Slightly Stressed

[Kimber1]

Heya All

I have an almost 4month old girl with DDF508 who was diagnosed at 3 weeks. She has been unwell and on antibotics since about five weeks. We are extremely strict with her meds and physio but it doesnt seem to be helping. The hospital did a cough swab and changed her antibotics and also put her on nebuliser antibotics which she has been on for about two and half weeks but it doesnt seem to be helping either. We live away from the hospital and they have said if she is no better in a couple more weeks they will fly us down and admit her.
Should I be worried? Is it something I am doing? or perhaps not doing? or is this what I should be expecting?
Any advice or opinions good and bad would be appreciated

 

[Kimber1]

Heya All

I have an almost 4month old girl with DDF508 who was diagnosed at 3 weeks. She has been unwell and on antibotics since about five weeks. We are extremely strict with her meds and physio but it doesnt seem to be helping. The hospital did a cough swab and changed her antibotics and also put her on nebuliser antibotics which she has been on for about two and half weeks but it doesnt seem to be helping either. We live away from the hospital and they have said if she is no better in a couple more weeks they will fly us down and admit her.
Should I be worried? Is it something I am doing? or perhaps not doing? or is this what I should be expecting?
Any advice or opinions good and bad would be appreciated

 

[Kimber1]

Heya All

I have an almost 4month old girl with DDF508 who was diagnosed at 3 weeks. She has been unwell and on antibotics since about five weeks. We are extremely strict with her meds and physio but it doesnt seem to be helping. The hospital did a cough swab and changed her antibotics and also put her on nebuliser antibotics which she has been on for about two and half weeks but it doesnt seem to be helping either. We live away from the hospital and they have said if she is no better in a couple more weeks they will fly us down and admit her.
Should I be worried? Is it something I am doing? or perhaps not doing? or is this what I should be expecting?
Any advice or opinions good and bad would be appreciated

 

[Kimber1]

Heya All

I have an almost 4month old girl with DDF508 who was diagnosed at 3 weeks. She has been unwell and on antibotics since about five weeks. We are extremely strict with her meds and physio but it doesnt seem to be helping. The hospital did a cough swab and changed her antibotics and also put her on nebuliser antibotics which she has been on for about two and half weeks but it doesnt seem to be helping either. We live away from the hospital and they have said if she is no better in a couple more weeks they will fly us down and admit her.
Should I be worried? Is it something I am doing? or perhaps not doing? or is this what I should be expecting?
Any advice or opinions good and bad would be appreciated

 

[Kimber1]

Heya All
<br />
<br />I have an almost 4month old girl with DDF508 who was diagnosed at 3 weeks. She has been unwell and on antibotics since about five weeks. We are extremely strict with her meds and physio but it doesnt seem to be helping. The hospital did a cough swab and changed her antibotics and also put her on nebuliser antibotics which she has been on for about two and half weeks but it doesnt seem to be helping either. We live away from the hospital and they have said if she is no better in a couple more weeks they will fly us down and admit her.
<br />Should I be worried? Is it something I am doing? or perhaps not doing? or is this what I should be expecting?
<br />Any advice or opinions good and bad would be appreciated

 

[saveferris2009]

Check this article out - it should help you understand what you should be doing


It's called "the Bell Curve" and it was published in the New Yorker a few years back

<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Warwick">http://noexcusesnoexcuses.blog...m/search/label/Warwick</a>

 

[saveferris2009]

Check this article out - it should help you understand what you should be doing


It's called "the Bell Curve" and it was published in the New Yorker a few years back

<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Warwick">http://noexcusesnoexcuses.blog...m/search/label/Warwick</a>

 

[saveferris2009]

Check this article out - it should help you understand what you should be doing


It's called "the Bell Curve" and it was published in the New Yorker a few years back

<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Warwick">http://noexcusesnoexcuses.blog...m/search/label/Warwick</a>

 

[saveferris2009]

Check this article out - it should help you understand what you should be doing


It's called "the Bell Curve" and it was published in the New Yorker a few years back

<a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Warwick">http://noexcusesnoexcuses.blog...m/search/label/Warwick</a>

 

[saveferris2009]

Check this article out - it should help you understand what you should be doing
<br />
<br />
<br />It's called "the Bell Curve" and it was published in the New Yorker a few years back
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://noexcusesnoexcuses.blogspot.com/search/label/Warwick">http://noexcusesnoexcuses.blog...m/search/label/Warwick</a>

 

[sdelorenzo]

Has she had an x-ray? If not, I would highly recommend it. Make sure the cf dr takes a look at it, not just the local doctors. Why would they wait a few more weeks? Both of my kid's had pneumonia when they were 3 or 4 months old and had to be on IV antibiotics. They "sounded" fine but weren't. The only other time we dealt with pnuemonia was last year when my son caught the flu. You know your baby better than anyone. If you think she needs more help to get better quickly, see that she gets it!
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, two months no cf

