus]

My 22 yr old son is still getting tested - sweat chloride test at community hospital was 53. He will be retested at CFF center this week. His main symptoms are sinus infections and chronic inflammation. He has had 3 sinus surgeries and twice had polyps removed. He has seasonal allergies as well and now that spring is here has developed his first infection since last August. He regularly feels MISERABLE and has been unable to hold a job and complete his college studies. My question is does anyone else have this type of CF? And do doctors treat sinus infections any differently in CF patients? My son takes allegra D, a nasal spray, mucinex and sometimes an antifungal agent. Thanks for your input. I really enjoy this forum.

 

[momofsinus]

My 22 yr old son is still getting tested - sweat chloride test at community hospital was 53. He will be retested at CFF center this week. His main symptoms are sinus infections and chronic inflammation. He has had 3 sinus surgeries and twice had polyps removed. He has seasonal allergies as well and now that spring is here has developed his first infection since last August. He regularly feels MISERABLE and has been unable to hold a job and complete his college studies. My question is does anyone else have this type of CF? And do doctors treat sinus infections any differently in CF patients? My son takes allegra D, a nasal spray, mucinex and sometimes an antifungal agent. Thanks for your input. I really enjoy this forum.

 

[nu65]

I've had 3 or 4 sinus surgeries in the past 11 years or so. I have CF and I didn't show any major lung component until I was around 14. But a few years before then I saw an ear, nose and throat specialist. Each surgery was done to take out polyps. I use a saline nasal spray and flonase. I also see my ENT doctor every 3 months where she goes in and sucks out all she can. I usually have a pretty bad sense of smell but my ENT appts help open me up. I hope my experience is helpful.

 

[nu65]

I've had 3 or 4 sinus surgeries in the past 11 years or so. I have CF and I didn't show any major lung component until I was around 14. But a few years before then I saw an ear, nose and throat specialist. Each surgery was done to take out polyps. I use a saline nasal spray and flonase. I also see my ENT doctor every 3 months where she goes in and sucks out all she can. I usually have a pretty bad sense of smell but my ENT appts help open me up. I hope my experience is helpful.

 

[nu65]

I've had 3 or 4 sinus surgeries in the past 11 years or so. I have CF and I didn't show any major lung component until I was around 14. But a few years before then I saw an ear, nose and throat specialist. Each surgery was done to take out polyps. I use a saline nasal spray and flonase. I also see my ENT doctor every 3 months where she goes in and sucks out all she can. I usually have a pretty bad sense of smell but my ENT appts help open me up. I hope my experience is helpful.

 

[nu65]

I've had 3 or 4 sinus surgeries in the past 11 years or so. I have CF and I didn't show any major lung component until I was around 14. But a few years before then I saw an ear, nose and throat specialist. Each surgery was done to take out polyps. I use a saline nasal spray and flonase. I also see my ENT doctor every 3 months where she goes in and sucks out all she can. I usually have a pretty bad sense of smell but my ENT appts help open me up. I hope my experience is helpful.

 

[nu65]

I've had 3 or 4 sinus surgeries in the past 11 years or so. I have CF and I didn't show any major lung component until I was around 14. But a few years before then I saw an ear, nose and throat specialist. Each surgery was done to take out polyps. I use a saline nasal spray and flonase. I also see my ENT doctor every 3 months where she goes in and sucks out all she can. I usually have a pretty bad sense of smell but my ENT appts help open me up. I hope my experience is helpful.

 

[Juliet]

I've had sinus problems all my life. My sweat test was 53 when I was 19 y.o. but they didn't DX me with CF (genetic testing) until a few months ago. Funny that it matches his! I've also had some lung involvement, but not enough to stop me from school / career / marriage / child. I was only DX with CF at 43 yo. I had surgery for polyps about a year ago. I'm on allergy shots (weekly) with a customized serum which really helps out A TON! Before I started allergy treatment (about 2 years ago) I'd pretty much had a chronic sinus infection that never really went away for about 4 years straight. It would flare up and subside, but was always around. Between the allergy treatment coupled with surgery I've been doing really well with that. Good luck. ~Juliet

