Does anyone have alot of sleepless nights or like sleep and wake up 20 minutes later? I don't seem to have restful sleep lately. My dr thought maybe my oxygen level was lower at night than during the day. Is anyone on oxygen at night? If so how do you sleep? Is it noisy? My dr said I may have to go on it during the night. Thanks for any info. Eva
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sleeping or rather not sleeping
- Thread starter anonymous
- Start date
AbsintheSorrow
New member
I find myself waking up a lot. Several times a night, usually. Right now it's even more due to personal issues on my mind, but I rarely sleep soundly through the night. And no, I'm not on oxygen.
I was also having trouble sleeping at night. Reguardless of hours I slept, I woke up tired. I am on Oxygen 2.5 l/h at night. The machince makes a low soothing noise, that I actually find relaxing. I sleep much better and feel more rested. One thing, if you start O2 at night, get the water canula(sp?) if not your nose WILL dry out and also your lungs may hurt from the dry air. Hope this helps.
Eric 24 w/CF
Eric 24 w/CF
Ask the doctor for a test of your oxygen level at night.
I had to spend a night at the hospital hooked up to a machine that monitored my breathing and oxygen levels.
Morning headaches is a sign that you need extra oxygen.
I sleept hard before I was put on oxygen, it was almost impossible to wake me up but I never felt rested in the morning.
Ginny.
I had to spend a night at the hospital hooked up to a machine that monitored my breathing and oxygen levels.
Morning headaches is a sign that you need extra oxygen.
I sleept hard before I was put on oxygen, it was almost impossible to wake me up but I never felt rested in the morning.
Ginny.
I take advair. But I also feel restless when I take certain sinus meds. I just started allegra D and nalsonex. So I stopped the allegra D to see if it's that. We'll see. I don't wake up with headaches to the other member. But a few weeks ago my boyfriend woke me up and said I was breathing funny like panting or something. I caught myself doing that once after that and I was sleeping on my back. So I try not to do that. But I'm a VERY light sleeper. Thanks! Eva
I was going through the same thing as you. Then i was admitted to hospital and on oxygen all the time and slept better, then my oxygen levels were better and i didn't need it as much so i stopped using it, and on the nights i didn't use it was up and down all night, waking up for no reason and just not comfy. As soon as i would put oxygen on i would sleep and sleep through the night (until i had to pee from the "wonderful" IV). No one ever checked to see what my oxygen levels were at night when i was sleeping, but hey i figure my body is the best judge. I just got home yesterday from hospital and am not using oxygen, and night #1 was restless. I am going to give it a few nights just to see if it is just the change in scenery or whether i need oxygen for sleeping.
Will let you know,
Julie
Will let you know,
Julie
Thanks Julie, Is it scary to be on oxygen all the time? I have a really hard time with new things in treatment. I just went on my first iv in July. I was so afraid. But when I was done I thought, what was I afraid of, I felt great. But I know I'll have to go back on soon. I have never been in the hosp. either.I don't mean to ask alot of uncomfortable questions but what do we have to learn from but each other right? Eva 35 w/cf diagnost at 30.
Hi Eva,
I was only on oxygen all the time in hospital, it was uncomfortable with it at first but after a couple days was more comfortable on than off. I found the smell annoying, but after a while didn't notice it anymore. It scares me to think about the fact that my life truly could be cut short without a transplant, but i try my hardest not to think about it. I have an almost 4 year old son to think about giving as much positive time to while i am at home as possible. He is not mine biologically though, so i can't answer any questions about CF and having kids.
Julie
I was only on oxygen all the time in hospital, it was uncomfortable with it at first but after a couple days was more comfortable on than off. I found the smell annoying, but after a while didn't notice it anymore. It scares me to think about the fact that my life truly could be cut short without a transplant, but i try my hardest not to think about it. I have an almost 4 year old son to think about giving as much positive time to while i am at home as possible. He is not mine biologically though, so i can't answer any questions about CF and having kids.
