ok I just started getting ssdi for my child and they gave my a large back check but I can only spend it on things like medical treatments,personal needs,special equipment or house modification for my child but the case worker said as long as my child has more then $2000.00 in the bank he wont get any more disabilty check so make sure i spend as much as I can to get it under that level. this just seems wrong to have to kind of blow the money to get more, any good suggestions on what to do with the money for now ? save or spend ?
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SSDI
- Thread starter anonymous
- Start date
Emily65Roses
New member
I have heard before of people setting up a "secret" savings account and putting a lot of that money into it. Then you can use it later when you need to and are stuck... or you can give it to the child once he's old enough to get a car, or go to college, or get a house, etc etc.
I say spend as needed, save the rest.
I say spend as needed, save the rest.
ashton2005
New member
How long did it take for you to get approved????
christi
christi
<div class="FTQUOTE"><begin quote>this just seems wrong to have to kind of blow the money to get more, </end quote></div>
In my opinion, people who are worried about wether or not they are using the given money appropiately are not the poeple I'm worried about misusing the funds. You probably don't have to look far to see misuse.
We applied for SSDI for my little girl but were denied, I make to much. But even so, we have a hard time struggling to make ends meet. So far we spend about 200 a month in medicines and can expect to max out her out-of-pocket expense each year for medical. That comes out to 300-400 dollars a month in just medical. Thats with good insurance and a little girl who hasn't developed any of the "bad" stuff yet. As ya'll all know, there are a lot of other expenses associated with CF that aren't specifically medical. Our CF clinic is an hour and a half away. Hosipital stays cost us a fortune in just logistics.
To get a little polical, I think the governement has far to much of a liberal handout program and it makes me mad. But if you have a child with CF, or any other major medical condition, than you need some help and I don't mind assistance.
Use the money honestly and don't worry about it.
In my opinion, people who are worried about wether or not they are using the given money appropiately are not the poeple I'm worried about misusing the funds. You probably don't have to look far to see misuse.
We applied for SSDI for my little girl but were denied, I make to much. But even so, we have a hard time struggling to make ends meet. So far we spend about 200 a month in medicines and can expect to max out her out-of-pocket expense each year for medical. That comes out to 300-400 dollars a month in just medical. Thats with good insurance and a little girl who hasn't developed any of the "bad" stuff yet. As ya'll all know, there are a lot of other expenses associated with CF that aren't specifically medical. Our CF clinic is an hour and a half away. Hosipital stays cost us a fortune in just logistics.
To get a little polical, I think the governement has far to much of a liberal handout program and it makes me mad. But if you have a child with CF, or any other major medical condition, than you need some help and I don't mind assistance.
Use the money honestly and don't worry about it.
Isn't there something called a health savings account? We've asked about it -- were told by our financial guy to just start saving up money then at some point have an attorney draw up the document. It can only be used for medical purposes and it can't be counted against your income. That way you don't have to spend it wildly and can save it for future expenses -- medical equipment, transplant....
Liza
Liza
The health savings account I have experience with is a use it or lose it thing from year to year. You can put so much of your income in it up each year, tax free, but if you don't use it all than you forfiet the money at the end of the year. One good thing is that if you commit to putting X number of dollars in it a month than that means you will have 12X total at the end of the year. You can use all 12X at one time the first month of the year. In otherwords, you don't have to wait for the balance to accumulate.
I tried it once and it didn't really work out for several reasons.
But thats just what I have, there maybe something more broad.
I tried it once and it didn't really work out for several reasons.
But thats just what I have, there maybe something more broad.
Maybe you are thinking of a Supplemental Need Trust ( <a target=_blank class=ftalternatingbarlinklarge href="http://library.findlaw.com/2000/Mar/1/132099.html">http://library.findlaw.com/2000/Mar/1/132099.html</a> )?
Might talk to a lawyer about setting up such a thing...
-LisaV
at work and not signed in
Might talk to a lawyer about setting up such a thing...
-LisaV
at work and not signed in
No, this is something different. I have a flex account thru work that I set aside so much and get reimbursed for daycare and health care expenses and it's use it or lose it. this is an actual savings account with legal documents set in place.
We want to be able to set aside money for the future and future expenses without having it go against DS's SSDI, in the future should he become disabled and qualify for disability.
liza
Lisa -- that's exactly what I meant! Thanks.
We want to be able to set aside money for the future and future expenses without having it go against DS's SSDI, in the future should he become disabled and qualify for disability.
liza
Lisa -- that's exactly what I meant! Thanks.
lovingBenandCambree
New member
I receive SSDI for myself and so because I do my daughter does. I am worried now that if she has over 2000.00 then she won't get anymore. Is that true. We have much more than that in her account.
Emilee
Emilee
to the origional poster,
Is your child on SSI or SSDI off of a parent/grandparent? I am assuming you mean SSI but just want to make sure so I share the correct information.
Do you have means to have a family member put some money into a savings account for your family/child? For example, my grandma gets about $1800 a month in retirement benefits. Her assisted living home costs almost $3000 a month but she has money in savings (to last however much longer she will be alive, because her expenses far exceed her monthly income). She fears for the day when she has to go into a nursing home because that's even more expensive and even with the money in savings, it will all be gone in a year at the nursing home price. So, she liquidated everything in her savings except for a few thousand dollars and the rest is in a bank account that my mom and dad have, and my moms sister and her husband have. That way, when the time comes, she can get govt. assistance to pay for some of the nursing home. THat way she won't deplete all of her savings in 1 year. In order to protect herself though, they drew up a contract with a lawyer (or you can do it yourself) stating who's money it is, who it is to be used for and so on...
Maybe you can implement something like that for your situation.