 

[sdelorenzo]

Has she had an x-ray? If not, I would highly recommend it. Make sure the cf dr takes a look at it, not just the local doctors. Why would they wait a few more weeks? Both of my kid's had pneumonia when they were 3 or 4 months old and had to be on IV antibiotics. They "sounded" fine but weren't. The only other time we dealt with pnuemonia was last year when my son caught the flu. You know your baby better than anyone. If you think she needs more help to get better quickly, see that she gets it!
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, two months no cf

 

[sdelorenzo]

Has she had an x-ray? If not, I would highly recommend it. Make sure the cf dr takes a look at it, not just the local doctors. Why would they wait a few more weeks? Both of my kid's had pneumonia when they were 3 or 4 months old and had to be on IV antibiotics. They "sounded" fine but weren't. The only other time we dealt with pnuemonia was last year when my son caught the flu. You know your baby better than anyone. If you think she needs more help to get better quickly, see that she gets it!
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, two months no cf

 

[sdelorenzo]

Has she had an x-ray? If not, I would highly recommend it. Make sure the cf dr takes a look at it, not just the local doctors. Why would they wait a few more weeks? Both of my kid's had pneumonia when they were 3 or 4 months old and had to be on IV antibiotics. They "sounded" fine but weren't. The only other time we dealt with pnuemonia was last year when my son caught the flu. You know your baby better than anyone. If you think she needs more help to get better quickly, see that she gets it!
Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, two months no cf

 

[sdelorenzo]

Has she had an x-ray? If not, I would highly recommend it. Make sure the cf dr takes a look at it, not just the local doctors. Why would they wait a few more weeks? Both of my kid's had pneumonia when they were 3 or 4 months old and had to be on IV antibiotics. They "sounded" fine but weren't. The only other time we dealt with pnuemonia was last year when my son caught the flu. You know your baby better than anyone. If you think she needs more help to get better quickly, see that she gets it!
<br />Sharon, mom of Sophia, 7 and Jack, 5 both with cf, Grant, two months no cf

 

[Kimber1]

Thanks for the article is was very interesting I will look further into it all.
As far as xrays go she has only had the one when first diagnosed. The problem I have is I live a plane ride away from the hospital and most correspondance is done over the phone, the health department fly me and my bub down every eight weeks or so or earlier if necessary. As an unexperienced cf parent I have no idea what I am doing basically. To an outsider she appears very well, she is gaining weight and developmentally doing fantastic. But she has a cough and I can feel the rattle in her chest. How bad is bad? And I often feel like I am overreacting because everyone else says there is nothing wrong with her

 

[Kimber1]

Thanks for the article is was very interesting I will look further into it all.
As far as xrays go she has only had the one when first diagnosed. The problem I have is I live a plane ride away from the hospital and most correspondance is done over the phone, the health department fly me and my bub down every eight weeks or so or earlier if necessary. As an unexperienced cf parent I have no idea what I am doing basically. To an outsider she appears very well, she is gaining weight and developmentally doing fantastic. But she has a cough and I can feel the rattle in her chest. How bad is bad? And I often feel like I am overreacting because everyone else says there is nothing wrong with her

 

[Kimber1]

Thanks for the article is was very interesting I will look further into it all.
As far as xrays go she has only had the one when first diagnosed. The problem I have is I live a plane ride away from the hospital and most correspondance is done over the phone, the health department fly me and my bub down every eight weeks or so or earlier if necessary. As an unexperienced cf parent I have no idea what I am doing basically. To an outsider she appears very well, she is gaining weight and developmentally doing fantastic. But she has a cough and I can feel the rattle in her chest. How bad is bad? And I often feel like I am overreacting because everyone else says there is nothing wrong with her

 

[Kimber1]

Thanks for the article is was very interesting I will look further into it all.
As far as xrays go she has only had the one when first diagnosed. The problem I have is I live a plane ride away from the hospital and most correspondance is done over the phone, the health department fly me and my bub down every eight weeks or so or earlier if necessary. As an unexperienced cf parent I have no idea what I am doing basically. To an outsider she appears very well, she is gaining weight and developmentally doing fantastic. But she has a cough and I can feel the rattle in her chest. How bad is bad? And I often feel like I am overreacting because everyone else says there is nothing wrong with her

 

[Kimber1]

Thanks for the article is was very interesting I will look further into it all.
<br />As far as xrays go she has only had the one when first diagnosed. The problem I have is I live a plane ride away from the hospital and most correspondance is done over the phone, the health department fly me and my bub down every eight weeks or so or earlier if necessary. As an unexperienced cf parent I have no idea what I am doing basically. To an outsider she appears very well, she is gaining weight and developmentally doing fantastic. But she has a cough and I can feel the rattle in her chest. How bad is bad? And I often feel like I am overreacting because everyone else says there is nothing wrong with her