Julie
Is this Julie from Canada.....member of CF 2 Chat??? If so we are so worried about you and miss you lots. How are you doing? We think of you often and evertime in chat some one asks if anyone has heard anything new on you. So if your the same Julie please give me an update to pass on if you dont mind of course.
Amanda
21 w/cf
Amanda
21 w/cf
I sleep a lot and completely through the night, but I have always had vivid, often horrible dreams. Every SINGLE NIGHT i have the most vivid and bizarre dreams, and most of the time they are really disturbing. I went through a period last year of every night dreaming i was killed in some violent way, it was bad. I dont know why i have this, i have a pretty good handle on things psychologically and have seen a psychologist in the past just to see, but didnt really find that it helped anything basically because i didnt really have a hard time dealing with stuff, other than the obvious, but thats my life so...
I dont wake up from these dreams though, which I guess is unusual.
Anyone else have vivid awful dreams all the time?
I dont wake up from these dreams though, which I guess is unusual.
Anyone else have vivid awful dreams all the time?
i always have a good, solid night's sleep (usually about 8/9 hours) -and i never wake up during the night- but i always wake up tired. i don't know why this is...i've never had to be on oxygen because my sats are usually around 98 so i dont know why it happens! but during the day i am constantly exhausted.
milla
milla
I haven't took my allegra-d in 3 days and have slept all 3 nights. I still wake up but it's every few hours instead of minutes. and I am very tired in the day. Can't nap. Have so much trouble falling asleep during the day. So I guess it means I'm not thaat tired. Ha! But to the member about dreams, when I do sleep, I have always had very vivid dreams but not bad dreams just odd ones. I will still keep monitoring it till I go to the cf dr. Does anyone else have a long wait to see there dr? If mine tells me she wants to see me in 6 or 8 weeks for follow-up. I can't get in because she is completely booked. So it's usually close to 2 1/2 months to 3 months. It's hard because md don't seem to know much of anything about cf. It's ridiculouse (sp) to have to inform your md about things you know about cf. As if your enlightening him. Pitiful! Thanks Eva
I started sleeping with 2l/hO2 at night back in june b/c my O2 lever drops below 90 11% of the time.. We did the home oximetry test on me through the night for one night and that was the result, so my doc immedialtely had me start sleeping with O2. the first few nights were a little rough to get used to having the canula in your nose, but after a while and once you are used to it, you practically dont know its there.. I have a O2 concentrater machine in my room, its nosy, but quiet enough for me to sleep through, my bf also sleeps through it fine. SInce i had my feeding tube put in back in aust of this year, i have been taking my sleeping pill since then to help me sleep. I find myself getting up 2-3 times a night to go to the bathroom seeing im getting 1000ml of fluid in me over 10 hours from the tube feeds, but for the last 2 nights, i havent taken my sleeping pill and done just as well. Sometimes i also cant fall asleep for a while because for some reason i start to think about everything and need to distract myself by watching tv until i fall asleep.
I started sleeping with 2l/hO2 at night back in june b/c my O2 lever drops below 90 11% of the time.. We did the home oximetry test on me through the night for one night and that was the result, so my doc immedialtely had me start sleeping with O2. the first few nights were a little rough to get used to having the canula in your nose, but after a while and once you are used to it, you practically dont know its there.. I have a O2 concentrater machine in my room, its nosy, but quiet enough for me to sleep through, my bf also sleeps through it fine. SInce i had my feeding tube put in back in aust of this year, i have been taking my sleeping pill since then to help me sleep. I find myself getting up 2-3 times a night to go to the bathroom seeing im getting 1000ml of fluid in me over 10 hours from the tube feeds, but for the last 2 nights, i havent taken my sleeping pill and done just as well. Sometimes i also cant fall asleep for a while because for some reason i start to think about everything and need to distract myself by watching tv until i fall asleep.
i hope bad dreams arent a sign of o2 deficiency, because i have bad dreams every single night of my life, no joke. i am not in the GREATEST of health but my sats are usually pretty normal..97 ish i would guess. and i have never needed o2 except in weird times at the hospital. where did you hear that?