 

[Juliet]

I've had sinus problems all my life. My sweat test was 53 when I was 19 y.o. but they didn't DX me with CF (genetic testing) until a few months ago. Funny that it matches his! I've also had some lung involvement, but not enough to stop me from school / career / marriage / child. I was only DX with CF at 43 yo. I had surgery for polyps about a year ago. I'm on allergy shots (weekly) with a customized serum which really helps out A TON! Before I started allergy treatment (about 2 years ago) I'd pretty much had a chronic sinus infection that never really went away for about 4 years straight. It would flare up and subside, but was always around. Between the allergy treatment coupled with surgery I've been doing really well with that. Good luck. ~Juliet

 

[Juliet]

I've had sinus problems all my life. My sweat test was 53 when I was 19 y.o. but they didn't DX me with CF (genetic testing) until a few months ago. Funny that it matches his! I've also had some lung involvement, but not enough to stop me from school / career / marriage / child. I was only DX with CF at 43 yo. I had surgery for polyps about a year ago. I'm on allergy shots (weekly) with a customized serum which really helps out A TON! Before I started allergy treatment (about 2 years ago) I'd pretty much had a chronic sinus infection that never really went away for about 4 years straight. It would flare up and subside, but was always around. Between the allergy treatment coupled with surgery I've been doing really well with that. Good luck. ~Juliet

 

[Juliet]

I've had sinus problems all my life. My sweat test was 53 when I was 19 y.o. but they didn't DX me with CF (genetic testing) until a few months ago. Funny that it matches his! I've also had some lung involvement, but not enough to stop me from school / career / marriage / child. I was only DX with CF at 43 yo. I had surgery for polyps about a year ago. I'm on allergy shots (weekly) with a customized serum which really helps out A TON! Before I started allergy treatment (about 2 years ago) I'd pretty much had a chronic sinus infection that never really went away for about 4 years straight. It would flare up and subside, but was always around. Between the allergy treatment coupled with surgery I've been doing really well with that. Good luck. ~Juliet

 

[Juliet]

I've had sinus problems all my life. My sweat test was 53 when I was 19 y.o. but they didn't DX me with CF (genetic testing) until a few months ago. Funny that it matches his! I've also had some lung involvement, but not enough to stop me from school / career / marriage / child. I was only DX with CF at 43 yo. I had surgery for polyps about a year ago. I'm on allergy shots (weekly) with a customized serum which really helps out A TON! Before I started allergy treatment (about 2 years ago) I'd pretty much had a chronic sinus infection that never really went away for about 4 years straight. It would flare up and subside, but was always around. Between the allergy treatment coupled with surgery I've been doing really well with that. Good luck. ~Juliet

 

[Sevenstars]

I don't think they treat sinus issues any differently in CF, but if he does have CF it will add other things to his regimen. They might put him on normal preventative CF medications (inhaled hypertonic saline for example) to keep his lungs healthy, even if they are fine now. Best of luck and welcome to the forum.

 

[Sevenstars]

I don't think they treat sinus issues any differently in CF, but if he does have CF it will add other things to his regimen. They might put him on normal preventative CF medications (inhaled hypertonic saline for example) to keep his lungs healthy, even if they are fine now. Best of luck and welcome to the forum.

 

[Sevenstars]

I don't think they treat sinus issues any differently in CF, but if he does have CF it will add other things to his regimen. They might put him on normal preventative CF medications (inhaled hypertonic saline for example) to keep his lungs healthy, even if they are fine now. Best of luck and welcome to the forum.

 

[Sevenstars]

I don't think they treat sinus issues any differently in CF, but if he does have CF it will add other things to his regimen. They might put him on normal preventative CF medications (inhaled hypertonic saline for example) to keep his lungs healthy, even if they are fine now. Best of luck and welcome to the forum.

 

[Sevenstars]

I don't think they treat sinus issues any differently in CF, but if he does have CF it will add other things to his regimen. They might put him on normal preventative CF medications (inhaled hypertonic saline for example) to keep his lungs healthy, even if they are fine now. Best of luck and welcome to the forum.