Also, not that it makes a big difference, but I am pretty sure that the resource limit is $3000 for a family, $2000 for an individual.
If when your child is older (over 18) and has worked and established at least 6 "work" credits (I can give you more info from the SSA website if you are interested) and applies and qualifies for SSDI, the amount of savings or resources your child has doesn't matter. Resources and income only count for SSI, not SSDI. My husband recieves SSDI right now, but they pay him off of his work history, not based on our family size/income and resources.
I hope this makes sense.
Is your child on SSI or SSDI off of a parent/grandparent? I am assuming you mean SSI but just want to make sure so I share the correct information.
Do you have means to have a family member put some money into a savings account for your family/child? For example, my grandma gets about $1800 a month in retirement benefits. Her assisted living home costs almost $3000 a month but she has money in savings (to last however much longer she will be alive, because her expenses far exceed her monthly income). She fears for the day when she has to go into a nursing home because that's even more expensive and even with the money in savings, it will all be gone in a year at the nursing home price. So, she liquidated everything in her savings except for a few thousand dollars and the rest is in a bank account that my mom and dad have, and my moms sister and her husband have. That way, when the time comes, she can get govt. assistance to pay for some of the nursing home. THat way she won't deplete all of her savings in 1 year. In order to protect herself though, they drew up a contract with a lawyer (or you can do it yourself) stating who's money it is, who it is to be used for and so on...
Maybe you can implement something like that for your situation.
Also, not that it makes a big difference, but I am pretty sure that the resource limit is $3000 for a family, $2000 for an individual.
If when your child is older (over 18) and has worked and established at least 6 "work" credits (I can give you more info from the SSA website if you are interested) and applies and qualifies for SSDI, the amount of savings or resources your child has doesn't matter. Resources and income only count for SSI, not SSDI. My husband recieves SSDI right now, but they pay him off of his work history, not based on our family size/income and resources.
I hope this makes sense.
lovingBenandCambree
New member
Thanks Julie,
I thought that was what I was told, but freaked out a bit when I saw what Liza had put. Back to being calm and cool <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thanks again!
Emilee
I thought that was what I was told, but freaked out a bit when I saw what Liza had put. Back to being calm and cool <img src="i/expressions/face-icon-small-smile.gif" border="0">
Thanks again!
Emilee
Sorry, didn't want mean to panic anyone -- meant SSI.
And no DS doesn't get SSI or SSDI. Plus where we live there aren't any state programs unless you have a very very low income.
Just wanted to stress the importance of putting away money now if you're able to and to make sure your're protected so it can't count against you in the future if you're in a program where that is a possibility.
Liza
And no DS doesn't get SSI or SSDI. Plus where we live there aren't any state programs unless you have a very very low income.
Just wanted to stress the importance of putting away money now if you're able to and to make sure your're protected so it can't count against you in the future if you're in a program where that is a possibility.
Liza
phew! I was wondering what type of faux paux I committed <img src="i/expressions/face-icon-small-smile.gif" border="0">
BTW, last fall we took in all of the loose silver change that we throw into a big jar whenever we empty our pockets, etc. we put $457 in DS's saving account. We used to consider it our vacation fund and cash in the money for spending money. Amazing how a few coins here and there really add up over a year or so.
Liza
BTW, last fall we took in all of the loose silver change that we throw into a big jar whenever we empty our pockets, etc. we put $457 in DS's saving account. We used to consider it our vacation fund and cash in the money for spending money. Amazing how a few coins here and there really add up over a year or so.
Liza
texascfdad
New member
we applied for ssdi for david, and at first we were approved, but then after the second month, we were denied. i was not too worried about the monthly income, my concern was that i was about to start making too much to have him in medicaide. and if you have ssdi, you are automatically on medicaid. im kinda proud, and didnt want to be on some sort of "welfare", but i finally decided it is there for people who need it, and i pay out of my check for people who dont need it to abuse it. so i might as well get it for my son. we finally had to get a lawyer to fight it for us. and it didnt cost us anything. they said the price would be like 10 percent of back checks owed to us up to a certain amount, but they decided we werent owed anyback checks, so we didnt have to pay. it took about 8 months for everything to go thru. but now David gets a 45 dollar a month check, and all of his medical bills paid which was what i was most concerned about.
A bit confused on some issues. I live in TX. I have been receiving
SSID (disability) for many years. It comes with Medicaid. I do not
have a long work history, so they went with SSID. My daughter is my
dependant but has never received anything at the Social Security
office to pertain to my health/income. Which is fine. Years ago she
did get a check from the Human Recourses, but they just cut into my
Food Stamp amount anyway, so it was pointless to have more
paperwork for $15 difference. Does anyone know where I can find out
exactly what my medicaid covers? I know because I was over 21 I
only get 3 presc. a month and drs/hosp coverage, but I would like
to get a supplemental drink to help keep my weight up. I do not
know if that is covered. Seems silly that you cannot get a
breathing machine when your disabled, so I do not hold out a lot of
hope on the drinks...any advice or clarification would be
appreciated.
SSID (disability) for many years. It comes with Medicaid. I do not
have a long work history, so they went with SSID. My daughter is my
dependant but has never received anything at the Social Security
office to pertain to my health/income. Which is fine. Years ago she
did get a check from the Human Recourses, but they just cut into my
Food Stamp amount anyway, so it was pointless to have more
paperwork for $15 difference. Does anyone know where I can find out
exactly what my medicaid covers? I know because I was over 21 I
only get 3 presc. a month and drs/hosp coverage, but I would like
to get a supplemental drink to help keep my weight up. I do not
know if that is covered. Seems silly that you cannot get a
breathing machine when your disabled, so I do not hold out a lot of
hope on the drinks...any advice or clarification would be
appreciated.